The 20 Best Neurofibromatosis Doctors Near Me in chicago, IL

Find the Top Neurofibromatosis Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 157 doctor with experience in Neurofibromatosis near chicago, IL. Of these, 137 are Experienced, 14 are Advanced, 4 are Elite and 2 are Distinguished.

Location
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157 providers found
    Elite in Neurofibromatosis
    Hematology | Oncology
    Elite in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English, Polish, Spanish

    Miriam Bornhorst is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. She has been practicing medicine for over 18 years. Dr. Bornhorst is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Brain Tumor, and Glioma.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English, Polish, Spanish

    Robert Listernick is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Listernick is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Glutaric Acidemia Type 2.

    Elite in Neurofibromatosis
    Medical Genetics | Pediatrics
    Elite in Neurofibromatosis
    Medical Genetics | Pediatrics
    Referral may be required

    Lurie Children's Medical Group Inc.

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Carlos Prada is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Prada is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 172 other conditions, according to our data. His clinical expertise encompasses RASopathies, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Smith-Kingsmore Syndrome.

    Learn about our expert tiers
    Elite in Neurofibromatosis
    Pediatric Neurology | Neurology
    Elite in Neurofibromatosis
    Pediatric Neurology | Neurology
    Referral may be required

    Comer Children's Hospital - Hyde Park

    5721 S. Maryland Ave., 
    Chicago, IL 
     (6.6 miles away)
    Languages Spoken:
    English, Italian
    Accepting New Patients
    Offers Telehealth

    James Tonsgard is a Pediatric Neurologist and a Neurologist practicing medicine in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies. Dr. Tonsgard is board certified in Pediatrics and Practicing Since1978. Dr. Tonsgard is currently accepting new patients.

    Experienced in Neurofibromatosis
    Plastic Surgery
    Experienced in Neurofibromatosis
    Plastic Surgery
    Referral may be required
    259 E Erie St Ste 2060, Lavin Family Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jason Ko is a Plastic Surgeon practicing medicine in Chicago, Illinois. Dr. Ko is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Phantom Limb Pain, Legius Syndrome, Erb's Palsy, Bone Graft, and Tenotomy. Dr. Ko is currently accepting new patients.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology
    Referral may be required
    259 E Erie St Ste 1950, Lavin Family Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English, Farsi, Spanish
    Accepting New Patients
    Offers Telehealth

    Ali Shaibani is a Neuroradiologist practicing medicine in Chicago, Illinois. Dr. Shaibani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Stroke, Thrombectomy, and Stent Placement. Dr. Shaibani is board certified in American Board Of Radiology, American Board Of Radiology - Diagnostic Radiology (Certified), Neuroradiology, and Radiology. Dr. Shaibani is currently accepting new patients.

    Experienced in Neurofibromatosis
    Ophthalmology
    Experienced in Neurofibromatosis
    Ophthalmology
    Referral may be required

    Office

    259 E Erie St Ste 2450, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English

    Bahram Rahmani is an Ophthalmologist practicing medicine in Chicago, Illinois. Dr. Rahmani is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Microphthalmia, Strabismus, Microphthalmia with Linear Skin Defects Syndrome, Trabeculectomy, and Cataract Removal.

    Distinguished in Neurofibromatosis
    Medical Genetics | Pediatrics
    Distinguished in Neurofibromatosis
    Medical Genetics | Pediatrics
    Referral may be required

    Lurie Children's Medical Group Inc.

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Joel Charrow is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Charrow is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 46 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease Type 1, Gaucher Disease, Achondroplasia, Isovaleric Acidemia, and Splenectomy.

    Distinguished in Neurofibromatosis
    Internal Medicine
    Distinguished in Neurofibromatosis
    Internal Medicine

    University Of Illinois Chicago Physician Group (Uicpg)

    1801 W Taylor St, 
    Chicago, IL 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stefania Maraka is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Maraka is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Oligodendroglioma. Dr. Maraka is currently accepting new patients.

    Experienced in Neurofibromatosis
    Neurosurgery | Pediatrics
    Experienced in Neurofibromatosis
    Neurosurgery | Pediatrics
    Referral may be required

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
     (6.6 miles away)
    Languages Spoken:
    English, French, German, Italian
    Accepting New Patients
    Offers Telehealth

    Peter Warnke is a Neurosurgery specialist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Warnke is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Epilepsy, Congenital Cardiovascular Shunt, Deep Brain Stimulation, and Gamma Knife Radiosurgery. Dr. Warnke is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Karina Vivar is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Vivar is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Stork Bite, Vascular Birthmark, Aplasia Cutis Congenita, and DRESS Syndrome. Dr. Vivar is currently accepting new patients.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Chamlin is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Chamlin is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Aplasia Cutis Congenita, Vascular Birthmark, Stork Bite, and Ectodermal Dysplasias. Dr. Chamlin is currently accepting new patients.

    Advanced in Neurofibromatosis
    Hematology | Oncology
    Advanced in Neurofibromatosis
    Hematology | Oncology
    Referral may be required
    675 N St Clair St Ste 20-100, Galter Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Karan Dixit is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 15 years. Dr. Dixit is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioma, Brain Tumor, Glioblastoma, and Gastrostomy. Dr. Dixit is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified). Dr. Dixit is currently accepting new patients.

    Experienced in Neurofibromatosis
    General Surgery
    Experienced in Neurofibromatosis
    General Surgery
    Referral may be required

    Mount Sinai Hospital

    1500 S Fairfield Ave, 
    Chicago, IL 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Ranzer is a General Surgeon practicing medicine in Chicago, Illinois. Dr. Ranzer is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Congenital Generalized Lipodystrophy, Familial Partial Lipodystrophy, Breast Enlargement In Males, and Legius Syndrome. Dr. Ranzer is currently accepting new patients.

    Experienced in Neurofibromatosis
    Thoracic Surgery
    Experienced in Neurofibromatosis
    Thoracic Surgery
    Referral may be required

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
     (6.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Mark Ferguson is a Thoracic Surgeon practicing medicine in Chicago, Illinois. Dr. Ferguson is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Lung Nodules, Metastatic Pleural Tumor, Endoscopy, and Advanced Bronchoscopy. Dr. Ferguson is currently accepting new patients.

    Experienced in Neurofibromatosis
    Gastroenterology | Hepatology
    Experienced in Neurofibromatosis
    Gastroenterology | Hepatology
    Referral may be required

    UChicago Medicine River East

    355 E. Grand Ave., 
    Chicago, IL 
     (0.9 miles away)
    Languages Spoken:
    English, Hindi
    Accepting New Patients
    Offers Telehealth

    Nina Gupta is a Gastroenterologist and a Hepatologist practicing medicine in Chicago, Illinois. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her clinical expertise encompasses Peutz-Jeghers Syndrome, Gastrointestinal Bleeding, Diarrhea, Endoscopy, and Colonoscopy. Dr. Gupta is board certified in Practicing Since2014 and Gastroenterology Internal Medicine. Dr. Gupta is currently accepting new patients.

    Experienced in Neurofibromatosis
    Hematology | Oncology
    Experienced in Neurofibromatosis
    Hematology | Oncology
    Referral may be required

    Northwestern Medicine Lou And Jean Malnati Brain Tumor Institute

    675 N Saint Clair St Ste 20-100, 
    Chicago, IL 
     (0.9 miles away)
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rimas Lukas is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 24 years. Dr. Lukas is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioma, Glioblastoma, Brain Tumor, and Gastrostomy. Dr. Lukas is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified). Dr. Lukas is currently accepting new patients.

    Advanced in Neurofibromatosis
    Neuroradiology
    Advanced in Neurofibromatosis
    Neuroradiology
    Referral may be required

    Office

    225 E Chicago Ave # 9, 
    Chicago, IL 
     (1.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Corey Bregman is a Neuroradiologist practicing medicine in Chicago, Illinois. Dr. Bregman is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Pediatric Low-Grade Glioma (pLGG), and Rathke Cleft Cyst. Dr. Bregman is currently accepting new patients.

    Advanced in Neurofibromatosis
    Ophthalmology
    Advanced in Neurofibromatosis
    Ophthalmology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Janice Lasky is an Ophthalmologist practicing medicine in Chicago, Illinois. Dr. Lasky is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Optic Glioma, and Retinoblastoma.

    Advanced in Neurofibromatosis
    Pediatric Hematology Oncology
    Advanced in Neurofibromatosis
    Pediatric Hematology Oncology
    Referral may be required

    Lurie Children's Medical Group Inc.

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Angela Waanders is a Pediatric Hematologist Oncology provider practicing medicine in Chicago, Illinois. Dr. Waanders is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Glioma, Medulloblastoma, Optic Glioma, and Diffuse Midline Glioma H3 K27M-Mutant.

    Showing 1-20 of 157

    Last Updated: 09/26/2026

    When should I see a Neurofibromatosis doctor near chicago, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near chicago, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near chicago, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near chicago, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near chicago, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near chicago, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near chicago, IL?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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