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    Last Updated: 10/30/2025

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    MediFind found 114 doctor with experience in Neurofibromatosis near Maryland, US. Of these, 96 are Experienced, 10 are Advanced, 4 are Distinguished and 4 are Elite.

    Location
    LocationClose
    114 providers found
      Elite in Neurofibromatosis
      Elite in Neurofibromatosis

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Jaishri Blakeley is a Neurologist in Baltimore, Maryland. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

      Elite in Neurofibromatosis
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Neurofibromatosis
      Neurology
      Elite in Neurofibromatosis
      Neurology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English

      Carlos Romo is a Neurologist in Baltimore, Maryland. Dr. Romo is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Astrocytoma.

      Learn about our expert tiers
      Elite in Neurofibromatosis
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis
      Pediatric Hematology Oncology

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Christine Pratilas is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Pratilas is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Adult Soft Tissue Sarcoma, and Osteotomy.

      Distinguished in Neurofibromatosis
      Neurosurgery
      Distinguished in Neurofibromatosis
      Neurosurgery

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Allan Belzberg is a Neurosurgery provider in Baltimore, Maryland. Dr. Belzberg is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Osteotomy, and Rhizotomy.

      Distinguished in Neurofibromatosis
      Distinguished in Neurofibromatosis

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English

      Shivani Ahlawat is a Radiologist in Baltimore, Maryland. Dr. Ahlawat is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      Distinguished in Neurofibromatosis
      Radiology
      Distinguished in Neurofibromatosis
      Radiology

      Johns Hopkins University

      10700 Charter Dr, 
      Columbia, MD 
      Languages Spoken:
      English

      Laura Fayad is a Radiologist in Columbia, Maryland. Dr. Fayad is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2).

      Distinguished in Neurofibromatosis
      Nurse Practitioner
      Distinguished in Neurofibromatosis
      Nurse Practitioner
      601 N Caroline St, 5th Floor-neurology Department, 
      Baltimore, MD 
      Languages Spoken:
      English

      Shannon Langmead is a Nurse Practitioner in Baltimore, Maryland. Ms. Langmead is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Neurofibromatosis, RASopathies, Neurofibromatosis Type 1 (NF1), and Legius Syndrome.

      Constantine A. Stratakis
      Advanced in Neurofibromatosis
      Medical Genetics | Gastroenterology
      Advanced in Neurofibromatosis
      Medical Genetics | Gastroenterology
      9000 Rockville Pike, 
      Bethesda, MD 
      Languages Spoken:
      English

      Constantine Stratakis is a Medical Genetics specialist and a Gastroenterologist in Bethesda, Maryland. Dr. Stratakis is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Cushing's disease, Neuroendocrine Tumor, Gastrointestinal Stromal Tumor, Orchiectomy, and Hormone Replacement Therapy (HRT).

      Advanced in Neurofibromatosis
      Advanced in Neurofibromatosis
      10 Center Dr, Room 3d20, 
      Bethesda, MD 
      Languages Spoken:
      English

      Prashant Chittiboina is a Neurosurgery provider in Bethesda, Maryland. Dr. Chittiboina is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.

      Advanced in Neurofibromatosis
      Ophthalmology | Neurology
      Advanced in Neurofibromatosis
      Ophthalmology | Neurology
      600 N Wolfe St, Woods Science Bldg, 461, 
      Baltimore, MD 
      Languages Spoken:
      English

      Thomas Bosley is an Ophthalmologist and a Neurologist in Baltimore, Maryland. Dr. Bosley is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Duane-Radial Ray Syndrome, Sulfite Oxidase Deficiency, Isolated Duane Retraction Syndrome, and Brown Syndrome.

      Advanced in Neurofibromatosis
      General Surgery | Neurosurgery
      Advanced in Neurofibromatosis
      General Surgery | Neurosurgery
      600 N Wolfe St, Tower 110, 
      Baltimore, MD 
      Languages Spoken:
      English

      Jignesh Tailor is a General Surgeon and a Neurosurgery provider in Baltimore, Maryland. Dr. Tailor is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Choroid Plexus Cyst, Hydrocephalus, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, Rhizotomy, and Awake Craniotomy.

      Advanced in Neurofibromatosis
      Advanced in Neurofibromatosis
      1408 Woodside Pkwy, 
      Silver Spring, MD 
      Languages Spoken:
      English

      Scott Paul is a Physiatrist in Silver Spring, Maryland. Dr. Paul is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Poland Syndrome, Moebius Syndrome, and Kienbock's Disease.

      Advanced in Neurofibromatosis
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis
      Pediatric Hematology Oncology
      6201 Greenleigh Ave, 
      Middle River, MD 
      Experience:
      9+ years
      Languages Spoken:
      English

      Lindy Zhang is a Pediatric Hematologist Oncology provider in Middle River, Maryland. Dr. Zhang has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma.

      Advanced in Neurofibromatosis
      Plastic Surgery
      Advanced in Neurofibromatosis
      Plastic Surgery

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Chad Gordon is a Plastic Surgeon in Baltimore, Maryland. Dr. Gordon is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Legius Syndrome, Neurofibromatosis Type 1 (NF1), Osteotomy, and Bone Graft.

      Advanced in Neurofibromatosis
      Advanced in Neurofibromatosis
      1800 Orleans St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Archis Bhandarkar is a Neurosurgery provider in Baltimore, Maryland. Dr. Bhandarkar is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Schwannoma, Osteotomy, and Craniectomy.

      Advanced in Neurofibromatosis
      Advanced in Neurofibromatosis

      Kennedy Krieger Associates

      716 N Broadway, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Paul Sponseller is an Orthopedics provider in Baltimore, Maryland. Dr. Sponseller is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Scoliosis, Adolescent Idiopathic Scoliosis, Spastic Diplegia Infantile Type, Spinal Fusion, and Osteotomy. Dr. Sponseller is currently accepting new patients.

      Advanced in Neurofibromatosis
      Pediatric Hematology Oncology
      Advanced in Neurofibromatosis
      Pediatric Hematology Oncology

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Languages Spoken:
      English

      Kathryn Lemberg is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Lemberg is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Adult Soft Tissue Sarcoma.

      Lee M. Akst
      Experienced in Neurofibromatosis
      Otolaryngology
      Experienced in Neurofibromatosis
      Otolaryngology

      Johns Hopkins University

      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Lee Akst is an Otolaryngologist in Baltimore, Maryland. Dr. Akst is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Spasmodic Dysphonia, Laryngitis, Perichondritis, Endoscopy, and Laryngectomy. Dr. Akst is currently accepting new patients.

      Alexander T. Hillel
      Experienced in Neurofibromatosis
      Experienced in Neurofibromatosis

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      Alexander Hillel is an Otolaryngologist in Baltimore, Maryland. Dr. Hillel is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Spasmodic Dysphonia, Subglottic Stenosis, Perichondritis, Laryngectomy, and Endoscopy. Dr. Hillel is currently accepting new patients.

      Showing 1-20 of 114

      Last Updated: 10/30/2025

      When should I see a Neurofibromatosis doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis doctors in Maryland, US?

      Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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