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    Last Updated: 01/09/2026

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    MediFind found 543 doctor with experience in Occipital Horn Syndrome near The United States. Of these, 487 are Experienced, 50 are Advanced, 5 are Distinguished and 1 are Elite.

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    543 providers found
      Elite in Occipital Horn Syndrome
      Medical Genetics
      Elite in Occipital Horn Syndrome
      Medical Genetics
      5665 Venture Dr, 
      Dublin, OH 
      Languages Spoken:
      English, Japanese, Somali, Spanish
      Accepting New Patients

      Stephen Kaler is a Medical Genetics provider in Dublin, Ohio. Dr. Kaler is rated as an Elite provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Menkes Disease, Occipital Horn Syndrome, Alpha Mannosidosis, and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Kaler is currently accepting new patients.

      Anthony T. Mccormack
      Experienced in Occipital Horn Syndrome
      Family Medicine
      Experienced in Occipital Horn Syndrome
      Family Medicine

      Advocate Memory Center

      1875 Dempster St, Ste 520, 
      Park Ridge, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Anthony Mccormack is a primary care provider, practicing in Family Medicine in Park Ridge, Illinois. Dr. Mccormack is rated as an Experienced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Dementia, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension.

      Jorge M. Leon
      Advanced in Occipital Horn Syndrome
      Advanced in Occipital Horn Syndrome

      Aurora Neurology

      1100 Gateway Ct, 
      West Bend, WI 
      Languages Spoken:
      English, Spanish

      Jorge Leon is a Neurologist in West Bend, Wisconsin. Dr. Leon is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Occipital Horn Syndrome, Seizures, Essential Tremor, and Menkes Disease.

      Learn about our expert tiers
      Nicholas J. Lannen
      Advanced in Occipital Horn Syndrome
      Advanced in Occipital Horn Syndrome

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nicholas Lannen is a Neurologist in Grand Rapids, Michigan. Dr. Lannen has been practicing medicine for over 11 years and is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Occipital Horn Syndrome, and Menkes Disease. Dr. Lannen is currently accepting new patients.

      Jeffrey K. Bahr
      Advanced in Occipital Horn Syndrome
      Internal Medicine
      Advanced in Occipital Horn Syndrome
      Internal Medicine

      Aurora Advanced Healthcare, Inc.

      1055 N Mayfair Rd, 
      Wauwatosa, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Bahr is a primary care provider, practicing in Internal Medicine in Wauwatosa, Wisconsin. Dr. Bahr is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, High Cholesterol, and Intrauterine Device Insertion. Dr. Bahr is currently accepting new patients.

      Mircea T. Iacob
      Advanced in Occipital Horn Syndrome
      Advanced in Occipital Horn Syndrome
      1001 Commerce Dr Ste 500, 
      Oak Brook, Illinois, IL 
      Experience:
      27+ years
      Languages Spoken:
      English
      Offers Telehealth

      Mircea Iacob is a Neurologist in Oak Brook, Illinois, Illinois. Dr. Iacob has been practicing medicine for over 27 years and is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Stroke, Occipital Horn Syndrome, Dysarthria, and Menkes Disease.

      Nazia Qazi
      Advanced in Occipital Horn Syndrome
      Hepatology | Gastroenterology
      Advanced in Occipital Horn Syndrome
      Hepatology | Gastroenterology

      Northwell Health Physician Partners Gastroenterology At Bay Shore

      39 Brentwood Road, Suite 201, 
      Bay Shore, NY 
      Languages Spoken:
      English

      Nazia Qazi is a Hepatologist and a Gastroenterologist in Bay Shore, New York. Dr. Qazi is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. Her top areas of expertise are Visceromegaly, Enlarged Liver, Occipital Horn Syndrome, and Alcoholic Cirrhosis.

      Neil A. Nedley
      Advanced in Occipital Horn Syndrome
      Internal Medicine
      Advanced in Occipital Horn Syndrome
      Internal Medicine
      13300 New Airport Rd., Suite 100, 
      Auburn, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Neil Nedley is a primary care provider, practicing in Internal Medicine in Auburn, California. Dr. Nedley is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Occipital Horn Syndrome, Familial Benign Copper Deficiency, Menkes Disease, and High Cholesterol. Dr. Nedley is currently accepting new patients.

      Darryn R. Potosky
      Advanced in Occipital Horn Syndrome
      Gastroenterology
      Advanced in Occipital Horn Syndrome
      Gastroenterology

      Capital Digestive Care LLC

      Laurel, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Darryn Potosky is a Gastroenterologist in Laurel, Maryland. Dr. Potosky is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Primary Biliary Cholangitis, Reynolds Syndrome, Nonalcoholic Steatohepatitis (NASH), Liver Transplant, and Thrombectomy.

      Rudyard Smith
      Advanced in Occipital Horn Syndrome
      Internal Medicine
      Advanced in Occipital Horn Syndrome
      Internal Medicine

      Rudyard Smith MD And Associates, SC

      9250 Columbia Ave, 
      Munster, IN 
      Languages Spoken:
      English

      Rudyard Smith is a primary care provider, practicing in Internal Medicine in Munster, Indiana. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Anemia, Trichohepatoenteric Syndrome, Diarrhea, Gastrostomy, and Endoscopy.

      Peter P. Lee
      Advanced in Occipital Horn Syndrome
      Advanced in Occipital Horn Syndrome

      LaGrange Neurology Corporation

      300 Medical Drive, Ste701, 
      Lagrange, GA 
      Experience:
      39+ years
      Languages Spoken:
      English, Mandarin

      Peter Lee is a Neurologist in Lagrange, Georgia. Dr. Lee has been practicing medicine for over 39 years and is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Peripheral Neuropathy, Dravet Syndrome, Vitamin B12 Deficiency Anemia, and Vertigo.

      Daniel Sajdak
      Advanced in Occipital Horn Syndrome
      Family Medicine
      Advanced in Occipital Horn Syndrome
      Family Medicine

      Aurora Family Medicine

      205 Valley Ave, 
      West Bend, WI 
      Languages Spoken:
      English
      Offers Telehealth

      Daniel Sajdak is a primary care provider, practicing in Family Medicine in West Bend, Wisconsin. Dr. Sajdak is rated as an Advanced provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Occipital Horn Syndrome, Benign Paroxysmal Positional Vertigo, Vertigo, and Type 2 Diabetes (T2D).

      Experienced in Occipital Horn Syndrome
      Hepatology | Radiology | Hematology
      Experienced in Occipital Horn Syndrome
      Hepatology | Radiology | Hematology

      Regents Of The University Of California

      200 W Arbor Dr, 
      San Diego, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Yuko Kono is a Hepatologist and a Radiologist in San Diego, California. Dr. Kono is rated as an Experienced provider by MediFind in the treatment of Occipital Horn Syndrome. Her top areas of expertise are Fibrolamellar Carcinoma, Liver Cancer, Visceromegaly, Liver Transplant, and Endoscopy.

      Experienced in Occipital Horn Syndrome
      Pediatric Gastroenterology | Pediatrics | Gastroenterology
      Experienced in Occipital Horn Syndrome
      Pediatric Gastroenterology | Pediatrics | Gastroenterology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Dawn Ebach is a Pediatric Gastroenterologist and a Pediatrics provider in Iowa City, Iowa. Dr. Ebach is rated as an Experienced provider by MediFind in the treatment of Occipital Horn Syndrome. Her top areas of expertise are Crohn's Disease, Viral Gastroenteritis, Occipital Horn Syndrome, and Delayed Growth. Dr. Ebach is currently accepting new patients.

      Experienced in Occipital Horn Syndrome
      Internal Medicine
      Experienced in Occipital Horn Syndrome
      Internal Medicine

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Monica Edwards is a primary care provider, practicing in Internal Medicine in Maywood, Illinois. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Occipital Horn Syndrome. Her top areas of expertise are Lung Metastases, End-Stage Renal Disease (ESRD), Type 2 Diabetes (T2D), Pancreatectomy, and Bone Marrow Aspiration. Dr. Edwards is currently accepting new patients.

      Experienced in Occipital Horn Syndrome
      Family Medicine
      Experienced in Occipital Horn Syndrome
      Family Medicine

      Froedtert Andthe Medical College Of Wisconsin Community Physicians Inc

      W168n11237 Western Ave, 
      Germantown, WI 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Amy Miller is a primary care provider, practicing in Family Medicine in Germantown, Wisconsin. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Occipital Horn Syndrome. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and High Cholesterol. Dr. Miller is currently accepting new patients.

      Experienced in Occipital Horn Syndrome
      Experienced in Occipital Horn Syndrome

      Unmc Physicians

      987400 Nebraska Medical Ctr, Unmc Physicians Nebraska M, 
      Omaha, NE 
      Languages Spoken:
      English, American Sign Language
      Accepting New Patients
      Offers Telehealth

      Mara Seier is a Neurologist in Omaha, Nebraska. Dr. Seier is rated as an Experienced provider by MediFind in the treatment of Occipital Horn Syndrome. Her top areas of expertise are Progressive Supranuclear Palsy, Supranuclear Ophthalmoplegia, Supranuclear Ocular Palsy, Progressive Supranuclear Palsy Atypical, and Deep Brain Stimulation. Dr. Seier is currently accepting new patients.

      Distinguished in Occipital Horn Syndrome
      Distinguished in Occipital Horn Syndrome

      Hartford Healthcare Medical Group Specialists PLLC

      584 Norwich Rd, Suite 400, 
      Plainfield, CT 
      Languages Spoken:
      English
      Offers Telehealth

      Maria Moro-De is a Neurologist in Plainfield, Connecticut. Dr. Moro-De is rated as a Distinguished provider by MediFind in the treatment of Occipital Horn Syndrome. Her top areas of expertise are Occipital Horn Syndrome, Menkes Disease, Familial Benign Copper Deficiency, and Movement Disorders.

      Distinguished in Occipital Horn Syndrome
      Family Medicine
      Distinguished in Occipital Horn Syndrome
      Family Medicine

      Premier Therapy Centers, Inc

      33010 Northwestern Hwy, 
      West Bloomfield, MI 
      Languages Spoken:
      English

      David Brownstein is a primary care provider, practicing in Family Medicine in West Bloomfield, Michigan. Dr. Brownstein is rated as a Distinguished provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Occipital Horn Syndrome, Menkes Disease, Familial Benign Copper Deficiency, and Malabsorption.

      Distinguished in Occipital Horn Syndrome
      Gastroenterology | Hepatology
      Distinguished in Occipital Horn Syndrome
      Gastroenterology | Hepatology

      Yale University

      20 York St, 
      New Haven, CT 
      Languages Spoken:
      English
      Offers Telehealth

      Michael Schilsky is a Gastroenterologist and a Hepatologist in New Haven, Connecticut. Dr. Schilsky is rated as a Distinguished provider by MediFind in the treatment of Occipital Horn Syndrome. His top areas of expertise are Wilson Disease, Hepatocerebral Degeneration, Liver Failure, Liver Transplant, and Endoscopy.

      Showing 1-20 of 543

      Last Updated: 01/09/2026

      What is the definition of Occipital Horn Syndrome?

      Occipital horn syndrome (OHS) is a genetic condition that affects the connective tissue, skeleton, and nervous system. They may include wedge-shaped calcium deposits at the base of the skull (occipital horns), loose skin and joints, and dysfunction of the nerves that regulate nonvoluntary body functions (dysautonomia). Other symptoms may include bladder diverticula, coarse hair, low muscle tone, and mild intellectual disability. This condition is a milder form of Menkes disease, which affects copper levels in the body. OHS is caused by genetic changes (DNA variants) in the ATP7A gene, and it is inherited in an x-linked recessive pattern. It can be diagnosed based on the symptoms, genetic testing, and other blood tests.

      When should I see an Occipital Horn Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Occipital Horn Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Occipital Horn Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Occipital Horn Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Occipital Horn Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Occipital Horn Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Occipital Horn Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Occipital Horn Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Occipital Horn Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Occipital Horn Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Occipital Horn Syndrome doctors in The United States?

      Look for the filter feature on the left side of the Occipital Horn Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Occipital Horn Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Occipital Horn Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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