The 20 Best Oculocerebrocutaneous Syndrome Doctors Near Me

Find the Top Oculocerebrocutaneous Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 36 doctor with experience in Oculocerebrocutaneous Syndrome. Of these, 20 are Advanced, 14 are Experienced and 2 are Distinguished.

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36 providers found
    Distinguished in Oculocerebrocutaneous Syndrome
    Distinguished in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ibadan, OY, NG 

    Oluyemi Fasina practices practicing medicine in Ibadan, Nigeria. Mr. Fasina is rated as a Distinguished expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Oculocerebrocutaneous Syndrome, Chemosis, Lacrimal Gland Tumor, and Retinoblastoma.

    Distinguished in Oculocerebrocutaneous Syndrome
    Distinguished in Oculocerebrocutaneous Syndrome
    Referral may be required
    Mount Sinai Hospital, 
    Toronto, ON, CA 

    Susan Blaser practices practicing medicine in Toronto, Canada. Ms. Blaser is rated as a Distinguished expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Oculocerebrocutaneous Syndrome, Orbital Cellulitis, Cerebelloparenchymal Disorder 3, and X-Linked Chondrodysplasia Punctata 2.

    Advanced in Oculocerebrocutaneous Syndrome

    Dr. William B. Dobyns
    Pediatrics | Neurology | Medical Genetics
    Advanced in Oculocerebrocutaneous Syndrome

    Dr. William B. Dobyns
    Pediatrics | Neurology | Medical Genetics
    Referral may be required

    M Health Fairview Explorer Pediatric Specialty Clinic

    2450 Riverside Avenue, Floor 12, 
    Minneapolis, MN 
    612-365-6777
    Experience:
    48+ years
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    William Dobyns is a Pediatrics specialist and a Neurologist practicing medicine in Minneapolis, Minnesota. He has been practicing medicine for over 48 years. Dr. Dobyns is rated as an Advanced provider by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Lissencephaly, Cerebellar Hypoplasia, and Cortical Dysplasia. Dr. Dobyns is board certified in Clinical Genetics And Genomics: American Board Of Medical Genetics And Genomics, 1987. Dr. Dobyns is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Oculocerebrocutaneous Syndrome

    Dr. Knut Eichhorn
    Ophthalmology | General Surgery
    Advanced in Oculocerebrocutaneous Syndrome

    Dr. Knut Eichhorn
    Ophthalmology | General Surgery
    Referral may be required

    HealthPartners Specialty Center - Eye Care And Optical Store

    401 Phalen Blvd, 
    Saint Paul, MN 
    952-967-7611
    Languages Spoken:
    English, German
    See accepted insurances
    Accepting New Patients

    Knut Eichhorn is an Ophthalmologist and a General Surgeon practicing medicine in Saint Paul, Minnesota. Dr. Eichhorn is rated as an Advanced provider by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Oculocerebrocutaneous Syndrome, Eyelid Drooping, Ptosis, and Blocked Tear Duct. Dr. Eichhorn is board certified in American Board Of Ophthalmology. Dr. Eichhorn is currently accepting new patients.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ibadan, OY, NG 

    Mary Ugalahi practices practicing medicine in Ibadan, Nigeria. Ms. Ugalahi is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Cataract, Oculocerebrocutaneous Syndrome, Congenital Cataract, Cataract Removal, and Trabeculectomy.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Heidelberg, BW, DE 

    Ute Moog practices practicing medicine in Heidelberg, Germany. Ms. Moog is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Oculocerebrocutaneous Syndrome, Toriello-Carey Syndrome, Mosaicism, and Sotos Syndrome.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Curitiba PR, 
    Curitiba, PR, BR 

    Flavia Sprenger practices practicing medicine in Curitiba, Brazil. Ms. Sprenger is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Oculocerebrocutaneous Syndrome, Subependymal Nodular Heterotopia, Inflammatory Myofibroblastic Tumor, and Imperforate Anus.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required

    Frantz Eyecare

    2500 Goodlette-Frank Rd N, 
    Naples, FL 
    239-430-3939
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Christine Bokman is an Ophthalmologist practicing medicine in Naples, Florida. Dr. Bokman is rated as an Advanced provider by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Oculocerebrocutaneous Syndrome, Graves Disease, Entropion, and Ptosis. Dr. Bokman is board certified in American Board Of Ophthalmology. Dr. Bokman is currently accepting new patients.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ibadan, OY, NG 

    Oluwakemi Badejo practices practicing medicine in Ibadan, Nigeria. Ms. Badejo is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Oculocerebrocutaneous Syndrome, Brown-Sequard Syndrome, Meningocele, and Post-Traumatic Epilepsy.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ottawa, ON, CA 

    Kym Boycott practices practicing medicine in Ottawa, Canada. Ms. Boycott is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 58 other conditions, according to our data. Her clinical expertise encompasses Mckusick-Kaufman Syndrome, Floating-Harbor Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required

    CHU Liège

    Liege, WAL, BE 

    Yves Gilon practices practicing medicine in Liege, Belgium. Mr. Gilon is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Oculocerebrocutaneous Syndrome, Rathke Cleft Cyst, Pneumomediastinum, and Oral Cancer.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    401 Smyth Road, K1H 8L1, 
    Ottawa, ON, CA 

    David Dyment practices practicing medicine in Ottawa, Canada. Mr. Dyment is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Dubowitz Syndrome, SHORT Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Riyadh, SA 

    Essam Osman practices practicing medicine in Riyadh, Saudi Arabia. Mr. Osman is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Trabeculectomy, and Vitrectomy.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ibadan, OY, NG 

    Matthew Shokunbi practices practicing medicine in Ibadan, Nigeria. Mr. Shokunbi is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Oculocerebrocutaneous Syndrome, Meningocele, Arachnoiditis, and Posterior Fossa Decompression.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ibadan, OY, NG 

    Ademola Adekanmi practices practicing medicine in Ibadan, Nigeria. Mr. Adekanmi is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Oculocerebrocutaneous Syndrome, Hypertensive Heart Disease, Rathke Cleft Cyst, and Preeclampsia.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Curitiba PR, 
    Curitiba, PR, BR 

    Debora Bertholdo practices practicing medicine in Curitiba, Brazil. Ms. Bertholdo is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Oculocerebrocutaneous Syndrome, Gaucher Disease Type 1, Subependymal Nodular Heterotopia, and Klippel-Feil Syndrome.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Calgary, AB, CA 

    Allan Innes practices practicing medicine in Calgary, Canada. Mr. Innes is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Dubowitz Syndrome, SHORT Syndrome, Increased Head Circumference, and Hypotonia.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ibadan, OY, NG 

    John Ogunbiyi practices practicing medicine in Ibadan, Nigeria. Mr. Ogunbiyi is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Oculocerebrocutaneous Syndrome and Triple-Negative Breast Cancer.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Ibadan, OY, NG 

    Bolutife Olusanya practices practicing medicine in Ibadan, Nigeria. Olusanya is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Oculocerebrocutaneous Syndrome, Cataract, Congenital Cataract, Cataract Removal, and Trabeculectomy.

    Advanced in Oculocerebrocutaneous Syndrome
    Advanced in Oculocerebrocutaneous Syndrome
    Referral may be required
    Riyadh, SA 

    Basamat Almoallem practices practicing medicine in Riyadh, Saudi Arabia. Almoallem is rated as an Advanced expert by MediFind in the treatment of Oculocerebrocutaneous Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses X-Linked Infantile Nystagmus, Microphthalmia, Oculocerebrocutaneous Syndrome, and Cone Rod Dystrophy Amelogenesis Imperfecta.

    Showing 1-20 of 36

    Last Updated: 09/26/2026

    What is the definition of Oculocerebrocutaneous Syndrome?

    Oculocerebrocutaneous (OCC) syndrome is a rare genetic disorder characterized primarily by eye, skin, and brain malformations. It has been described mostly in males. Findings in affected individuals may include orbital cysts, areas of underdeveloped (hypoplastic) or absent (aplastic) skin, and underdevelopment (hypoplasia) or absence (agenesis) of the band of nerve fibers that joins the brain's hemispheres (corpus callosum). Diagnosis is confirmed on the basis of specific MRI findings. In some affected individuals, the eye, skin, and brain findings involve only one side of the body. In these cases, the left side is involved twice as often as the right side. Additional findings may include rib and vertebral anomalies and craniofacial anomalies. Developmental delay and intellectual disability may be present and can vary from mild to profound. Approximately 50% of affected individuals have seizures. The exact cause of OCC syndrome is not known. In most cases, the affected individual is the first person in the family to have the disorder.

    When should I see an Oculocerebrocutaneous Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Oculocerebrocutaneous Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Oculocerebrocutaneous Syndrome doctor near me?

    You can find an Oculocerebrocutaneous Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

    Oculocerebrocutaneous Syndrome doctor near New York, NY
    Oculocerebrocutaneous Syndrome doctor near Los Angeles, CA
    Oculocerebrocutaneous Syndrome doctor near Chicago, IL
    Oculocerebrocutaneous Syndrome doctor near Houston, TX
    Oculocerebrocutaneous Syndrome doctor near Phoenix, AZ
    Oculocerebrocutaneous Syndrome doctor near Philadelphia, PA
    Oculocerebrocutaneous Syndrome doctor near Atlanta, GA
    Oculocerebrocutaneous Syndrome doctor near Boston, MA
    Oculocerebrocutaneous Syndrome doctor near Dallas, TX
    Oculocerebrocutaneous Syndrome doctor near San Jose, CA

    How does MediFind rank Oculocerebrocutaneous Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Oculocerebrocutaneous Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Oculocerebrocutaneous Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Oculocerebrocutaneous Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Oculocerebrocutaneous Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Oculocerebrocutaneous Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Oculocerebrocutaneous Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Oculocerebrocutaneous Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Oculocerebrocutaneous Syndrome doctors near me?

    Look for the filter feature on the left side of the Oculocerebrocutaneous Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Oculocerebrocutaneous Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Oculocerebrocutaneous Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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