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    Last Updated: 01/09/2026

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    MediFind found 683 doctor with experience in Oculopharyngeal Muscular Dystrophy near The United States. Of these, 523 are Experienced, 136 are Advanced and 16 are Distinguished.

    Location
    LocationClose
    683 providers found
      Sam Fatoorehchi
      Advanced in Oculopharyngeal Muscular Dystrophy
      Family Medicine
      Advanced in Oculopharyngeal Muscular Dystrophy
      Family Medicine

      Advocate Medical Group Primary Care

      Chicago, IL 
      Languages Spoken:
      English

      Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Miyoshi Myopathy, Delta-Sarcoglycanopathy, Walker-Warburg Syndrome, and Fukuyama Type Muscular Dystrophy.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology
      Distinguished in Oculopharyngeal Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Mathews is a Neurologist and a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia. Dr. Mathews is currently accepting new patients.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Distinguished in Oculopharyngeal Muscular Dystrophy

      Penn Neuroscience Center - Neurology

      330 South 9th Street, 3rd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Lauren Elman is a Neurologist in Philadelphia, Pennsylvania. Dr. Elman is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Elman is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Oculopharyngeal Muscular Dystrophy
      Distinguished in Oculopharyngeal Muscular Dystrophy

      Office

      355 W 16th St Ste 3200, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Offers Telehealth

      Cynthia Bodkin is a Neurologist in Indianapolis, Indiana. Dr. Bodkin is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Distinguished in Oculopharyngeal Muscular Dystrophy

      University Andrology Lab LLC

      3303 S Bond Ave, 
      Portland, OR 
      Languages Spoken:
      English
      Offers Telehealth

      Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Distinguished in Oculopharyngeal Muscular Dystrophy

      Geisinger Medical Center

      100 N Academy Ave, 
      Danville, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Scott Friedenberg is a Neurologist in Danville, Pennsylvania. Dr. Friedenberg is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Chronic Polyradiculoneuritis, Miller-Fisher Syndrome, and Guillain-Barre Syndrome.

      Advanced in Oculopharyngeal Muscular Dystrophy
      Neurology
      Advanced in Oculopharyngeal Muscular Dystrophy
      Neurology

      University Of Vermont Medical Center Inc

      790 College Pkwy, 
      Colchester, VT 
      Languages Spoken:
      English, Hindi
      Offers Telehealth

      Rup Tandan is a Neurologist in Colchester, Vermont. Dr. Tandan is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Dysferlinopathy, Primary Lateral Sclerosis, and Thymectomy.

      Advanced in Oculopharyngeal Muscular Dystrophy
      Advanced in Oculopharyngeal Muscular Dystrophy

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

      Advanced in Oculopharyngeal Muscular Dystrophy
      Advanced in Oculopharyngeal Muscular Dystrophy
      222 Piedmont Ave, Suite 3200, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      John Quinlan is a Neurologist in Cincinnati, Ohio. Dr. Quinlan is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Inclusion Body Myositis, Distal Myopathy 2, and Miyoshi Myopathy. Dr. Quinlan is currently accepting new patients.

      Vern Juel
      Advanced in Oculopharyngeal Muscular Dystrophy
      Neurology
      Advanced in Oculopharyngeal Muscular Dystrophy
      Neurology

      Private Diagnostic Clinic PLLC

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy.

      Margherita Milone
      Advanced in Oculopharyngeal Muscular Dystrophy
      Advanced in Oculopharyngeal Muscular Dystrophy

      MN - Neuro

      200 1st St SW, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), Nemaline Myopathy, and Congenital Fiber-Type Disproportion.

      Paul T. Twydell
      Advanced in Oculopharyngeal Muscular Dystrophy
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology
      Advanced in Oculopharyngeal Muscular Dystrophy
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
      Experience:
      26+ years
      Languages Spoken:
      English
      Accepting New Patients

      Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Twydell has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is currently accepting new patients.

      Daniel Menkes
      Advanced in Oculopharyngeal Muscular Dystrophy
      Advanced in Oculopharyngeal Muscular Dystrophy

      Daniel Menkes MD

      3555 W 13 Mile Rd Ste N120, 
      Royal Oak, MI 
      Experience:
      38+ years
      Languages Spoken:
      English

      Daniel Menkes is a Neurologist in Royal Oak, Michigan. Dr. Menkes has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

      Experienced in Oculopharyngeal Muscular Dystrophy
      Family Medicine
      Experienced in Oculopharyngeal Muscular Dystrophy
      Family Medicine
      15812 E Indiana Ave, 
      Spokane Valley, WA 
      Languages Spoken:
      English, Dutch, Filipino, Korean
      Accepting New Patients
      Offers Telehealth

      Jordan Espiritu is a primary care provider, practicing in Family Medicine in Spokane Valley, Washington. Dr. Espiritu is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Type 2 Diabetes (T2D). Dr. Espiritu is currently accepting new patients.

      Experienced in Oculopharyngeal Muscular Dystrophy
      Experienced in Oculopharyngeal Muscular Dystrophy
      3300 Main Street, 3rd Floor Suite C&d, 
      Springfield, MA 
      Languages Spoken:
      English

      Meghan Hickey is a Neurologist in Springfield, Massachusetts. Dr. Hickey is rated as an Experienced provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Seizures, Migraine, Autosomal Dominant Partial Epilepsy with Auditory Features, and Tension Headache.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Distinguished in Oculopharyngeal Muscular Dystrophy

      Gillette Childrens Specialty Healthcare

      435 Phalen Blvd, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jill Gettings is a Physiatrist in Saint Paul, Minnesota. Dr. Gettings is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Cerebral Palsy, Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, and Walker-Warburg Syndrome. Dr. Gettings is currently accepting new patients.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Pediatric Neurology | Neurology
      Distinguished in Oculopharyngeal Muscular Dystrophy
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Randal Richardson is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Richardson is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Emery-Dreifuss Muscular Dystrophy, Miyoshi Myopathy, Fukuyama Type Muscular Dystrophy, and Oculopharyngeal Muscular Dystrophy. Dr. Richardson is currently accepting new patients.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Distinguished in Oculopharyngeal Muscular Dystrophy

      Neurology - Medical Arts & Research Center - MARC

      8300 Floyd Curl Dr, 8th Floor, 
      San Antonio, TX 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Carlayne Jackson is a Neurologist in San Antonio, Texas. Dr. Jackson is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy. Dr. Jackson is currently accepting new patients.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Physiatry
      Distinguished in Oculopharyngeal Muscular Dystrophy
      Physiatry

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nassim Rad is a Physiatrist in Seattle, Washington. Dr. Rad is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, Oculopharyngeal Muscular Dystrophy, and Fukuyama Type Muscular Dystrophy. Dr. Rad is currently accepting new patients.

      Distinguished in Oculopharyngeal Muscular Dystrophy
      Distinguished in Oculopharyngeal Muscular Dystrophy

      Trustees Of Columbia University In The City Of New York

      51 W 51st St, Fl 3 Suite 360, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Michio Hirano is a Neurologist in New York, New York. Dr. Hirano is rated as a Distinguished provider by MediFind in the treatment of Oculopharyngeal Muscular Dystrophy. His top areas of expertise are Mitochondrial Neurogastrointestinal Encephalopathy Disease, MELAS Syndrome, Progressive External Ophthalmoplegia, and Acute Cerebellar Ataxia.

      Showing 1-20 of 683

      Last Updated: 01/09/2026

      What is the definition of Oculopharyngeal Muscular Dystrophy?

      Oculopharyngeal muscular dystrophy is a genetic condition characterized by muscle weakness that begins in adulthood, typically after age 40. The term "oculopharyngeal" refers to the eyes (oculo-) and a part of the throat called the pharynx (-pharyngeal). Affected individuals usually first experience weakness of the muscles in both eyelids that causes droopy eyelids (ptosis). Ptosis can worsen over time, causing the eyelid to impair vision, and in some cases, limit eye movement. Along with ptosis, affected individuals develop weakness of the throat muscles that causes difficulty swallowing (dysphagia). Dysphagia begins with dry food, but over time, liquids can also become difficult to swallow. Dysphagia can cause saliva to accumulate and a wet-sounding voice. Many people with oculopharyngeal muscular dystrophy also have weakness and wasting (atrophy) of the tongue. These problems with food intake may cause malnutrition, choking, or a bacterial lung infection called aspiration pneumonia.

      When should I see an Oculopharyngeal Muscular Dystrophy doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Oculopharyngeal Muscular Dystrophy doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Oculopharyngeal Muscular Dystrophy doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Oculopharyngeal Muscular Dystrophy doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Oculopharyngeal Muscular Dystrophy doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Oculopharyngeal Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Oculopharyngeal Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Oculopharyngeal Muscular Dystrophy doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Oculopharyngeal Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Oculopharyngeal Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Oculopharyngeal Muscular Dystrophy doctors in The United States?

      Look for the filter feature on the left side of the Oculopharyngeal Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Oculopharyngeal Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Oculopharyngeal Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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