Ollier DiseaseSymptoms, Doctors, Treatments, Advances & More
Ollier Disease Overview
Learn About Ollier Disease
Condition 101 content is not available at this time, but we are continually updating the site. Please check back.
However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Emmanuel Mandonnet practices practicing medicine in Paris, France. Mr. Mandonnet is rated as an Elite expert by MediFind in the treatment of Ollier Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Maffucci Syndrome, Ollier Disease, Glioma, Gliomatosis Cerebri, and Awake Craniotomy.
Duke Cancer Center
I became an orthopaedic surgeon because I enjoy the mechanical nature of how joints, bones and muscles work together. I chose to focus on treating children because it provides me with an opportunity to make a difference in their health now, and for the rest of their lives. As I’ve entered the later stages of my career, I have had the privilege of seeing patients who I treated come back to me as adults seeking treatment for their own children. I find it very fulfilling to see how the treatments I gave the parent helped them become a healthy, fully functional adult. I believe that being a good doctor means treating the “whole” patient, rather than focusing only on individual parts of the body. I enjoy working with my patients to make sure they are getting all the treatments they need to get and stay well. In my spare time I enjoy photography, hiking and backpacking. Dr. Alman is rated as a Distinguished provider by MediFind in the treatment of Ollier Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Chondrosarcoma, Desmoid Tumor, Undifferentiated Pleomorphic Sarcoma, Maffucci Syndrome, and Hip Replacement. Dr. Alman is board certified in American Board Of Orthopaedic Surgery, Orthopaedic Surgery.
Johns Hopkins Outpatient Center
Adam Levin, MD, joined the Johns Hopkins Department of Orthopaedic Surgery as an assistant professor in orthopaedic oncology. Dr. Levin comes to Johns Hopkins after working as an orthopaedic oncologist at the North Shore/LIJ Health System in New York. He completed his residency in orthopaedic surgery at Long Island Jewish Medical Center, and a fellowship in orthopaedic oncology at the Memorial Sloan-Kettering Cancer Center. Dr. Levin offers care and consultations for adults and children with bone and soft tissue tumors of the pelvis and extremities. He has extensive experience in performing limb-sparing and complex extremity reconstruction surgeries. Dr. Levin has a special interest in surgical palliation and biologic reconstruction. Dr. Levin is a member of the American Academy of Orthopaedic Surgeons and the Musculoskeletal Tumor Society. Dr. Levin is rated as a Distinguished provider by MediFind in the treatment of Ollier Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Metachondromatosis, Maffucci Syndrome, Ollier Disease, Hip Replacement, and Bone Marrow Aspiration. Dr. Levin is board certified in American Board Of Orthopaedic Surgery.
Background: Ollier disease (OD) and Maffucci syndrome (MS) are rare disorders that increase the risk of cancers in cartilage tissue. These tumors can lead to severe skeletal deformities beginning in childhood. People with OD or MS are also at an increased risk of blood vessel disorders and specific cancers. Researchers want to learn more about what causes these disorders.
Summary: REM is a retrospective and prospective registry, finalized to care and research. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc.. This approach has been individuated in order to corroborate and integrate data from different reso...

