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    Last Updated: 10/30/2025

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    MediFind found 31 doctor with experience in Orofaciodigital Syndrome 1 near California, US. Of these, 26 are Experienced and 5 are Advanced.

    Location
    LocationClose
    31 providers found
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English

      Hermann Lorenz is a Plastic Surgeon and a General Surgeon in Stanford, California. Dr. Lorenz is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Velopharyngeal Insufficiency, Pierre Robin Sequence, Micrognathia, Osteotomy, and Myringotomy.

      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Rohit Khosla is a Plastic Surgeon in Stanford, California. Dr. Khosla is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Velopharyngeal Insufficiency, Craniosynostosis, Pierre Robin Sequence, Myringotomy, and Osteotomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Oral and Maxillofacial Surgery
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Oral and Maxillofacial Surgery

      Los Angeles Medical Center

      4760 W Sunset Blvd, 
      Los Angeles, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Stacey Francis is a Plastic Surgeon and an Oral and Maxillofacial Surgeon in Los Angeles, California. Dr. Francis is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Pierre Robin Sequence, Acrocephalopolydactyly, Orofaciodigital Syndrome 1, Apert Syndrome, and Myringotomy. Dr. Francis is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Undersea and Hyperbaric Medicine
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Undersea and Hyperbaric Medicine

      Stanford Health Care

      420 Broadway St, 
      Redwood City, CA 
      Languages Spoken:
      English

      Derrick Wan is a Plastic Surgeon and an Undersea and Hyperbaric Medicine provider in Redwood City, California. Dr. Wan is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Micrognathia, Pierre Robin Sequence, Acrofacial Dysostosis Rodriguez Type, Osteotomy, and Bone Graft.

      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Pediatrics
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Pediatrics
      4650 W Sunset Blvd, Ms# 96, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Jeffrey Hammoudeh is a Plastic Surgeon and a Pediatrics provider in Los Angeles, California. Dr. Hammoudeh is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Newborn Head Molding, Pierre Robin Sequence, Micrognathia, Osteotomy, and Myringotomy.

      Experienced in Orofaciodigital Syndrome 1
      Family Medicine
      Experienced in Orofaciodigital Syndrome 1
      Family Medicine

      Dignity Health

      2480 Sonoma St, 
      Redding, CA 
      Experience:
      16+ years
      Languages Spoken:
      English

      David Holt is a primary care provider, practicing in Family Medicine in Redding, California. Dr. Holt has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Carpenter Syndrome, Goldenhar Disease, Fraser Syndrome, Hernia Surgery, and Balloon Sinuplasty.

      Experienced in Orofaciodigital Syndrome 1
      Oral and Maxillofacial Surgery | Plastic Surgery | General Surgery
      Experienced in Orofaciodigital Syndrome 1
      Oral and Maxillofacial Surgery | Plastic Surgery | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Karl Bruckman is an Oral and Maxillofacial Surgeon and a Plastic Surgeon in Stanford, California. Dr. Bruckman is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Micrognathia, TMJ Disorders, Osteomyelitis in Children, Osteotomy, and Septoplasty.

      Experienced in Orofaciodigital Syndrome 1
      Pediatrics | General Practice
      Experienced in Orofaciodigital Syndrome 1
      Pediatrics | General Practice
      4650 W Sunset Blvd, Mailstop 76, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Elizabeth Weiner is a primary care provider, a Pediatrics specialist and a General Practice provider in Los Angeles, California. Dr. Weiner is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are DiGeorge Syndrome, Autism Spectrum Disorder, Down Syndrome, and Cerebral Palsy.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Regents Of The University Of California

      101 The City Dr S, 
      Orange, CA 
      Languages Spoken:
      English

      Raj Vyas is a Plastic Surgeon in Orange, California. Dr. Vyas is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Melanoma, Cleft Lip and Palate, Acrofrontofacionasal Dysostosis Syndrome, Osteotomy, and Gastrostomy.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Regents Of The University Of California

      101 The City Dr S, 
      Orange, CA 
      Languages Spoken:
      English

      Miles Pfaff is a Plastic Surgeon in Orange, California. Dr. Pfaff is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Micrognathia, Melanoma, Pierre Robin Sequence, Osteotomy, and Septoplasty.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Childrens Hospital Los Angeles Medical Group Inc

      4650 W Sunset Blvd, 
      Los Angeles, CA 
      Languages Spoken:
      English

      William Magee is a Plastic Surgeon in Los Angeles, California. Dr. Magee is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Bifid Nose, Microtia, Autosomal Cleft Palate, Myringotomy, and Tissue Biopsy.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Faculty Physicians And Surgeons Of Llusm

      11234 Anderson St, 
      Loma Linda, CA 
      Languages Spoken:
      English

      Mark Martin is a Plastic Surgeon in Loma Linda, California. Dr. Martin is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Hypoplasia of the Tibia with Polydactyly, Polydactyly, Syndactyly, Syndactyly Type 1, and Bone Graft.

      Experienced in Orofaciodigital Syndrome 1
      Family Medicine
      Experienced in Orofaciodigital Syndrome 1
      Family Medicine
      445 E Anaheim St Ste H, 
      Wilmington, CA 
      Languages Spoken:
      English

      Juan Pena is a primary care provider, practicing in Family Medicine in Wilmington, California. Dr. Pena is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Obesity in Children, Food Allergy, Obesity, and Type 2 Diabetes (T2D).

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Ucsf Dept Of Surgery

      505 Parnassus Ave, 
      San Francisco, CA 
      Languages Spoken:
      English

      Alexander Lin is a Plastic Surgeon in San Francisco, California. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Plagiocephaly, Sunken Fontanelles, Metopic Ridge, Osteotomy, and Tissue Biopsy.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
      Languages Spoken:
      English

      James Chang is a Plastic Surgeon in Stanford, California. Dr. Chang is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Systemic Sclerosis (SSc), Dupuytren Contracture, Hypoplasia of the Tibia with Polydactyly, and Polydactyly.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery

      Ucsf Dept Of Surgery

      400 Pamassus Ave, 
      San Francisco, CA 
      Languages Spoken:
      English
      Offers Telehealth

      William Hoffman is a Plastic Surgeon and a General Surgeon in San Francisco, California. Dr. Hoffman is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Bifid Nose, Familial Partial Lipodystrophy, Congenital Generalized Lipodystrophy, Craniectomy, and Osteotomy.

      Experienced in Orofaciodigital Syndrome 1
      Family Medicine
      Experienced in Orofaciodigital Syndrome 1
      Family Medicine
      1212 Hanna Ave, 
      Corcoran, CA 
      Languages Spoken:
      English

      Danilo Cruz is a primary care provider, practicing in Family Medicine in Corcoran, California. Dr. Cruz is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Adult Immune Thrombocytopenia, Immune Thrombocytopenic Purpura (ITP), Hemangioma Thrombocytopenia Syndrome, and Thrombocytopenia.

      Experienced in Orofaciodigital Syndrome 1
      Pediatrics | General Practice
      Experienced in Orofaciodigital Syndrome 1
      Pediatrics | General Practice
      4650 W Sunset Blvd, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Karen Camero is a primary care provider, a Pediatrics specialist and a General Practice provider in Los Angeles, California. Dr. Camero is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are GAPO Syndrome, Delayed Growth, Obesity in Children, and Autism Spectrum Disorder.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      227 W Janss Rd, Suite 205, 
      Thousand Oaks, CA 
      Languages Spoken:
      English

      Mark Suski is a Plastic Surgeon in Thousand Oaks, California. Dr. Suski is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Melanoma, Squamous Cell Skin Carcinoma, Epidural Lipomatosis, Bladder Reconstruction, and Gastrostomy.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery

      Regents Of The University Of California

      200 W Arbor Dr, 
      San Diego, CA 
      Languages Spoken:
      English

      Melissa Kanack is a Plastic Surgeon in San Diego, California. Dr. Kanack is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Cleft Lip and Palate, Micrognathia, Autosomal Cleft Palate, Craniectomy, and Osteotomy.

      Showing 1-20 of 31

      Last Updated: 10/30/2025

      What is the definition of Orofaciodigital Syndrome 1?

      Orofaciodigital syndrome 1 (OFD1), also called orofaciodigital syndrome type 1, is a condition that affects the development of the oral cavity (the mouth and teeth), facial features, and digits (fingers and toes). This condition also causes polycystic kidney disease. Orofaciodigital syndrome 1 is caused by a change in a gene called OFD1 which appears to play an important role in the early development of many parts of the body including the brain, face, limbs, and kidneys. The syndrome is inherited in an X-linked dominant pattern. The diagnosis of OFD1 is sometimes made at birth, but it may be suspected only after polycystic kidney disease is found in later childhood or adulthood. OFD1 is the most common form of orofaciodigital syndrome and differs from the other types mainly by its association with polycystic kidney disease.

      When should I see an Orofaciodigital Syndrome 1 doctor in California, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Orofaciodigital Syndrome 1 doctor in California, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Orofaciodigital Syndrome 1 doctors in California, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Orofaciodigital Syndrome 1 doctors in California, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Orofaciodigital Syndrome 1 doctor in California, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. 

      Why is it important to get a second opinion from a different Orofaciodigital Syndrome 1 doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Orofaciodigital Syndrome 1 doctor in California, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Orofaciodigital Syndrome 1 doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Orofaciodigital Syndrome 1 doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Orofaciodigital Syndrome 1 doctors in California, US?

      Look for the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Orofaciodigital Syndrome 1 doctor that offers video calls?

      Look for the filter feature on the left-side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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