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    Last Updated: 10/30/2025

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    MediFind found 12 doctor with experience in Orofaciodigital Syndrome 1 near Illinois, US. Of these, 7 are Experienced and 5 are Advanced.

    Location
    LocationClose
    12 providers found
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery
      225 E Chicago Ave, Box 93, 
      Chicago, IL 
      Languages Spoken:
      English

      Noopur Gangopadhyay is a Plastic Surgeon and a General Surgeon in Chicago, Illinois. Dr. Gangopadhyay is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Bifid Nose, Autosomal Cleft Palate, Cleft Lip and Palate, Velopharyngeal Insufficiency, and Mastectomy.

      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery

      The Board Of Trustees Of The University Of Illinois

      840 S Wood St Mc, 958 Uic Surgery, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chad Purnell is a Plastic Surgeon in Chicago, Illinois. Dr. Purnell is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Pierre Robin Sequence, Cleft Lip and Palate, Craniosynostosis, Osteotomy, and Bone Graft. Dr. Purnell is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery

      The Board Of Trustees Of The University Of Illinois

      840 S Wood St Mc, 958 Uic Surgery, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lee Alkureishi is a Plastic Surgeon in Chicago, Illinois. Dr. Alkureishi is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Cleft Lip and Palate, Bifid Nose, Zlotogora-Ogur Syndrome, Osteotomy, and Bone Graft. Dr. Alkureishi is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery
      225 E Chicago Ave # 63, 
      Chicago, IL 
      Languages Spoken:
      English

      Arun Gosain is a Plastic Surgeon in Chicago, Illinois. Dr. Gosain is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Craniosynostosis, Cleft Lip and Palate, Pierre Robin Sequence, Osteotomy, and Abdominal Wall Surgery.

      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Pediatrics
      Advanced in Orofaciodigital Syndrome 1
      Plastic Surgery | Pediatrics

      The Board Of Trustees Of The University Of Illinois

      1855 W Taylor St, Mc648, 
      Chicago, IL 
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Pravin-kumar Patel is a Plastic Surgeon and a Pediatrics provider in Chicago, Illinois. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Goldenhar Disease, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Apert Syndrome, Saethre-Chotzen Syndrome, and Osteotomy. Dr. Patel is currently accepting new patients.

      Advanced in Orofaciodigital Syndrome 1
      Internal Medicine
      Advanced in Orofaciodigital Syndrome 1
      Internal Medicine

      The University Of Chicago Medical Center

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Elbert Huang is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Huang is rated as an Advanced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Type 2 Diabetes (T2D), Low Blood Sugar, Fraser Syndrome, Orofaciodigital Syndrome 4, and Heart Transplant.

      Experienced in Orofaciodigital Syndrome 1
      Experienced in Orofaciodigital Syndrome 1
      2211 N Oak Park Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Mitchell Grasseschi is a Plastic Surgeon in Chicago, Illinois. Dr. Grasseschi is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Bifid Nose, Cleft Lip and Palate, Autosomal Cleft Palate, and Orofaciodigital Syndrome Type 2.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Jennifer Mcgrath is a Plastic Surgeon in Chicago, Illinois. Dr. Mcgrath is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Hypoplasia of the Tibia with Polydactyly, Polydactyly, Micrognathia, and Syndactyly.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | General Surgery

      The Board Of Trustees Of The University Of Illinois

      1740 W Taylor St, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      David Morris is a Plastic Surgeon and a General Surgeon in Chicago, Illinois. Dr. Morris is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Bifid Nose, Venous Insufficiency, Cleft Lip and Palate, Stasis Dermatitis and Ulcers, and Osteotomy. Dr. Morris is currently accepting new patients.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      1801 W Taylor St, 3f Occ Mc 741, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Julia Corcoran is a Plastic Surgeon in Chicago, Illinois. Dr. Corcoran is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. Her top areas of expertise are Bifid Nose, Cleft Lip and Palate, Autosomal Cleft Palate, EEC Syndrome, and Osteotomy. Dr. Corcoran is currently accepting new patients.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery
      225 E Chicago Ave, Division Of Plastic Surgery, 
      Chicago, IL 
      Languages Spoken:
      English

      Akira Yamada is a Plastic Surgeon in Chicago, Illinois. Dr. Yamada is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Microtia, Autosomal Cleft Palate, Hypoplasia of the Tibia with Polydactyly, and Polydactyly.

      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | Hand Surgery
      Experienced in Orofaciodigital Syndrome 1
      Plastic Surgery | Hand Surgery

      University Of Wisconsin Medical Foundation Inc

      3775 N Mulford Rd, 
      Rockford, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Bentz is a Plastic Surgeon and a Hand Surgeon in Rockford, Illinois. Dr. Bentz is rated as an Experienced provider by MediFind in the treatment of Orofaciodigital Syndrome 1. His top areas of expertise are Polydactyly, Hypoplasia of the Tibia with Polydactyly, Syndactyly, and Melanoma. Dr. Bentz is currently accepting new patients.

      Showing 1-12 of 12

      Last Updated: 10/30/2025

      What is the definition of Orofaciodigital Syndrome 1?

      Orofaciodigital syndrome 1 (OFD1), also called orofaciodigital syndrome type 1, is a condition that affects the development of the oral cavity (the mouth and teeth), facial features, and digits (fingers and toes). This condition also causes polycystic kidney disease. Orofaciodigital syndrome 1 is caused by a change in a gene called OFD1 which appears to play an important role in the early development of many parts of the body including the brain, face, limbs, and kidneys. The syndrome is inherited in an X-linked dominant pattern. The diagnosis of OFD1 is sometimes made at birth, but it may be suspected only after polycystic kidney disease is found in later childhood or adulthood. OFD1 is the most common form of orofaciodigital syndrome and differs from the other types mainly by its association with polycystic kidney disease.

      When should I see an Orofaciodigital Syndrome 1 doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Orofaciodigital Syndrome 1 doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Orofaciodigital Syndrome 1 doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Orofaciodigital Syndrome 1 doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Orofaciodigital Syndrome 1 doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. 

      Why is it important to get a second opinion from a different Orofaciodigital Syndrome 1 doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Orofaciodigital Syndrome 1 doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Orofaciodigital Syndrome 1 doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Orofaciodigital Syndrome 1 doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Orofaciodigital Syndrome 1 doctors in Illinois, US?

      Look for the filter feature on the left side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Orofaciodigital Syndrome 1 doctor that offers video calls?

      Look for the filter feature on the left-side of the Orofaciodigital Syndrome 1 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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