The 20 Best Osteogenesis Imperfecta Doctors in Delaware, US

I’m very grateful for the opportunity to take care of children and get to know families. Kids deserve the very best chance to live an active, fulfilling childhood. I'm passionate about providing great orthopedic care to kids and teens. My medical interests include: bowed legs foot deformity knock knees limb deformity orthopedic surgery osteogenesis imperfecta prosthetics  trauma I’m proud to be part of a dedicated team that’s committed to improving the quality of life for children and young adults. In addition to caring for patients and teaching our residents and fellows, research is an important part of my work — and can lead to improved care and patient outcomes. Dr. Franzone is rated as an Elite provider by MediFind in the treatment of Osteogenesis Imperfecta. Her top areas of expertise are Osteogenesis Imperfecta, Knock Knees, Small Patella Syndrome, Osteotomy, and Spinal Fusion.

Dr. Michael B. Bober is a pediatric geneticist and an authority on skeletal dysplasias, brittle bone disease, primordial dwarfism and other genetic disorders of the skeleton. He is a frequent guest lecturer, accomplished author and consultant for numerous television networks, here and abroad. Dr. Bober is rated as an Elite provider by MediFind in the treatment of Osteogenesis Imperfecta. His top areas of expertise are Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), Achondroplasia, Osteotomy, and Adenoidectomy.

Mahim Jain is a Medical Genetics provider in Wilmington, Delaware. Dr. Jain is rated as an Elite provider by MediFind in the treatment of Osteogenesis Imperfecta. His top areas of expertise are Osteogenesis Imperfecta, Spondyloepimetaphyseal Dysplasia Strudwick Type, Miller-Dieker Syndrome, and Lissencephaly 1.

In addition to my work as a pediatric orthopedic surgeon, the Shands/MacEwen Endowed Chair of Orthopaedic Surgery at Nemours Children’s Hospital, Delaware, and division chief of the Nemours Spine and Scoliosis Center, I help educate the next generation of orthopedic physicians. I am the Clinical Fellowship Director Emeritus for the orthopedics department at Nemours Children’s Hospital, Delaware. I train residents, fellows and visiting observers in advanced spinal deformity techniques. I’m a professor of orthopedic surgery and pediatrics at Sidney Kimmel Medical College of Thomas Jefferson University, and frequently teach and lecture at national and international courses, educational symposia, conferences and other institutions. I am vice president of the Scoliosis Research Society, president of Setting Scoliosis Straight Foundation, a member of the Pediatric Orthopaedic Society of North America and a member of the Medical and Scientific Board of the National Spine Health Foundation. In addition, I have authored more than 200 research articles and 30 book chapters, and serve as a reviewer of four journals. Children are amazing. They just want to get better so they can get back to being kids. I enjoy giving each patient and family the personalized and customized attention they need, and making sure their questions are answered. There’s no template for this kind of care. I’m proud to be at Nemours Children’s Hospital, Delaware. We handle the most complex cases and teach the techniques other people come here to learn to do. Every person in our department is a national leader in his or her field. You couldn’t duplicate a group like this. It’s a real privilege to work with a team this good. Dr. Shah is rated as a Distinguished provider by MediFind in the treatment of Osteogenesis Imperfecta. His top areas of expertise are Scoliosis, Kyphosis, Adolescent Idiopathic Scoliosis, Spinal Fusion, and Osteotomy.

Dr. Valien Kondos is a pediatric hospitalist at Nemours/Alfred I. duPont Hospital for Children. She was chief during her Internal Medicine and Pediatrics residency, and has been an adjunct professor of science, a presenter and lecturer. She is passionate about clinical education, social determinants of health and global health. Dr. Kondos is a member of numerous professional medical associations, including the American College of Physicians, American Medical Association, American Academy of Pediatrics, the Medical Society of Delaware and the Society of Hospital Medicine. I became a doctor and treat kids because I wanted to make an impact on people’s lives in the most intimate way possible. I enjoy working with a highly impressionable population to help shape a healthier and stronger future. I’m passionate about teaching residents and medical students, not only about medical pathophysiology but also the art of medicine. I take pride in forming long-lasting relationships with my patients and educating them about their own health, to promote informed decision making. The transitional care population is one I especially enjoy working with, namely adolescent and young adults with chronic pediatric medical conditions. Lastly, I am interested in both the business of medicine and clinical leadership. On a daily basis, I try to do this through my teaching approach and fostering an individualized approach to patient care. On a larger scale, I am involved in system-wide quality improvement projects to evaluate and improve our processes to provide better patient care. Dr. Kondos is rated as an Experienced provider by MediFind in the treatment of Osteogenesis Imperfecta. Her top areas of expertise are Diffuse Panbronchiolitis, Herpes Simplex Encephalitis, Togaviridae Disease, Cerebral Hypoxia, and Myringotomy.

Brett Shannon is an Orthopedics provider in Wilmington, Delaware. Dr. Shannon has been practicing medicine for over 39 years and is rated as an Experienced provider by MediFind in the treatment of Osteogenesis Imperfecta. His top areas of expertise are Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Scoliosis, and Macrodactyly of the Foot.

I am a first-generation daughter of a Holocaust survivor, and grew up in central New Jersey with two brothers — one has cerebral palsy. I’ve always been interested in science and education, and, with my mother as a role model, I am a strong advocate for inclusion, disability, and other issues. I relate well with kids in general and especially those who have disabilities. As a pediatric rehabilitation physician, I like to guide children’s recovery and rehab, help patients and their families set realistic expectations, and get them through the experience with all the information they’ll need. I’m a powerful advocate for the disabled, inspired by my mother’s steadfast commitment to help my brother succeed in his own life. I’m passionate about giving parents those same tools, educating children and families dealing with disabilities and injuries about the process of recovery. So they can be prepared. It’s important to give injured children and their families as much guidance and deep honesty as possible, so they can go through the experience knowing what to expect. This approach improves follow-through and success, and it’s also how I train residents. Dr. Haas is rated as an Experienced provider by MediFind in the treatment of Osteogenesis Imperfecta. Her top areas of expertise are Concussion, Spastic Diplegia Infantile Type, Cerebral Palsy, and Mucopolysaccharidoses (MPS).

I’m a kid at heart, and I usually express that in my work. When I was accepted into my pediatric fellowship, following a residency in orthopedics, I knew my professional life would always center on kids. I’m a doer and my favorite quote by Emerson is, “What you do speaks so loudly that I can't hear what you say.” Whether as a doctor, parent, or coach, I really enjoy working with kids. I’ve always found the human body fascinating and mystifying in all its complexity. The science of growth is absolutely amazing. I’m passionate about working with kids. I’ve taken a group of middle school recreational runners to two league championships. I also received a national coaching award at Stanford University. In my research, I’ve helped develop new surgical techniques for an extremely difficult condition called osteogenesis imperfecta. Dr. Kruse is rated as an Experienced provider by MediFind in the treatment of Osteogenesis Imperfecta. His top areas of expertise are Symphalangism Distal, Kohler Disease, Syndactyly Type 1, Proximal Symphalangism, and Osteotomy.

Alicia McCarthy is a pediatric nurse practitioner with the Nemours Spine and Scoliosis Center and the Osteogenesis Imperfecta Program. I have known I wanted to work with children for as long as I can remember. Children are amazing — they bounce back from unbelievable odds and keep going, no matter what. Nursing combines my love of children and health. I think it’s important to work for children, who otherwise would not have a voice. I am passionate about working with children and families to maximize their functioning and quality of life, no matter what conditions or disorders they have. I am particularly passionate about working with children with chronic or complex medical disorders — every child deserves the best quality of life possible! I also love working with families to help navigate the healthcare system, and giving them resources they need to be successful. I have volunteered for many years at summer camps, including those for children with chronic medical conditions, or whose parents are sick. I also volunteer in a community garden that donates all food to local food banks. I’m proud to work at Nemours. We work with each patient and family as an individual, and treat them as if they are our own. I take that very seriously. I work with families to understand their concerns and answer every question. I strive to coordinate care so that families are not repeating information endlessly or going for needless appointments. I’ve also developed a mentoring program for spine and scoliosis families at Nemours. This program connects patients and families who are newly diagnosed with those that are more experienced in living with conditions of the spine. I’ve also developed numerous patient education materials so that families can reference the information we discuss in clinic once they are home. Finally, I’ve lectured on spinal care locally and nationally, and have conducted several research projects. Dr. Mccarthy is rated as an Experienced provider by MediFind in the treatment of Osteogenesis Imperfecta. Her top areas of expertise are Fibrochondrogenesis, Kozlowski Spondylometaphyseal Dysplasia, Leri-Weill Dyschondrosteosis, and Metatropic Dysplasia.

Cristina Mcgreal is a Medical Genetics provider in Wilmington, Delaware. Dr. Mcgreal and is rated as an Experienced provider by MediFind in the treatment of Osteogenesis Imperfecta. Her top area of expertise is Osteogenesis Imperfecta.

Dr. Ricki Carroll is a complex care and palliative care physician on the skeletal dysplasia and palliative care teams at Nemours Children’s Hospital, Delaware. Dr. Carroll works to provide a medical home and manage care for children with a wide array of skeletal dysplasias. Her background in palliative medicine allows her to focus on pain and symptom management needs for these children, teens and young adults. Dr. Carroll also leads the skeletal dysplasia consultative service, providing care for infants and children with skeletal dysplasias who are in the hospital. Additionally, drawing upon her Master’s in Bioethics, she is currently serving as co-Chair of the Nemours Ethics and Patients’ Rights Committee. It’s an honor and a privilege to care for families, children and teens with skeletal dysplasias and medically complex conditions.  I aim to treat each child or teen as a whole, and not just treat the individual condition, as I feel spiritual and emotional needs are just as important as medical and physical ones. I try to intently listen to each child or teen and family when they are under my care, in hopes of understanding their story and their experience and, therefore, focusing goals of care to their individual needs. My medical interests include:  Clinical management of infants with skeletal dysplasias, including OI, thanatophoric dysplasia, and collagen-II-opathies Emerging medical treatments for skeletal dysplasias The elucidation of the natural history of OI and skeletal dysplasias The role of biomarkers in all skeletal dysplasias Management of chronic pain in adolescents and young adults with skeletal dysplasias Complex medical conditions Palliative care I try to make a difference by focusing on each child or teen as if they are my one and only patient. I aim to provide a comforting environment for kids while they are in our care and always consider how to better manage symptoms and control any pain. I earned a master's degree in bioethics, and often call upon what I learned to help inform how I view the way the hospital and our teams deliver excellent care to children and teens. Dr. Carroll is rated as an Experienced provider by MediFind in the treatment of Osteogenesis Imperfecta. Her top areas of expertise are Thanatophoric Dysplasia, Spondyloepiphyseal Dysplasia, Diastrophic Dysplasia, Acromicric Dysplasia, and Osteotomy.