The 20 Best Paramyotonia Congenita Doctors in The United States

Find the Top Paramyotonia Congenita Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1859 doctor with experience in Paramyotonia Congenita near The United States. Of these, 1580 are Experienced, 223 are Advanced, 49 are Distinguished and 7 are Elite.

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1,859 providers found
    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita

    Office

    355 W 16th St Ste 3200, 
    Indianapolis, IN 
    Languages Spoken:
    English

    Laurie Gutmann is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Charcot-Marie-Tooth Disease.

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Statland is a Neurologist practicing medicine in Fairway, Kansas. He has been practicing medicine for over 21 years. Dr. Statland is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is board certified in American Board Of Psychiatry And Neurology, Neurology - 2011. Dr. Statland is currently accepting new patients.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita

    OSF Illinois Neurological Institute - Neurology

    200 East Pennsylvania Avenue, 
    Peoria, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Gregory Blume is a Neurologist practicing medicine in Peoria, Illinois. Dr. Blume is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Blume is board certified in American Board Of Psychiatry And Neurology.

    Learn about our expert tiers
    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Chad Heatwole is a Neurologist practicing medicine in Rochester, New York. Dr. Heatwole is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Charles Thornton is a Neurologist practicing medicine in Rochester, New York. Dr. Thornton is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita

    Houston Methodist Department Of Neurology-Texas Medical Center

    6560 Fannin St Ste 802, 
    Houston, TX 
    Languages Spoken:
    English

    Tetsuo Ashizawa is a Neurologist practicing medicine in Houston, Texas. Dr. Ashizawa is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 10, Spinocerebellar Ataxia, Drug Induced Dyskinesia, and Deep Brain Stimulation.

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita

    Outpatient Neurologic Rehabilitation Program

    213 Quarry Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacinda Sampson is a Neurologist practicing medicine in Palo Alto, California. Dr. Sampson is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 73 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, Oculodentodigital Dysplasia, and Thymectomy.

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Thurman Wheeler is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Wheeler is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Dystrophinopathy.

    Advanced in Paramyotonia Congenita
    Advanced in Paramyotonia Congenita

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Lee is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita

    Reading Hospital

    420 South 5th Avenue, 
    West Reading, PA 
    Languages Spoken:
    English

    . Dr. Khoshnoodi is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Miller-Fisher Syndrome, Guillain-Barre Syndrome, and Chronic Polyradiculoneuritis. Dr. Khoshnoodi is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Paramyotonia Congenita
    Internal Medicine
    Experienced in Paramyotonia Congenita
    Internal Medicine

    Bassett Health Center Cobleskill

    136 Parkway Drive, 
    Cobleskill, NY 
    Languages Spoken:
    English

    . Dr. Korn is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Bronchiectasis, Lung Metastases, Enlarged Prostate (BPH), and Supranuclear Ophthalmoplegia.

    Experienced in Paramyotonia Congenita
    Neuromusculoskeletal Medicine | Neurology
    Experienced in Paramyotonia Congenita
    Neuromusculoskeletal Medicine | Neurology

    Intermountain Neurosciences Institute - Outpatient

    5171 South Cottonwood Street, Suite 810, 
    Murray, UT 
    Experience:
    14+ years
    Languages Spoken:
    English
    Offers Telehealth

    Cory Kogelschatz is a Neuromusculoskeletal Medicine specialist and a Neurologist practicing medicine in Murray, Utah. He has been practicing medicine for over 14 years. Dr. Kogelschatz is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Myasthenia Gravis, and Miller-Fisher Syndrome. Dr. Kogelschatz is board certified in American Board Of Psychiatry And Neurology and American Board Of Psychiatry And Neurology.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita

    Bassett Medical Center

    1 Atwell Road, 
    Cooperstown, NY 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Cherukuri is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Seizures, Epilepsy Juvenile Absence, Memory Loss, and Lewy Body Dementia (LBD). Dr. Cherukuri is board certified in American Board Of Psychiatry & Neurology In Clinical Neurophysiology and American Board Of Psychiatry & Neurology In Neurology.

    Experienced in Paramyotonia Congenita
    Psychiatry | Neurology
    Experienced in Paramyotonia Congenita
    Psychiatry | Neurology

    Advocate Medical Group Neurology

    1875 Dempster St, Ste 625/660, 
    Park Ridge, IL 
    Languages Spoken:
    English, Urdu
    Offers Telehealth

    Faisal Fecto is a Psychiatrist and a Neurologist practicing medicine in Park Ridge, Illinois. Dr. Fecto is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Continuous Muscle Fiber Activity Hereditary, and Isaacs' Syndrome. Dr. Fecto is board certified in American Board Of Psychiatry & Neurology.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita

    Neuromuscular - Integrated Medical Services

    630 S 400 E Ste 101, 
    Saint George, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Russell Butterfield is a Neurologist practicing medicine in Saint George, Utah. Dr. Butterfield is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Spinal Muscular Atrophy (SMA). Dr. Butterfield is board certified in American Board Of Psychiatry And Neurology. Dr. Butterfield is currently accepting new patients.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita

    Kennedy Krieger Institute

    1741 Ashland Avenue, Room 847, Room 847, 
    Baltimore, MD 
    Languages Spoken:
    English

    Dr. Leung obtained her undergraduate degree in biochemical sciences from Harvard University. While attending medical school at Duke University, she completed a year-long research fellowship studying genetic markers of late-onset Alzheimer’s disease at the National Institute on Aging as part of the NIH Clinical Research Training Program. She completed her neurology residency and clinical neurophysiology fellowship at Stanford University Medical Center, and is currently a Ph.D. candidate in the graduate training program in clinical investigation at the Johns Hopkins Bloomberg School of Public Health. Dr. Leung joined the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute as a translational research fellow in 2010 and was appointed to the faculty in 2014. Her clinic specializes in electromyography and the diagnosis and treatment of hereditary muscle diseases. Dr. Leung’s research focuses on the development of imaging biomarkers and outcome measures for muscle diseases. She is the principal investigator for a longitudinal cohort study of whole-body MRI in facioscapulohumeral muscular dystrophy. Dr. Leung is also a site principal investigator for the Ionis-DMPKRx trial, a phase Ib/IIa clinical trial of a novel RNA-based therapy for myotonic muscular dystrophy. Dr. Leung is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, and Dysferlinopathy. Dr. Leung is board certified in American Board Of Psychiatry And Neurology.

    Advanced in Paramyotonia Congenita
    Advanced in Paramyotonia Congenita

    Reading Hospital Neurology Suite 210

    301 S 7th Ave, Ste 210, 
    West Reading, PA 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Pilar is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Activated PI3K Delta Syndrome (APDS), Guillain-Barre Syndrome, Chronic Polyradiculoneuritis, and Miller-Fisher Syndrome. Dr. Pilar is board certified in American Board Of Psychiatry And Neurology.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita

    Penn Neuroscience Center - Neurology

    330 South 9th Street, 3rd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Lauren Elman is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Elman is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Elman is currently accepting new patients.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita

    Kaiser Permanente Lone Tree Medical Offices

    10240 Park Meadows Dr, 
    Lone Tree, CO 
    Languages Spoken:
    English
    Accepting New Patients

    Samantha Lorusso is a Neurologist practicing medicine in Lone Tree, Colorado. Dr. Lorusso is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Myotonia Congenita, Amyotonia Congenita, and Tissue Biopsy. Dr. Lorusso is currently accepting new patients.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita

    Office

    300 Medical Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Payam Soltanzadeh is a Neurologist practicing medicine in Los Angeles, California. Dr. Soltanzadeh is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Showing 1-20 of 1,859

    Last Updated: 04/28/2026

    What is the definition of Paramyotonia Congenita?

    Paramyotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in infancy or early childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally. Myotonia causes muscle stiffness that typically appears after exercise and can be induced by muscle cooling. This stiffness chiefly affects muscles in the face, neck, arms, and hands, although it can also affect muscles used for breathing and muscles in the lower body. Unlike many other forms of myotonia, the muscle stiffness associated with paramyotonia congenita tends to worsen with repeated movements.

    When should I see a Paramyotonia Congenita doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Paramyotonia Congenita doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Paramyotonia Congenita doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Paramyotonia Congenita doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Paramyotonia Congenita doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Paramyotonia Congenita doctor search results page. 

    Why is it important to get a second opinion from a different Paramyotonia Congenita doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Paramyotonia Congenita doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Paramyotonia Congenita doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Paramyotonia Congenita doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Paramyotonia Congenita doctors in The United States?

    Look for the filter feature on the left side of the Paramyotonia Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Paramyotonia Congenita doctor that offers video calls?

    Look for the filter feature on the left-side of the Paramyotonia Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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