The 20 Best Paramyotonia Congenita Doctors in The United States

Find the Top Paramyotonia Congenita Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 1808 doctor with experience in Paramyotonia Congenita near The United States. Of these, 1556 are Experienced, 197 are Advanced, 46 are Distinguished and 9 are Elite.

Location
LocationClose
1,808 providers found
    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral may be required

    Clinical Research Center

    4350 Shawnee Mission Parkway, 
    Fairway, KS 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Statland is a Neurologist practicing medicine in Fairway, Kansas. Dr. Statland is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Paramyotonia Congenita, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is board certified in American Board Of Psychiatry And Neurology, Neurology - 2011. Dr. Statland is currently accepting new patients.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita
    Referral may be required

    OSF Illinois Neurological Institute - Neurology

    200 East Pennsylvania Avenue, 
    Peoria, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gregory Blume is a Neurologist practicing medicine in Peoria, Illinois. Dr. Blume is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Blume is board certified in American Board Of Psychiatry And Neurology. Dr. Blume is currently accepting new patients.

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral may be required

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Charles Thornton is a Neurologist practicing medicine in Rochester, New York. Dr. Thornton is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Learn about our expert tiers
    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral may be required

    University Of Rochester

    601 Elmwood Ave, 
    Rochester, NY 
    Languages Spoken:
    English

    Chad Heatwole is a Neurologist practicing medicine in Rochester, New York. Dr. Heatwole is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral required

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City,, IA 
    Languages Spoken:
    English
    Accepting New Patients

    Laurie Gutmann is a Neurologist practicing medicine in Iowa City,, Iowa. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Charcot-Marie-Tooth Disease. Dr. Gutmann is currently accepting new patients.

    Elite in Paramyotonia Congenita
    Neurology
    Elite in Paramyotonia Congenita
    Neurology
    Referral may be required

    Stanford Hospital And Clinics

    965 High St, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    John Day is a Neurologist practicing medicine in Palo Alto, California. Dr. Day is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Spinal Muscular Atrophy (SMA), Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Paramyotonia Congenita.

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral may be required

    Office

    601 Elmwood Ave # 1, 
    Rochester, NY 
    Experience:
    17+ years
    Languages Spoken:
    English

    Johanna Hamel is a Neurologist practicing medicine in Rochester, New York. She has been practicing medicine for over 17 years. Dr. Hamel is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Facioscapulohumeral Muscular Dystrophy (FSHD).

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral may be required

    Houston Methodist Department Of Neurology-Texas Medical Center

    6560 Fannin St Ste 802, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Tetsuo Ashizawa is a Neurologist practicing medicine in Houston, Texas. Dr. Ashizawa is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 10, Spinocerebellar Ataxia, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Ashizawa is currently accepting new patients in some locations.

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral may be required

    Stanford Hospital And Clinics

    965 High St, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Jacinda Sampson is a Neurologist practicing medicine in Palo Alto, California. Dr. Sampson is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 74 other conditions, according to our data. Her clinical expertise encompasses Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, Oculodentodigital Dysplasia, and Thymectomy.

    Elite in Paramyotonia Congenita
    Elite in Paramyotonia Congenita
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Thurman Wheeler is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Wheeler is rated as an Elite provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Dystrophinopathy. Dr. Wheeler is currently accepting new patients.

    Distinguished in Paramyotonia Congenita
    Distinguished in Paramyotonia Congenita
    Referral required

    Amc

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Murnane is a Neurologist practicing medicine in Albany, New York. Dr. Murnane is rated as a Distinguished provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Andermann Syndrome, Charcot-Marie-Tooth Disease, Septic Arthritis, and Hereditary Sensory Neuropathy Type 1 (HSN1). Dr. Murnane is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Geriatrics | Family Medicine
    Experienced in Paramyotonia Congenita
    Geriatrics | Family Medicine
    Referral may be required

    Corewell Health Advanced Primary Care - Holland

    250 East 8th Street, 
    Holland, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Nathanial Chumley is a primary care provider, practicing in Geriatrics and Family Medicine in Holland, Michigan. Dr. Chumley is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Seasonal Affective Disorder (SAD), Hypertension, and Familial Hypertension. Dr. Chumley is board certified in American Board Of Family Medicine. Dr. Chumley is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Internal Medicine
    Experienced in Paramyotonia Congenita
    Internal Medicine

    Franciscan Medical Clinic - Lakewood

    11307 Bridgeport Way SW, Suite 200, 
    Lakewood, WA 
    Languages Spoken:
    English, French, Korean, Russian, Spanish, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Joseph Regimbal is a primary care provider, practicing in Internal Medicine in Lakewood, Washington. Dr. Regimbal is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Peptic Ulcer, Stasis Dermatitis and Ulcers, and Necrosis. Dr. Regimbal is board certified in American Board Of Internal Medicine. Dr. Regimbal is currently accepting new patients.

    Advanced in Paramyotonia Congenita
    Family Medicine
    Advanced in Paramyotonia Congenita
    Family Medicine

    Duke Primary Care Brier Creek

    10208 Cerny St, 
    Raleigh, NC 
    Languages Spoken:
    English, French, Spanish
    Accepting New Patients
    Offers Telehealth

    Michele Nacouzi is a primary care provider, practicing in Family Medicine in Raleigh, North Carolina. Dr. Nacouzi is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Sitosterolemia, and Paramyotonia Congenita. Dr. Nacouzi is board certified in American Board Of Family Medicine, Family Medicine. Dr. Nacouzi is currently accepting new patients.

    Advanced in Paramyotonia Congenita
    Advanced in Paramyotonia Congenita
    Referral may be required

    Reading Hospital Neurology Suite 210

    301 S 7th Ave, Ste 210, 
    West Reading, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Gabriel Pilar is a Neurologist practicing medicine in West Reading, Pennsylvania. Dr. Pilar is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Activated PI3K Delta Syndrome (APDS), Chronic Polyradiculoneuritis, Guillain-Barre Syndrome, and Miller-Fisher Syndrome. Dr. Pilar is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Paramyotonia Congenita
    Family Medicine
    Experienced in Paramyotonia Congenita
    Family Medicine

    University Hospitals Coordinated Care

    3605 Warrensville Center Rd, 
    Beachwood, OH 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Thomas Wagner is a primary care provider, practicing in Family Medicine in Beachwood, Ohio. Dr. Wagner is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Infant Hyperglycemia, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Wagner is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Internal Medicine
    Experienced in Paramyotonia Congenita
    Internal Medicine

    HCMG Gallagher Adult

    1900 E Commercial Blvd Ste 101, 
    Fort Lauderdale, FL 
    Languages Spoken:
    English, Italian, Spanish
    Accepting New Patients
    Offers Telehealth

    Richard Mastrole is a primary care provider, practicing in Internal Medicine in Fort Lauderdale, Florida. Dr. Mastrole is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Colorectal Cancer, Familial Colorectal Cancer, Gout, and Postmenopausal Osteoporosis. Dr. Mastrole is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Family Medicine
    Experienced in Paramyotonia Congenita
    Family Medicine

    MDVIP - New Braunfels, TX

    1441 Whispering Woods Trl, 
    New Braunfels, TX 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jason Nelson is a primary care provider, practicing in Family Medicine in New Braunfels, Texas. Dr. Nelson is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and High Cholesterol. Dr. Nelson is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Geriatrics | Internal Medicine
    Experienced in Paramyotonia Congenita
    Geriatrics | Internal Medicine
    Referral may be required

    Suburban Geriatrics Inc

    2901 Jolly Road, 
    Plymouth Meeting, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Pearlstein is a primary care provider, practicing in Geriatrics and Internal Medicine in Plymouth Meeting, Pennsylvania. Dr. Pearlstein is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 180 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Painful Swallowing, Gastrostomy, and Endoscopy. Dr. Pearlstein is board certified in  . Dr. Pearlstein is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Family Medicine
    Experienced in Paramyotonia Congenita
    Family Medicine

    William M Handy, MD PC

    389 Falls Dr NW, 
    Abingdon, VA 
    Languages Spoken:
    English
    Accepting New Patients

    William Handy is a primary care provider, practicing in Family Medicine in Abingdon, Virginia. Dr. Handy is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Spinocerebellar Ataxia Type 10, Spinocerebellar Ataxia Type 4, Spinocerebellar Ataxia Type 15, and Spinocerebellar Ataxia Type 5. Dr. Handy is board certified in American Board Of Family Medicine. Dr. Handy is currently accepting new patients.

    Showing 1-20 of 1,808

    Last Updated: 09/26/2026

    What is the definition of Paramyotonia Congenita?

    Paramyotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in infancy or early childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally. Myotonia causes muscle stiffness that typically appears after exercise and can be induced by muscle cooling. This stiffness chiefly affects muscles in the face, neck, arms, and hands, although it can also affect muscles used for breathing and muscles in the lower body. Unlike many other forms of myotonia, the muscle stiffness associated with paramyotonia congenita tends to worsen with repeated movements.

    When should I see a Paramyotonia Congenita doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Paramyotonia Congenita doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Paramyotonia Congenita doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Paramyotonia Congenita doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Paramyotonia Congenita doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Paramyotonia Congenita doctor search results page. 

    Why is it important to get a second opinion from a different Paramyotonia Congenita doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Paramyotonia Congenita doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Paramyotonia Congenita doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Paramyotonia Congenita doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Paramyotonia Congenita doctors in The United States?

    Look for the filter feature on the left side of the Paramyotonia Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Paramyotonia Congenita doctor that offers video calls?

    Look for the filter feature on the left-side of the Paramyotonia Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.