The 20 Best Paramyotonia Congenita Doctors Near Me in saint louis, MO

Find the Top Paramyotonia Congenita Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 16 doctor with experience in Paramyotonia Congenita near saint louis, MO. Of these, 13 are Experienced and 3 are Advanced.

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16 providers found
    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    Washington University - Neuromuscular Disease Center

    660 S Euclid Ave, Box 8111, 
    St. Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Alan Pestronk is a Neurologist practicing medicine in St. Louis, MO. Dr. Pestronk is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Dysferlinopathy, Miyoshi Myopathy, Pompe Disease, and Myasthenia Gravis.

    Advanced in Paramyotonia Congenita
    Advanced in Paramyotonia Congenita
    Referral may be required

    Barnes-Jewish Hospital

    1 Barnes Jewish Hospital Plz, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Arun Varadhachary is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Varadhachary is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Gastrostomy. Dr. Varadhachary is currently accepting new patients.

    Advanced in Paramyotonia Congenita
    Advanced in Paramyotonia Congenita
    Referral may be required

    Barnes-Jewish Hospital

    1 Barnes Jewish Hospital Plz, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Peter Kang is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Kang is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Cockayne Syndrome, Limb-Girdle Muscular Dystrophy, Cockayne Syndrome Type 1, Cockayne Syndrome Type 2, and Thymectomy. Dr. Kang is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    SSM-Sluh Inc.

    1225 S Grand Blvd, 
    Saint Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English, Arabic
    Accepting New Patients
    Offers Telehealth

    Sara Huser is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Huser is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Foot Drop, Migraine, Spasticity, and Inclusion Body Myositis. Dr. Huser is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral required

    St Louis University Hospital

    1201 S Grand Blvd, 
    Saint Louis, MO 
     (2.3 miles away)
    Languages Spoken:
    English, Farsi, Turkish
    Accepting New Patients

    Jafar Kafaie is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Kafaie is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Kafaie is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Richard Sommerville is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Sommerville is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Pompe Disease, Danon Disease, and Gastrostomy.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Craig Zaidman is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Zaidman is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Primary Lateral Sclerosis. Dr. Zaidman is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Jesse Crayle is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Crayle is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Brain Abscess, and Tuberculous Meningitis.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Andrew Findlay is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Findlay is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Dystrophinopathy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Primary Lateral Sclerosis. Dr. Findlay is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    Office

    4921 Parkview Pl Ste 6C, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Glenn Lopate is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Lopate is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Chronic Demyelinizing Neuropathy with IgM Monoclonal, and Peripheral Neuropathy.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    Office

    4921 Parkview Pl Ste 6C, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    Muhammad Al-Lozi is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Al-Lozi is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Myotonia Congenita, Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Gastrostomy. Dr. Al-Lozi is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Experienced in Paramyotonia Congenita
    Referral may be required

    Barnes-Jewish Hospital

    1 Barnes Jewish Hospital Plz, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Naman Bareja is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Bareja is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. His clinical expertise encompasses Oculopharyngeal Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), Myotonic Dystrophy Type 2, and Myotonic Dystrophy.

    Experienced in Paramyotonia Congenita
    Internal Medicine
    Experienced in Paramyotonia Congenita
    Internal Medicine

    Christopher T Labonte MD LLC

    2711 Union Blvd, 
    Saint Louis, MO 
     (4.7 miles away)
    Languages Spoken:
    English

    Christopher Labonte is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Labonte is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Hypothyroidism, Obesity in Children, Urinary Tract Infection in Children, Gastrostomy, and Endoscopy.

    Experienced in Paramyotonia Congenita
    Neurology | Neuromusculoskeletal Medicine
    Experienced in Paramyotonia Congenita
    Neurology | Neuromusculoskeletal Medicine
    Referral may be required

    SSM Health Neurosciences

    1035 Bellevue Ave., Suite 500, 
    St. Louis, MO 
     (6.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Niranjan Singh is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in St. Louis, Missouri. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Migraine, Multiple System Atrophy, Headache, and Posterior Fossa Decompression. Dr. Singh is board certified in American Board Of Psychiatry & Neurology , Missouri Dept Of Health/Narcotics&Dangerous Drugs , Illinois Department Of Financial & Professional Regulation , Missouri State Board Of Registration, American Board Of Physical Medicine & Rehabilitation/Neuromuscular Medicine , and Drug Enforcement Administration . Dr. Singh is currently accepting new patients.

    Advanced in Paramyotonia Congenita
    Advanced in Paramyotonia Congenita
    Referral may be required

    Office

    3 Saint Elizabeth Blvd, 
    O Fallon, IL 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Raghav Govindarajan is a Neurologist practicing medicine in O Fallon, Illinois. Dr. Govindarajan is rated as an Advanced provider by MediFind in the treatment of Paramyotonia Congenita. He is also highly rated in 61 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, Thymectomy, and Thrombectomy. Dr. Govindarajan is currently accepting new patients.

    Experienced in Paramyotonia Congenita
    Neurology
    Experienced in Paramyotonia Congenita
    Neurology
    Referral may be required

    Mercy Hospital St. Louis

    615 S New Ballas Rd, 
    Saint Louis, MO 
     (13.3 miles away)
    Languages Spoken:
    English, Croatian
    Accepting New Patients
    Offers Telehealth

    Ksenija Kos is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Kos is rated as an Experienced provider by MediFind in the treatment of Paramyotonia Congenita. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Movement Disorders, Parkinson's Disease, and Peripheral Neuropathy. Dr. Kos is currently accepting new patients.

    Showing 1-16 of 16

    Last Updated: 09/26/2026

    What is the definition of Paramyotonia Congenita?

    Paramyotonia congenita is a disorder that affects muscles used for movement (skeletal muscles). Beginning in infancy or early childhood, people with this condition experience bouts of sustained muscle tensing (myotonia) that prevent muscles from relaxing normally. Myotonia causes muscle stiffness that typically appears after exercise and can be induced by muscle cooling. This stiffness chiefly affects muscles in the face, neck, arms, and hands, although it can also affect muscles used for breathing and muscles in the lower body. Unlike many other forms of myotonia, the muscle stiffness associated with paramyotonia congenita tends to worsen with repeated movements.

    When should I see a Paramyotonia Congenita doctor near saint louis, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Paramyotonia Congenita doctor near saint louis, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Paramyotonia Congenita doctors near saint louis, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Paramyotonia Congenita doctors near saint louis, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Paramyotonia Congenita doctor near saint louis, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Paramyotonia Congenita doctor search results page. 

    Why is it important to get a second opinion from a different Paramyotonia Congenita doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Paramyotonia Congenita doctor near saint louis, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Paramyotonia Congenita doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Paramyotonia Congenita doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Paramyotonia Congenita doctors near saint louis, MO?

    Look for the filter feature on the left side of the Paramyotonia Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Paramyotonia Congenita doctor that offers video calls?

    Look for the filter feature on the left-side of the Paramyotonia Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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