Learn About POEMS Syndrome

What is the definition of POEMS Syndrome?
POEMS syndrome is a rare, mulitisystem disorder. POEMS stands for the disorder's features, which may include Polyneuropathy, Organomegaly, Endocrinopathy, Monoclonal gammopathy, and Skin changes. Signs and symptoms may include progressive sensorimotor polyneuropathy; enlarged liver, spleen, and/or lymph nodes; a disorder of the endocrine glands (often with multiple abnormalities); a monoclonal plasma cell proliferative disorder; and darkening of the skin (hyperpigmentation). Various other symptoms may also occur and may vary among affected people. The underlying cause of the disorder is not well understood.
What are the alternative names for POEMS Syndrome?
  • POEMS syndrome
  • Crow-Fukase syndrome
  • Polyneuropathy organomegaly
  • Polyneuropathy, Organomegaly, Endocrinopathy, M protein, and Skin changes syndrome
Who are the top POEMS Syndrome Local Doctors?
Prashant Kapoor
Elite in POEMS Syndrome
Hematology | Oncology | Hematology Oncology
Elite in POEMS Syndrome
Hematology | Oncology | Hematology Oncology

Mayo Clinic

200 1st St Sw, 
Rochester, MN 
Languages Spoken:
English, Hindi
Accepting New Patients
Offers Telehealth

Prashant Kapoor is a Hematologist and an Oncologist in Rochester, Minnesota. Dr. Kapoor is rated as an Elite provider by MediFind in the treatment of POEMS Syndrome. His top areas of expertise are Multiple Myeloma, Waldenstrom Macroglobulinemia, Primary Amyloidosis, Monoclonal Gammopathy of Undetermined Significance (MGUS), and Bone Marrow Transplant. Dr. Kapoor is currently accepting new patients.

Elite in POEMS Syndrome
Hematology | Oncology
Elite in POEMS Syndrome
Hematology | Oncology

Mayo Clinic

200 1st St Sw, 
Rochester, MN 
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Angela Dispenzieri is a Hematologist and an Oncologist in Rochester, Minnesota. Dr. Dispenzieri is rated as an Elite provider by MediFind in the treatment of POEMS Syndrome. Her top areas of expertise are Primary Amyloidosis, POEMS Syndrome, Multiple Myeloma, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Dispenzieri is currently accepting new patients.

 
 
 
 
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Elite in POEMS Syndrome
Elite in POEMS Syndrome
Chiba, JP 

Satoshi Kuwabara practices in Chiba, Japan. Mr. Kuwabara is rated as an Elite expert by MediFind in the treatment of POEMS Syndrome. His top areas of expertise are POEMS Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, Guillain-Barre Syndrome, Deep Brain Stimulation, and Thymectomy.

What are the latest POEMS Syndrome Clinical Trials?
Gut Microbiome Studies in Patients With POEMS Syndrome and Other Plasma Cell Disorders

Summary: A Study to Evaluate Gut Microbiome with POEMS Syndrome and Other Plasma Cell Disorders

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Polyneuropathy, Impairments and Physical Activity - The PolyImPAct Study

Summary: The project aims to investigate the validity, and reliability of outcome measures of muscle strength, functioning (gait, balance, and fine motor skills), physical activity, and patient-reported outcome measures of functioning (gait, balance, and fine motor skills), and daily living among patients with polyneuropathy. Further, the project aims to compare physical activity and patient-reported outco...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center