The 20 Best Pompe Disease Doctors Near Me in VLG, BE

Find the Top Pompe Disease Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 21 doctor with experience in Pompe Disease near VLG, BE. Of these, 19 are Experienced, 1 are Advanced and 1 are Distinguished.

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21 providers found
    Distinguished in Pompe Disease
    Distinguished in Pompe Disease
    Referral may be required
    Leuven, VLG, BE 

    Kristl Claeys practices practicing medicine in Leuven, Belgium. Ms. Claeys is rated as a Distinguished expert by MediFind in the treatment of Pompe Disease. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Cramp-Fasciculation Syndrome, Limb-Girdle Muscular Dystrophy, and Primary Lateral Sclerosis.

    Advanced in Pompe Disease
    Advanced in Pompe Disease
    Referral may be required
    Antwerpen, VLG, BE 

    Alicia Jimenez-Alonso practices practicing medicine in Antwerpen, Belgium. Ms. Jimenez-Alonso is rated as an Advanced expert by MediFind in the treatment of Pompe Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Oculopharyngeal Muscular Dystrophy, Paget's Disease of Bone, and Limb-Girdle Muscular Dystrophy.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Leuven, VLG, BE 

    Marinee Chuah practices practicing medicine in Leuven, Belgium. Ms. Chuah is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Hemophilia B, Blood Clots, Hemophilia A, and Pompe Disease.

    Learn about our expert tiers
    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Antwerpen, VLG, BE 

    Christophe Depuydt practices practicing medicine in Antwerpen, Belgium. Mr. Depuydt is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Human Papillomavirus Infection, Cervical Cancer, Cervical Dysplasia, and Trichomoniasis.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    UZ Leuven, Campus Gasthuisberg

    Leuven, VLG, BE 

    Philippe Demaerel practices practicing medicine in Leuven, Belgium. Mr. Demaerel is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Siderosis, Akesson Syndrome, Cutis Gyrata Syndrome, Mesenteric Venous Thrombosis, and Thrombectomy.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Leuven, VLG, BE 

    Ann Dhondt practices practicing medicine in Leuven, Belgium. Ms. Dhondt is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. Her clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Pompe Disease, and Primary Lateral Sclerosis.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Diegem, VLG, BE 

    Stefaan Sansen practices practicing medicine in Diegem, Belgium. Sansen is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. Their clinical expertise encompasses Acid Sphingomyelinase Deficiency (ASMD), Pompe Disease, and Niemann-Pick Disease.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Leuven, VLG, BE 

    Steffen Fieuws practices practicing medicine in Leuven, Belgium. Mr. Fieuws is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Acute Pain, Lung Metastases, Endometriosis, Osteotomy, and Liver Transplant.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    Locomotor And Neurological Disorders, KU Leuven

    Leuven, VLG, BE 

    Koen Peers practices practicing medicine in Leuven, Belgium. Mr. Peers is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. His clinical expertise encompasses Spasticity, Tendinitis, Hyperventilation, Carpal Tunnel Syndrome, and Spinal Fusion.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    KU Leuven

    Leuven, VLG, BE 

    Peter Witters-Wang practices practicing medicine in Leuven, Belgium. Witters-Wang is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses PMM2-Congenital Disorder of Glycosylation, PGM1-CDG, MPI-CDG, Liver Transplant, and Gastrostomy.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Gent, VLG, BE 

    Jan De Bleecker-Bleecker practices practicing medicine in Gent, Belgium. De Bleecker-Bleecker is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. Their clinical expertise encompasses Myasthenia Gravis and Pompe Disease.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Antwerpen, VLG, BE 

    Jonathan Baets practices practicing medicine in Antwerpen, Belgium. Mr. Baets is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Hajdu-Cheney Syndrome, Hereditary Sensory and Autonomic Neuropathy Type 2, Hereditary Sensory Neuropathy Type 1 (HSN1), and Acute Cerebellar Ataxia.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    UZ Leuven

    Leuven, VLG, BE 

    Koen Van Laere practices practicing medicine in Leuven, Belgium. Mr. Van Laere is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Prostatectomy, and Splenectomy.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    KU Leuven

    Leuven, VLG, BE 

    Jaak Jaeken practices practicing medicine in Leuven, Belgium. Jaeken is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses PMM2-Congenital Disorder of Glycosylation, RFT1-CDG, DPAGT1-CDG, and MPI-CDG.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Gent, VLG, BE 

    Jan De Bleecker practices practicing medicine in Gent, Belgium. De Bleecker is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Myasthenia Gravis, Myositis, Inclusion Body Myositis, and Frontotemporal Dementia.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    Jessa Ziekenhuis Hasselt

    't Hasselt, VLG, BE 

    Tom Cornelis practices practicing medicine in 't Hasselt, Belgium. Mr. Cornelis is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Sclerosing Mesenteritis, and Low Blood Pressure.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Leuven, VLG, BE 

    Bjorn Cools practices practicing medicine in Leuven, Belgium. Mr. Cools is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Tetralogy of Fallot, Pulmonary Atresia, Thrombectomy, and Stent Placement.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    KU Leuven

    Leuven, VLG, BE 

    Greet Hermans practices practicing medicine in Leuven, Belgium. Hermans is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Acute Respiratory Distress Syndrome (ARDS), Aspergillosis, Necrotizing Fasciitis, Severe Acute Respiratory Syndrome (SARS), and Lung Transplant.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required

    UZ Leuven

    Leuven, VLG, BE 

    David Cassiman practices practicing medicine in Leuven, Belgium. Mr. Cassiman is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Hereditary Fructose Intolerance, Hepatocerebral Degeneration, Enlarged Liver, Liver Transplant, and Pancreaticoduodenectomy.

    Experienced in Pompe Disease
    Experienced in Pompe Disease
    Referral may be required
    Antwerpen, VLG, BE 

    Alan Miranda practices practicing medicine in Antwerpen, Belgium. Mr. Miranda is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Huntington Disease, Movement Disorders, Dementia, and Obsessive-Compulsive Disorder (OCD).

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 21

    Last Updated: 11/08/2026

    What is the definition of Pompe Disease?

    Pompe disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially muscles, impairs their ability to function normally.

    Which doctors treat Pompe disease?     

    Pompe disease is usually treated by a multidisciplinary team of specialists. This care team can include a neurologist, who treats nerve and muscle problems, and a geneticist, who understands conditions caused by changes in genes. Cardiologists may help if the heart is affected, while pulmonologists help if breathing is a concern. Physical therapists and dietitians may also be part of the care team to assist with muscle strength and nutrition. 

    How is Pompe disease diagnosed?     

    Pompe disease is a rare genetic disorder, so diagnosing it can sometimes take time. Doctors usually start with blood tests to check the level of an enzyme called acid alpha-glucosidase (GAA). People with Pompe disease have low levels of this enzyme. If the blood test shows a problem, genetic testing is often done to confirm the diagnosis by looking for changes in the GAA gene. Sometimes, doctors may also do a muscle biopsy, where a small sample of muscle is taken and checked for signs of the disease. Early diagnosis is important for starting treatment as soon as possible. 

    How is Pompe disease treated? 

    Pompe disease is treated with enzyme replacement therapy (ERT). This treatment gives the body more of the enzyme that is missing or not working well. ERT is delivered through an IV and helps slow down the muscle damage caused by Pompe disease. Other treatments depend on how the disease affects the body. Physical therapy can help keep muscles strong and improve movement. Some people may need breathing support, like using a ventilator, if their lungs are affected. In severe cases, especially in infants, heart care may also be needed. A dietitian might help with nutrition, especially if eating or swallowing becomes hard.  

    What is the life expectancy for someone with Pompe disease? 

    Life expectancy for someone with Pompe disease depends on the type and when it’s diagnosed. Infantile-onset Pompe disease, which appears in babies, can be very serious. Without treatment, babies may not survive beyond their first year. With ERT and early diagnosis, some babies can live much longer. In late-onset Pompe disease, which appears later in life, life expectancy varies but can be improved with treatment. While Pompe disease is lifelong, early treatment and regular care can help people manage their symptoms and improve their quality of life.   

    When should I see a Pompe Disease doctor in VLG, BE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Pompe Disease doctor in VLG, BE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Pompe Disease doctor in VLG, BE?

    You can find a Pompe Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Pompe Disease doctors in VLG, BE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Pompe Disease doctors in VLG, BE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Pompe Disease doctor in VLG, BE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pompe Disease doctor search results page. 

    Why is it important to get a second opinion from a different Pompe Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Pompe Disease doctor in VLG, BE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Pompe Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Pompe Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Pompe Disease doctors in VLG, BE?

    Look for the filter feature on the left side of the Pompe Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Pompe Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Pompe Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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