The 20 Best Pompe Disease Doctors Near Me in Leiden, ZH

Find the Top Pompe Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 20 doctor with experience in Pompe Disease near Leiden, ZH. Of these, 19 are Experienced and 1 are Advanced.

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20 providers found
    Advanced in Pompe Disease

    Erik M. Van Der Wal-Van Der Zwaal
    Advanced in Pompe Disease

    Erik M. Van Der Wal-Van Der Zwaal
    Leiden, ZH, NL 
     (1.1 km away)

    Erik Van Der Wal-Van Der Zwaal practices practicing medicine in Leiden, Netherlands. Mr. Van Der Wal-Van Der Zwaal is rated as an Advanced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Pompe Disease, Facioscapulohumeral Muscular Dystrophy (FSHD), and Mosaicism.

    Experienced in Pompe Disease

    Robert M. Verdijk
    Experienced in Pompe Disease

    Robert M. Verdijk

    Lumc

    Leiden, ZH, NL 
     (0.3 km away)

    Robert Verdijk practices practicing medicine in Leiden, Netherlands. Verdijk is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Uveal Melanoma, Melanoma, Melanoma of the Eye, Vitrectomy, and Corneal Transplant.

    Experienced in Pompe Disease

    Arjan C. Lankester
    Experienced in Pompe Disease

    Arjan C. Lankester

    Lumc

    Leiden, ZH, NL 
     (0.3 km away)

    Arjan Lankester practices practicing medicine in Leiden, Netherlands. Mr. Lankester is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses ICF Syndrome, Severe Combined Immunodeficiency (SCID), Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Graft.

    Learn about our expert tiers
    Experienced in Pompe Disease

    Linda M. Van Den Berg
    Experienced in Pompe Disease

    Linda M. Van Den Berg
    Leiden, ZH, NL 
     (1.1 km away)

    Linda Van Den Berg practices practicing medicine in Leiden, Netherlands. Ms. Van Den Berg is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. Her clinical expertise encompasses Pompe Disease, Epidermoid Cyst, and HIV/AIDS.

    Experienced in Pompe Disease

    Herman S. Overkleeft
    Experienced in Pompe Disease

    Herman S. Overkleeft
    Leiden, ZH, NL 
     (1.1 km away)

    Herman Overkleeft practices practicing medicine in Leiden, Netherlands. Mr. Overkleeft is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, Multiple Myeloma, and Niemann-Pick Disease.

    Experienced in Pompe Disease

    Johannes M. Aerts
    Experienced in Pompe Disease

    Johannes M. Aerts
    Leiden, ZH, NL 
     (1.1 km away)

    Johannes Aerts practices practicing medicine in Leiden, Netherlands. Mr. Aerts is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, Acid Sphingomyelinase Deficiency (ASMD), and Niemann-Pick Disease.

    Experienced in Pompe Disease

    Marta E. Artola
    Experienced in Pompe Disease

    Marta E. Artola
    Leiden, ZH, NL 
     (1.1 km away)

    Marta Artola practices practicing medicine in Leiden, Netherlands. Ms. Artola is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, Phosphoglycerate Mutase Deficiency, and Pompe Disease.

    Experienced in Pompe Disease

    Jianbing Jiang
    Experienced in Pompe Disease

    Jianbing Jiang
    Leiden University Einsteinweg 55 2300 RA Leiden The Netherlands, 
    Leiden, ZH, NL 
     (1.1 km away)

    Jianbing Jiang practices practicing medicine in Leiden, Netherlands. Jiang is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. Their clinical expertise encompasses Pompe Disease and Farber Lipogranulomatosis.

    Experienced in Pompe Disease

    Robbert M. Bredius
    Experienced in Pompe Disease

    Robbert M. Bredius
    Leiden, ZH, NL 
     (1.1 km away)

    Robbert Bredius practices practicing medicine in Leiden, Netherlands. Mr. Bredius is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Severe Combined Immunodeficiency (SCID), Bare Lymphocyte Syndrome, Graft Versus Host Disease (GvHD), Livedo Reticularis, and Bone Marrow Transplant.

    Experienced in Pompe Disease

    Chi-lin Kuo
    Experienced in Pompe Disease

    Chi-lin Kuo
    Leiden, ZH, NL 
     (1.1 km away)

    Chi-lin Kuo practices practicing medicine in Leiden, Netherlands. Kuo is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, GM1 Gangliosidosis, and Krabbe Disease.

    Experienced in Pompe Disease

    Jurriaan A. Heming
    Experienced in Pompe Disease

    Jurriaan A. Heming
    Leiden, ZH, NL 
     (1.1 km away)

    Jurriaan Heming practices practicing medicine in Leiden, Netherlands. Heming is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Phosphoglycerate Mutase Deficiency and Pompe Disease.

    Experienced in Pompe Disease

    Wouter W. Kallemeijn
    Experienced in Pompe Disease

    Wouter W. Kallemeijn
    Leiden, ZH, NL 
     (1.1 km away)

    Wouter Kallemeijn practices practicing medicine in Leiden, Netherlands. Kallemeijn is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease Type 1, Krabbe Disease, and Gaucher Disease.

    Experienced in Pompe Disease

    Jeroen D. Codee
    Experienced in Pompe Disease

    Jeroen D. Codee
    Leiden, ZH, NL 
     (1.1 km away)

    Jeroen Codee practices practicing medicine in Leiden, Netherlands. Mr. Codee is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Staphylococcal Meningitis, Streptococcal Group A Infection, Methicillin-Resistant Staphylococcus Aureus (MRSA), and Streptococcal Group B Infection.

    Experienced in Pompe Disease

    Maria J. Ferraz
    Experienced in Pompe Disease

    Maria J. Ferraz
    Leiden, ZH, NL 
     (1.1 km away)

    Maria Ferraz practices practicing medicine in Leiden, Netherlands. Ms. Ferraz is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Gaucher Disease, Farber Lipogranulomatosis, Fabry Disease, and Niemann-Pick Disease.

    Experienced in Pompe Disease

    Rolf G. Boot
    Experienced in Pompe Disease

    Rolf G. Boot
    Leiden, ZH, NL 
     (1.1 km away)

    Rolf Boot practices practicing medicine in Leiden, Netherlands. Mr. Boot is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, Niemann-Pick Disease, and Krabbe Disease.

    Experienced in Pompe Disease

    Itamar Ronen
    Experienced in Pompe Disease

    Itamar Ronen
    Leiden, ZH, NL 
     (1.1 km away)

    Itamar Ronen practices practicing medicine in Leiden, Netherlands. Mr. Ronen is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Meningitis, Systemic Lupus Erythematosus (SLE), Encephalitis, and Primary Lateral Sclerosis.

    Experienced in Pompe Disease

    Paul P. Geurink
    Experienced in Pompe Disease

    Paul P. Geurink
    Leiden, ZH, NL 
     (1.1 km away)

    Paul Geurink practices practicing medicine in Leiden, Netherlands. Mr. Geurink is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. His clinical expertise encompasses Severe Acute Respiratory Syndrome (SARS), Mycetoma, Nocardiosis, and Pulmonary Nocardiosis.

    Experienced in Pompe Disease

    Gijsbert A. Van Der Marel
    Experienced in Pompe Disease

    Gijsbert A. Van Der Marel
    Leiden, ZH, NL 
     (1.1 km away)

    Gijsbert Van Der Marel practices practicing medicine in Leiden, Netherlands. Van Der Marel is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. Their clinical expertise encompasses GM1 Gangliosidosis, Streptococcal Group B Infection, Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), and Krabbe Disease.

    Experienced in Pompe Disease

    Bogdan I. Florea
    Experienced in Pompe Disease

    Bogdan I. Florea
    Leiden, ZH, NL 
     (1.1 km away)

    Bogdan Florea practices practicing medicine in Leiden, Netherlands. Mr. Florea is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. His clinical expertise encompasses Farber Lipogranulomatosis, Krabbe Disease, Multiple Myeloma, and GM1 Gangliosidosis.

    Experienced in Pompe Disease

    Hermien E. Kan
    Experienced in Pompe Disease

    Hermien E. Kan
    Leiden, ZH, NL 
     (1.1 km away)

    Hermien Kan practices practicing medicine in Leiden, Netherlands. Kan is rated as an Experienced expert by MediFind in the treatment of Pompe Disease. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Progressive External Ophthalmoplegia, and Myasthenia Gravis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 20

    Last Updated: 04/28/2026

    What is the definition of Pompe Disease?

    Pompe disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially muscles, impairs their ability to function normally.

    Which doctors treat Pompe disease?     

    Pompe disease is usually treated by a multidisciplinary team of specialists. This care team can include a neurologist, who treats nerve and muscle problems, and a geneticist, who understands conditions caused by changes in genes. Cardiologists may help if the heart is affected, while pulmonologists help if breathing is a concern. Physical therapists and dietitians may also be part of the care team to assist with muscle strength and nutrition. 

    How is Pompe disease diagnosed?     

    Pompe disease is a rare genetic disorder, so diagnosing it can sometimes take time. Doctors usually start with blood tests to check the level of an enzyme called acid alpha-glucosidase (GAA). People with Pompe disease have low levels of this enzyme. If the blood test shows a problem, genetic testing is often done to confirm the diagnosis by looking for changes in the GAA gene. Sometimes, doctors may also do a muscle biopsy, where a small sample of muscle is taken and checked for signs of the disease. Early diagnosis is important for starting treatment as soon as possible. 

    How is Pompe disease treated? 

    Pompe disease is treated with enzyme replacement therapy (ERT). This treatment gives the body more of the enzyme that is missing or not working well. ERT is delivered through an IV and helps slow down the muscle damage caused by Pompe disease. Other treatments depend on how the disease affects the body. Physical therapy can help keep muscles strong and improve movement. Some people may need breathing support, like using a ventilator, if their lungs are affected. In severe cases, especially in infants, heart care may also be needed. A dietitian might help with nutrition, especially if eating or swallowing becomes hard.  

    What is the life expectancy for someone with Pompe disease? 

    Life expectancy for someone with Pompe disease depends on the type and when it’s diagnosed. Infantile-onset Pompe disease, which appears in babies, can be very serious. Without treatment, babies may not survive beyond their first year. With ERT and early diagnosis, some babies can live much longer. In late-onset Pompe disease, which appears later in life, life expectancy varies but can be improved with treatment. While Pompe disease is lifelong, early treatment and regular care can help people manage their symptoms and improve their quality of life.   

    When should I see a Pompe Disease doctor near Leiden, ZH?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Pompe Disease doctor near Leiden, ZH?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Pompe Disease doctor near Leiden, ZH?

    You can find a Pompe Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Pompe Disease doctors near Leiden, ZH?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Pompe Disease doctors near Leiden, ZH?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Pompe Disease doctor near Leiden, ZH?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pompe Disease doctor search results page. 

    Why is it important to get a second opinion from a different Pompe Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Pompe Disease doctor near Leiden, ZH?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Pompe Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Pompe Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Pompe Disease doctors near Leiden, ZH?

    Look for the filter feature on the left side of the Pompe Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Pompe Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Pompe Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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