Hungarian National Systemic Amyloidosis Registry (AMYREG) - A Multi-Center, Longitudinal, Observational Survey of Patients With Systemic Amyloidosis
Status: Recruiting
Location: See all (12) locations...
Study Type: Observational
SUMMARY
This registry is an observational, multicenter, retrospective and prospective, non-pharmacological study designed to collect and analyze data from patients with systemic amyloidosis treated in inpatient and outpatient cardiology, hematology, nephrology, and neurology departments across Hungary. The registry was established in 2025.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:
• Diagnosis of systemic amyloidosis
• Patients aged ≥18 years at the time of enrollment
• Signed informed consent form by the patient
• Treating physician's consent
• Availability of accessible medical history
Locations
Other Locations
Hungary
Balatonfüredi Állami Szívkórház
RECRUITING
Balatonfüred
Budapesti Péterfy Sándor utcai Kórház - Rendelőintézet
RECRUITING
Budapest
Budapesti Szent Margit Kórház
RECRUITING
Budapest
Dél-budai Centrumkórház Szent Imre Egyetemi Oktatókórház
RECRUITING
Budapest
Dél-pesti Centrumkórház - Országos Hematológiai és Infektológiai Intézet
RECRUITING
Budapest
Department of Internal Medicine and Hematology, Semmelweis University
RECRUITING
Budapest
Észak-Pesti Centrumkórház - Honvédkórház
RECRUITING
Budapest
Gottsegen National Cardiovascular Center
RECRUITING
Budapest
Clinical Centre, University of Debrecen
RECRUITING
Debrecen
Pécsi Tudományegyetem
RECRUITING
Pécs
Szegedi Tudományegyetem
RECRUITING
Szeged
Fejér Vármegyei Szent György Egyetemi Oktató Kórház
RECRUITING
Székesfehérvár
Contact Information
Primary
Zoltan Pozsonyi, MD, PhD
pozsonyi.zoltan@semmelweis.hu
+36208250944
Backup
Daniella Nagy, MD
nagydana27@gmail.com
+36206701243
Time Frame
Start Date: 2026-03-08
Estimated Completion Date: 2028-05
Participants
Target number of participants: 300
Treatments
Systemic Amyloidosis Patients
Patients with systemic amyloidosis evaluated and treated at participating cardiology, nephrology, neurology and hematology departments in Hungary.
Related Therapeutic Areas
Sponsors
Leads: Semmelweis University