The 20 Best Proteus Syndrome Doctors in Germany

Find the Top Proteus Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 17 doctor with experience in Proteus Syndrome near Germany. Of these, 12 are Experienced and 5 are Advanced.

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17 providers found
    Advanced in Proteus Syndrome
    Advanced in Proteus Syndrome
    Referral may be required

    Knappschaft Kliniken Recklinghausen

    Recklinghausen, NW, DE 

    Fabio Capilli practices practicing medicine in Recklinghausen, Germany. Mr. Capilli is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Proteus-Like Syndrome, Proteus Syndrome, Acromicric Dysplasia, Aortic Valve Replacement, and Splenectomy.

    Advanced in Proteus Syndrome
    Advanced in Proteus Syndrome
    Referral may be required
    Head And Neck Surgery, 
    Augsburg, BY, DE 

    Christina Sauter practices practicing medicine in Augsburg, Germany. Ms. Sauter is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Cleft Tongue, Anal Cancer, Branchial Cleft Cyst, and Proteus-Like Syndrome.

    Advanced in Proteus Syndrome
    Advanced in Proteus Syndrome
    Referral may be required
    Hamburg, HH, DE 

    Denise Seeger-Yang practices practicing medicine in Hamburg, Germany. Ms. Seeger-Yang is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Proteus-Like Syndrome, Proteus Syndrome, Gyrate Atrophy of the Choroid and Retina, and Coloboma.

    Learn about our expert tiers
    Advanced in Proteus Syndrome
    Advanced in Proteus Syndrome
    Referral may be required
    Hamburg, HH, DE 

    Reinhard Friedrich practices practicing medicine in Hamburg, Germany. Mr. Friedrich is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, and Osteotomy.

    Advanced in Proteus Syndrome
    Advanced in Proteus Syndrome
    Referral may be required
    Goettingen, NI, DE 

    Julia Schmidt practices practicing medicine in Goettingen, Germany. Ms. Schmidt is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Distal Arthrogryposis Type 6, Distal Arthrogryposis, Supernumerary Nipples, and Hallermann-Streiff Syndrome.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Knut Brockmann practices practicing medicine in Goettingen, Germany. Mr. Brockmann is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Oculomotor Apraxia Cogan Type, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Hypotonia.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Head And Neck Surgery, 
    Heidelberg, BW, DE 

    Ralph Hohenberger practices practicing medicine in Heidelberg, Germany. Mr. Hohenberger is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His clinical expertise encompasses Sinus Cancer, Proteus-Like Syndrome, Proteus Syndrome, Cavernous Lymphangioma, and Endoscopy.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Goettingen, NI, DE 

    Silke Kaulfuss practices practicing medicine in Goettingen, Germany. Ms. Kaulfuss is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Supernumerary Nipples, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Heidelberg, BW, DE 

    Peter Plinkert practices practicing medicine in Heidelberg, Germany. Mr. Plinkert is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Adenoid Cystic Carcinoma, Choanal Atresia, Head and Neck Squamous Cell Carcinoma (HNSCC), Laryngectomy, and Endoscopy.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Felix Bremmer practices practicing medicine in Goettingen, Germany. Mr. Bremmer is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Testicular Cancer, Testicular Yolk Sac Tumor, Teratoma of the Mediastinum, Orchiectomy, and Tissue Biopsy.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Robert Koch Str. 42a, 
    Goettingen, NI, DE 

    Bernd Wollnik practices practicing medicine in Goettingen, Germany. Mr. Wollnik is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Achalasia Microcephaly Syndrome, Microcephaly, Oculomotor Apraxia Cogan Type, and Cortical Dysplasia.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Hugstetter Str. 55, 
    Freiburg, BW, DE 

    Martin Czerny practices practicing medicine in Freiburg, Germany. Mr. Czerny is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Aortic Dissection, Thoracic Aortic Aneurysm, Marfan Syndrome, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG).

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Hugstetter Str. 55, 
    Freiburg, BW, DE 

    Tobias Krauss practices practicing medicine in Freiburg, Germany. Mr. Krauss is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Proteus-Like Syndrome, Pancreaticoduodenectomy, and Transcatheter Aortic Valve Replacement (TAVR).

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Hugstetter Str. 55, 
    Freiburg, BW, DE 

    Matthias Siepe practices practicing medicine in Freiburg, Germany. Mr. Siepe is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Aortic Dissection, Thoracic Aortic Aneurysm, Aortic Regurgitation, Heart Bypass Surgery, and Heart Transplant.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Hamburg, HH, DE 

    Martin Spitzer practices practicing medicine in Hamburg, Germany. Mr. Spitzer is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Retinal Artery Occlusion, Retinal Detachment, CLN2 Disease, Vitrectomy, and Trabeculectomy.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Hamburg, HH, DE 

    Johannes Birtel practices practicing medicine in Hamburg, Germany. Mr. Birtel is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Pseudoxanthoma Elasticum, Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Vitrectomy, and Cataract Removal.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome
    Referral may be required
    Leipziger Str. 44, 
    Magdeburg, ST, DE 

    Martin Zenker practices practicing medicine in Magdeburg, Germany. Mr. Zenker is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses RASopathies, Noonan Syndrome, Syndactyly, and Aplasia Cutis Congenita.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 11/08/2026

    What is the definition of Proteus Syndrome?

    Proteus syndrome is a rare condition characterized by overgrowth of the bones, skin, and other tissues. Organs and tissues affected by the disease grow out of proportion to the rest of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body differently. Newborns with Proteus syndrome have few or no signs of the condition. Overgrowth becomes apparent between the ages of 6 and 18 months and gets more severe with age.

    When should I see a Proteus Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Proteus Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Proteus Syndrome doctor in Germany?

    You can find a Proteus Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Proteus Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Proteus Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Proteus Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Proteus Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Proteus Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Proteus Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Proteus Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Proteus Syndrome doctors in Germany?

    Look for the filter feature on the left side of the Proteus Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Proteus Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Proteus Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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