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    Last Updated: 01/09/2026

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    MediFind found 14 doctor with experience in Proteus Syndrome near Germany. Of these, 13 are Experienced and 1 are Advanced.

    Location
    LocationClose
    14 providers found
      Knut Brockmann
      Advanced in Proteus Syndrome
      Advanced in Proteus Syndrome
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Knut Brockmann practices in Goettingen, Germany. Mr. Brockmann is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Oculomotor Apraxia Cogan Type, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Charlie M Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome

      Knappschaft Kliniken Recklinghausen

      Recklinghausen, NW, DE 

      Fabio Capilli practices in Recklinghausen, Germany. Mr. Capilli is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Proteus Syndrome, Proteus-Like Syndrome, Acromicric Dysplasia, Aortic Valve Replacement, and Splenectomy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Head And Neck Surgery, 
      Augsburg, BY, DE 

      Christina Sauter practices in Augsburg, Germany. Ms. Sauter is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Cleft Tongue, Branchial Cleft Cyst, Anal Cancer, and Lymphangiomatosis.

      Learn about our expert tiers
      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Hamburg, HH, DE 

      Reinhard Friedrich practices in Hamburg, Germany. Mr. Friedrich is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, and Osteotomy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Goettingen, NI, DE 

      Julia Schmidt practices in Goettingen, Germany. Ms. Schmidt is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Supernumerary Nipples, Hallermann-Streiff Syndrome, and Clouston Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Goettingen, NI, DE 

      Silke Kaulfuss practices in Goettingen, Germany. Ms. Kaulfuss is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Supernumerary Nipples, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Department Of Otolaryngology And Head And Neck Surgery, 
      Heidelberg, BW, DE 

      Ralph Hohenberger practices in Heidelberg, Germany. Mr. Hohenberger is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Sinus Cancer, Proteus Syndrome, Proteus-Like Syndrome, Lymphangiomatosis, and Endoscopy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Hugstetter Str. 55, 
      Freiburg, BW, DE 

      Tobias Krauss practices in Freiburg, Germany. Mr. Krauss is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Von Hippel-Lindau (VHL) Syndrome, Hemangioblastoma, Proteus-Like Syndrome, Pancreaticoduodenectomy, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Heidelberg, BW, DE 

      Peter Plinkert practices in Heidelberg, Germany. Mr. Plinkert is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Adenoid Cystic Carcinoma, Choanal Atresia, Head and Neck Squamous Cell Carcinoma (HNSCC), Laryngectomy, and Endoscopy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Robert Koch Str. 42a, 
      Goettingen, NI, DE 

      Bernd Wollnik practices in Goettingen, Germany. Mr. Wollnik is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Bosma Arhinia Microphthalmia Syndrome, and Choanal Atresia.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Felix Bremmer practices in Goettingen, Germany. Mr. Bremmer is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Testicular Cancer, Testicular Yolk Sac Tumor, Teratoma of the Mediastinum, Orchiectomy, and Tissue Biopsy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Hugstetter Str. 55, 
      Freiburg, BW, DE 

      Martin Czerny practices in Freiburg, Germany. Mr. Czerny is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Aortic Dissection, Thoracic Aortic Aneurysm, Marfan Syndrome, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG).

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Hugstetter Str. 55, 
      Freiburg, BW, DE 

      Matthias Siepe practices in Freiburg, Germany. Mr. Siepe is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Aortic Dissection, Thoracic Aortic Aneurysm, Congenital Coronary Artery Malformation, Heart Bypass Surgery, and Heart Transplant.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are RASopathies, Noonan Syndrome, Syndactyly, and Acromicric Dysplasia.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-14 of 14

      Last Updated: 01/09/2026

      What is the definition of Proteus Syndrome?

      Proteus syndrome is a rare condition characterized by overgrowth of the bones, skin, and other tissues. Organs and tissues affected by the disease grow out of proportion to the rest of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body differently. Newborns with Proteus syndrome have few or no signs of the condition. Overgrowth becomes apparent between the ages of 6 and 18 months and gets more severe with age.

      When should I see a Proteus Syndrome doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Proteus Syndrome doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Proteus Syndrome doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Proteus Syndrome doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Proteus Syndrome doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Proteus Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Proteus Syndrome doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Proteus Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Proteus Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Proteus Syndrome doctors in Germany?

      Look for the filter feature on the left side of the Proteus Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Proteus Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Proteus Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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