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    Last Updated: 01/09/2026

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    MediFind found 19 doctor with experience in Proteus Syndrome near The United Kingdom. Of these, 17 are Experienced and 2 are Advanced.

    Location
    LocationClose
    19 providers found
      Advanced in Proteus Syndrome
      Advanced in Proteus Syndrome
      London, ENG, GB 

      Veronica Kinsler practices in London, United Kingdom. Ms. Kinsler is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Mosaicism, Phacomatosis Pigmentovascularis, and Aplasia Cutis Congenita.

      Advanced in Proteus Syndrome
      Advanced in Proteus Syndrome
      30 Guilford Street, 
      London, ENG, GB 

      Neil Sebire practices in London, United Kingdom. Mr. Sebire is rated as an Advanced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Gestational Trophoblastic Disease, Trophoblastic Tumor Placental Site, Hydatidiform Mole, Kidney Transplant, and Tissue Biopsy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Edinburgh, SCT, GB 

      Richard Ferguson practices in Edinburgh, United Kingdom. Mr. Ferguson is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Proteus-Like Syndrome, Proteus Syndrome, Acromicric Dysplasia, and Lacrimal Gland Tumor.

      Learn about our expert tiers
      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Great Ormond Street Hospital For Children, 
      London, ENG, GB 

      Satyamaanasa Polubothu practices in London, United Kingdom. Polubothu is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Their top areas of expertise are Giant Congenital Melanocytic Nevus, Phacomatosis Pigmentovascularis, Mosaicism, and Linear Nevus Sebaceous Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      London, ENG, GB 

      Oliver Marmoy practices in London, United Kingdom. Mr. Marmoy is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Proteus-Like Syndrome, Proteus Syndrome, CLN3 Disease, and CLN4 Disease.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Southwell St, 
      Bristol, ENG, GB 

      Ingrid Scurr practices in Bristol, United Kingdom. Ms. Scurr is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Cantu Syndrome, Hirsutism in Women, Increased Head Circumference, and Gingival Fibromatosis with Hypertrichosis.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Bristol, ENG, GB 

      Katharine Pike practices in Bristol, United Kingdom. Ms. Pike is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Stridor, Asthma, Asthma in Children, and Proteus-Like Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Queen Square, 
      London, ENG, GB 

      Kshitij Mankad practices in London, United Kingdom. Mankad is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Their top areas of expertise are Dandy-Walker Syndrome, Cortical Dysplasia, Posterior Fossa Tumor, Selective Mutism, and Rhizotomy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Lindsay Wilson practices in London, United Kingdom. Wilson is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Their top areas of expertise are Traumatic Brain Injury, Breast Enlargement In Males, Concussion, and Spinal and Bulbar Muscular Atrophy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome

      Great Ormond Street For Children NHS Foundation Trust

      London, ENG, GB 

      Angela Barnicoat practices in London, United Kingdom. Ms. Barnicoat is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Marden-Walker Syndrome, Fumarase Deficiency, Congenital Contractural Arachnodactyly, and Acheiropody.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Vincenzo Salpietro practices in London, United Kingdom. Mr. Salpietro is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Cortical Dysplasia, and Early Infantile Epileptic Encephalopathy.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      London, ENG, GB 

      Ebun Omoyinmi practices in London, United Kingdom. Omoyinmi is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Their top areas of expertise are Vasculitis, Mosaicism, Nicolaides-Baraitser Syndrome, and Familial Cold Autoinflammatory Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Conolly Suite Level 1, 601 Uxbridge Road, 
      London, ENG, GB 

      Sofia Pappa practices in London, United Kingdom. Ms. Pappa is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Schizophrenia, Insomnia, COVID-19, and Proteus Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      Upper Maudlin Street, 
      Bristol, ENG, GB 

      Georgia Spentzou practices in Bristol, United Kingdom. Ms. Spentzou is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Ventricular Fibrillation, Proteus-Like Syndrome, Proteus Syndrome, Pacemaker Implantation, and Heart Transplant.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      London, ENG, GB 

      Lara Olabi-Al practices in London, United Kingdom. Ms. Olabi-Al is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Mosaicism, Proteus Syndrome, and Proteus-Like Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      University College London Great Ormond Street, 
      London, ENG, GB 

      Paul Brogan practices in London, United Kingdom. Mr. Brogan is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Vasculitis, Polyarteritis Nodosa, Familial Cold Autoinflammatory Syndrome, and Neonatal Onset Multisystem Inflammatory Disease.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      UCL Great Ormond Street Institute Of Child Health, 30 Guildford Street, 
      London, ENG, GB 

      Sian Handley practices in London, United Kingdom. Ms. Handley is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Albinism, Holoprosencephaly, Proteus-Like Syndrome, and Proteus Syndrome.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      London, ENG, GB 

      Mandeep Kaler practices in London, United Kingdom. Kaler is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. Their top areas of expertise are Vaginal Bleeding in Pregnancy, Proteus Syndrome, Proteus-Like Syndrome, and Glanzmann Thrombasthenia.

      Experienced in Proteus Syndrome
      Experienced in Proteus Syndrome
      London, ENG, GB 

      Robert Henderson practices in London, United Kingdom. Mr. Henderson is rated as an Experienced expert by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Familial Exudative Vitreoretinopathy, CLN1 Disease, CLN3 Disease, CLN5 Disease, and Vitrectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-19 of 19

      Last Updated: 01/09/2026

      What is the definition of Proteus Syndrome?

      Proteus syndrome is a rare condition characterized by overgrowth of the bones, skin, and other tissues. Organs and tissues affected by the disease grow out of proportion to the rest of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body differently. Newborns with Proteus syndrome have few or no signs of the condition. Overgrowth becomes apparent between the ages of 6 and 18 months and gets more severe with age.

      When should I see a Proteus Syndrome doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Proteus Syndrome doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Proteus Syndrome doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Proteus Syndrome doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Proteus Syndrome doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Proteus Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Proteus Syndrome doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Proteus Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Proteus Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Proteus Syndrome doctors in The United Kingdom?

      Look for the filter feature on the left side of the Proteus Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Proteus Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Proteus Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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