The 20 Best Proteus Syndrome Doctors Near Me in California, US

Find the Top Proteus Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 24 doctor with experience in Proteus Syndrome near California, US. Of these, 21 are Experienced and 3 are Advanced.

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24 providers found
    Advanced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus Syndrome
    Medical Genetics | Pediatrics
    4650 W Sunset Blvd # Ms 43, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Matthew Deardorff is a Medical Genetics specialist and a Pediatrics provider in Los Angeles, California. Dr. Deardorff is rated as an Advanced provider by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Cornelia De Lange Syndrome, Coffin-Siris Syndrome, Mosaicism, and Beckwith-Wiedemann Syndrome.

    Advanced in Proteus Syndrome
    Medical Genetics
    Advanced in Proteus Syndrome
    Medical Genetics

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Christina Tise is a Medical Genetics provider in Palo Alto, California. Dr. Tise is rated as an Advanced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Zellweger Syndrome, 2q37 Deletion Syndrome, Urea Cycle Disorders (UCD), and Adrenoleukodystrophy (ALD).

    Advanced in Proteus Syndrome
    Medical Genetics
    Advanced in Proteus Syndrome
    Medical Genetics

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Anne Niehaus is a Medical Genetics provider in Palo Alto, California. Dr. Niehaus is rated as an Advanced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Microcephaly, Mckusick-Kaufman Syndrome, CHARGE Syndrome, and Hemihyperplasia.

    Learn about our expert tiers
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics

    Uc Regents Uci Dept Of Pediatrics

    101 The City Dr S, 
    Orange, CA 
    Languages Spoken:
    English

    Natalie Gallant is a Medical Genetics specialist and a Pediatrics provider in Orange, California. Dr. Gallant is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Microcephaly, and Microcephaly Deafness Syndrome.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    David Stevenson is a Medical Genetics specialist and a Pediatrics provider in Palo Alto, California. Dr. Stevenson is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, RASopathies, Costello Syndrome, and Deep Brain Stimulation.

    Experienced in Proteus Syndrome
    Medical Genetics
    Experienced in Proteus Syndrome
    Medical Genetics
    4650 W Sunset Blvd, Ms# 90, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Linda Randolph is a Medical Genetics provider in Los Angeles, California. Dr. Randolph is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Neurofibromatosis, Chromosome 11 Uniparental Disomy, Chromosome 6q Duplication, and Chromosome 8p Deletion.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Dena Matalon is a Medical Genetics specialist and a Pediatrics provider in Palo Alto, California. Dr. Matalon is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Campomelia Cumming Type, Microcephaly Deafness Syndrome, Coffin-Lowry Syndrome, and Microcephaly.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    8700 Beverly Blvd, 
    West Hollywood, CA 
    Languages Spoken:
    English

    Leslie Raffel is a Medical Genetics specialist and a Pediatrics provider in West Hollywood, California. Dr. Raffel is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Chromosome 13q Deletion, Smith-Magenis Syndrome, Miller-Dieker Syndrome, and HNRNPH2-Related Disorder.

    Experienced in Proteus Syndrome
    Medical Genetics
    Experienced in Proteus Syndrome
    Medical Genetics
    1201 W La Veta Ave, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Walla Al-Hertani is a Medical Genetics provider in Orange, California. Dr. Al-Hertani is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Von Gierke Disease, Classic Galactosemia, Phosphoglycerate Mutase Deficiency, and Glycogen Storage Disease Type 7. Dr. Al-Hertani is currently accepting new patients.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics

    UC Davis Medical Center MIND Institute

    2825 50th St, 
    Sacramento, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Kristin Herman is a Medical Genetics specialist and a Pediatrics provider in Sacramento, California. Dr. Herman is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Hypotonia.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    200 Ucla Medical Plz Ste 330, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Jeremy Woods is a Medical Genetics specialist and a Pediatrics provider in Los Angeles, California. Dr. Woods is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Keutel Syndrome, Van Maldergem Syndrome, Oculodentodigital Dysplasia, Caudal Appendage Deafness, and Deep Brain Stimulation.

    Experienced in Proteus Syndrome
    Experienced in Proteus Syndrome

    Genetics Center

    211 S Main St, 
    Orange, CA 
    Experience:
    53+ years
    Languages Spoken:
    English

    Touran Zadeh is a Pediatrics provider in Orange, California. Dr. Zadeh has been practicing medicine for over 53 years and is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Branchio-Oculo-Facial Syndrome (BOFS), Ring Chromosome 7, Ring Chromosome 18, and Ring Chromosome 14.

    Experienced in Proteus Syndrome
    Pediatrics
    Experienced in Proteus Syndrome
    Pediatrics

    Kaiser Point West Main Pharmacy 626

    1650 Response Rd, 
    Sacramento, CA 
    Languages Spoken:
    English

    Ariel Lee is a Pediatrics provider in Sacramento, California. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are MELAS Syndrome, Autism Spectrum Disorder, Acid Sphingomyelinase Deficiency (ASMD), and Kearns-Sayre Syndrome.

    Experienced in Proteus Syndrome
    Pediatrics | Medical Genetics
    Experienced in Proteus Syndrome
    Pediatrics | Medical Genetics

    Stanford Health Care

    5555 W Las Positas Blvd, 
    Pleasanton, CA 
    Languages Spoken:
    English

    Melanie Manning is a Pediatrics specialist and a Medical Genetics provider in Pleasanton, California. Dr. Manning is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Fetal Alcohol Syndrome (FAS), Microcephaly, Congenital Aplastic Anemia, and Autism Spectrum Disorder.

    Experienced in Proteus Syndrome
    Medical Genetics
    Experienced in Proteus Syndrome
    Medical Genetics
    7910 Frost St, Ste 200, 
    San Diego, CA 
    Languages Spoken:
    English

    Fred Levine is a Medical Genetics provider in San Diego, California. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Jacobsen Syndrome, Y Chromosome Infertility, Chromosome 6q Deletion, and 15q11.2 Microdeletion.

    Experienced in Proteus Syndrome
    Medical Genetics
    Experienced in Proteus Syndrome
    Medical Genetics

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Alison Schildt is a Medical Genetics provider in Palo Alto, California. Dr. Schildt is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are X-Linked Retinitis Pigmentosa (XLRP), Roberts Syndrome, Liebenberg Syndrome, and Brachydactyly Type C.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics

    Uc Regents

    300 Medical Plaza, 
    Los Angeles, CA 
    Languages Spoken:
    English, Hindi, Italian, Spanish
    Accepting New Patients
    Offers Telehealth

    Nicola Longo is a Medical Genetics specialist and a Pediatrics provider in Los Angeles, California. Dr. Longo is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Gaucher Disease Type 3, and Gaucher Disease Type 1. Dr. Longo is currently accepting new patients.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    2825 50th St, 
    Sacramento, CA 
    Languages Spoken:
    English

    Billur Moghaddam is a Medical Genetics specialist and a Pediatrics provider in Sacramento, California. Dr. Moghaddam is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Molybdenum Cofactor Deficiency (MoCD), Ehlers-Danlos Syndrome (EDS), Glycogen Storage Disease Type 3, and Dihydropteridine Reductase Deficiency.

    Experienced in Proteus Syndrome
    Pediatrics | Medical Genetics
    Experienced in Proteus Syndrome
    Pediatrics | Medical Genetics
    33608 Ortega Hwy, 
    San Juan Capistrano, CA 
    Languages Spoken:
    English

    Charles Strom is a Pediatrics specialist and a Medical Genetics provider in San Juan Capistrano, California. Dr. Strom is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Mosaicism, Chromosome 13q Deletion, Cockayne Syndrome Type 2, and Cockayne Syndrome Type 1.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics

    Uc Regents Uci Dept Of Pediatrics

    101 The City Dr S, 
    Orange, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Angela Myers is a Medical Genetics specialist and a Pediatrics provider in Orange, California. Dr. Myers is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Bowen-Conradi Syndrome, Costello Syndrome, Microcephaly Deafness Syndrome, and RASopathies.

    Showing 1-20 of 24

    Last Updated: 04/28/2026

    What is the definition of Proteus Syndrome?

    Proteus syndrome is a rare condition characterized by overgrowth of the bones, skin, and other tissues. Organs and tissues affected by the disease grow out of proportion to the rest of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body differently. Newborns with Proteus syndrome have few or no signs of the condition. Overgrowth becomes apparent between the ages of 6 and 18 months and gets more severe with age.

    When should I see a Proteus Syndrome doctor in California, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Proteus Syndrome doctor in California, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Proteus Syndrome doctors in California, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Proteus Syndrome doctors in California, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Proteus Syndrome doctor in California, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Proteus Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Proteus Syndrome doctor in California, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Proteus Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Proteus Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Proteus Syndrome doctors in California, US?

    Look for the filter feature on the left side of the Proteus Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Proteus Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Proteus Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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