The 20 Best Proteus Syndrome Doctors Near Me in newark, DE

Find the Top Proteus Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 3 doctor with experience in Proteus Syndrome near newark, DE. Of these, 2 are Advanced and 1 are Experienced.

Location
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3 providers found
    Advanced in Proteus Syndrome
    Advanced in Proteus Syndrome
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
     (12.3 miles away)
    800-416-4441
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Nina Powell-Hamilton is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Powell-Hamilton is rated as an Advanced provider by MediFind in the treatment of Proteus Syndrome. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, PIK3CA-Related Overgrowth Spectrum, Chromosome 13q Deletion, and Increased Head Circumference. Dr. Powell-Hamilton is board certified in American Board Of Medical Genetics And Genomics.

    Advanced in Proteus Syndrome

    Dr. Karen W. Gripp
    Medical Genetics
    Advanced in Proteus Syndrome

    Dr. Karen W. Gripp
    Medical Genetics
    Referral may be required

    Nemours DuPont Hospital For Children

    1600 Rockland Road, Department Of General Pediatrics, 
    Wilmington, DE 
     (12.3 miles away)
    302-651-4000
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Karen Gripp is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Gripp is rated as an Advanced provider by MediFind in the treatment of Proteus Syndrome. She is also highly rated in 109 other conditions, according to our data. Her clinical expertise encompasses Aase Syndrome, Retinopathy Pigmentary Mental Retardation, Early Infantile Epileptic Encephalopathy, and Cardiomyopathic Lentiginosis. Dr. Gripp is currently accepting new patients.

    Experienced in Proteus Syndrome

    Candace L. Muss, PA
    Physician Assistant | Medical Genetics
    Experienced in Proteus Syndrome

    Candace L. Muss, PA
    Physician Assistant | Medical Genetics
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
     (12.3 miles away)
    800-416-4441
    Languages Spoken:
    English
    See accepted insurances

    Candace Muss is a Physician Assistant and a Medical Genetics provider practicing medicine in Wilmington, Delaware. Muss, PA is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. She is also highly rated in 82 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, Mckusick-Kaufman Syndrome, Allan-Herndon-Dudley Syndrome, and Culler Jones Syndrome. Muss, PA is board certified in American Board Of Genetic Counseling.

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    Last Updated: 09/26/2026

    What is the definition of Proteus Syndrome?

    Proteus syndrome is a rare condition characterized by overgrowth of the bones, skin, and other tissues. Organs and tissues affected by the disease grow out of proportion to the rest of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body differently. Newborns with Proteus syndrome have few or no signs of the condition. Overgrowth becomes apparent between the ages of 6 and 18 months and gets more severe with age.

    When should I see a Proteus Syndrome doctor near newark, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Proteus Syndrome doctor near newark, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Proteus Syndrome doctor near newark, DE?

    You can find a Proteus Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Proteus Syndrome doctors near newark, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Proteus Syndrome doctors near newark, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Proteus Syndrome doctor near newark, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Proteus Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Proteus Syndrome doctor near newark, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Proteus Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Proteus Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Proteus Syndrome doctors near newark, DE?

    Look for the filter feature on the left side of the Proteus Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Proteus Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Proteus Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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