The 20 Best Proteus Syndrome Doctors Near Me in New York, US

Find the Top Proteus Syndrome Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 7 doctor with experience in Proteus Syndrome near New York, US. Of these, 4 are Experienced and 1 are Advanced.

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7 providers found
    Erica Fernandes
    Advanced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Advanced in Proteus Syndrome
    Medical Genetics | Pediatrics
    26901 76th Avenue, 
    New Hyde Park, NY 
    Languages Spoken:
    English

    Erica Fernandes is a Medical Genetics specialist and a Pediatrics provider in New Hyde Park, New York. Dr. Fernandes is rated as an Advanced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Microcephaly, Chromosome 13q Deletion, Bowen-Conradi Syndrome, and Floating-Harbor Syndrome.

    June K. Wu
    Plastic Surgery
    Plastic Surgery

    CUIMC/Herbert Irving Pavilion

    161 Fort Washington Avenue, Suite 5-511, 
    New York, NY 
    Languages Spoken:
    English

    June Wu, is a pediatric plastic surgeon/craniofacial surgeon. She is currently an Associate Professor of Surgery at CUIMC Columbia University Vagelos College of Physicians & Surgeons. She has a particular interest in Vascular Anomalies, which are congenital abnormalities of the blood and lymphatic systems that affect patients, and most of these conditions currently have no cure. Dr. Wu is a Co-Director of the NYP/Columbia University Irving Medical Center Interdisciplinary Vascular Anomalies Group and is the Co-Director of the Vascular Anomalies Basic and Translational Research Program that concentrates on understanding the pathophysiology of these lesions in order for biologically targeted therapeutics to be developed.Dr. Wu completed her undergraduate studies in chemistry at Princeton University, and graduated from Columbia University College of Physicians and Surgeons. She completed her residency in Plastic Surgery at Montefiore Medical Center, after which she completed a Craniofacial Fellowship, followed by a Vascular Anomalies Fellowship, at Boston Children’s Hospital. Dr. Wu is a member of multiple professional societies including the American Association of Plastic Surgeons, Plastic Surgery Research Council, American Society of Plastic Surgeons, American College of Surgeons, the International Society for the Study of Vascular Anomalies, and others. Dr. Wu is on the Scientific Committee of both the Plastic Surgery Research Council and the International Society for the Study of Vascular Anomalies. Dr. Wu is a member of the In-service committee for the Plastic Surgery Education Foundation. This committee is responsible for writing examination questions for the In-service examination that every plastic surgery resident in this country is required to take every year during training in order to assess their competency. Dr. Wu is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Vascular Birthmark, Tufted Angioma, Proteus Syndrome, Hemangioma, and Gastrostomy.

    CUIMC/Herbert Irving Pavilion

    161 Fort Washington Avenue, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Margaret T Lee, MD cares for children with blood disorders, such as anemias (sickle cell anemia, thalassemia, and iron deficiency), bleeding (including idiopathic thrombocytopenic purpura [ITP], hemophilia, and von Willebrand disease), and clotting disorders (such as deep vein thrombosis).Dr. Lee's area of interest is a rare group of diseases called vascular anomalies. There is relatively little known about these disorders, and the care of patients with vascular anomalies requires a multidisciplinary group of physicians from several specialties (dermatology, surgery, cardiology, neurology, and hematology/oncology)-all of whom are available at NewYork-Presbyterian/Morgan Stanley Children's Hospital. Hematologists play a role in the medical treatment of vascular tumors and the supportive care of clotting and bleeding complications that are associated with some types of vascular malformations. Dr. Lee is an active participant in the Vascular Anomalies Group at NYP/Morgan Stanley Children's Hospital, as well as the Vascular Anomalies Special Interest Group of the American Society of Pediatric Hematology/Oncology, which is looking at novel therapies for vascular anomalies and their complications. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Sickle Cell Disease, Hemoglobinopathy, Congenital Hemolytic Anemia, and Hemolytic Anemia.

    Learn about our expert tiers
    Experienced in Proteus Syndrome
    Medical Genetics
    Experienced in Proteus Syndrome
    Medical Genetics

    Icahn School Of Medicine At Mount Sinai

    1428 Madison Ave, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Mafalda Cabral-Dos is a Medical Genetics provider in New York, New York. Dr. Cabral-Dos is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Jackson-Weiss Syndrome, Ruvalcaba Syndrome, Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, and 2q37 Deletion Syndrome.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics

    Westchester Medical Center Advanced Physician Services PC

    19 Bradhurst Ave, 
    Hawthorne, NY 
    Languages Spoken:
    English

    David Kronn is a Medical Genetics specialist and a Pediatrics provider in Hawthorne, New York. Dr. Kronn is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. His top areas of expertise are Pompe Disease, Phenylketonuria (PKU), Krabbe Disease, and Gaucher Disease.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    3959 Broadway # North718, 
    New York, NY 
    Languages Spoken:
    English

    Elaine Pereira is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Pereira is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Chromosome 6q Deletion, Chromosome 13q Duplication, Trisomy 13, and Micrognathia.

    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    Experienced in Proteus Syndrome
    Medical Genetics | Pediatrics
    160 E 32nd St, 
    New York, NY 
    Languages Spoken:
    English

    Sivan Lewis is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Lewis is rated as an Experienced provider by MediFind in the treatment of Proteus Syndrome. Her top areas of expertise are Fragile X Syndrome, Weaver Syndrome, Perlman Syndrome, and Proteus-Like Syndrome.

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    Last Updated: 02/22/2026

    What is the definition of Proteus Syndrome?

    Proteus syndrome is a rare condition characterized by overgrowth of the bones, skin, and other tissues. Organs and tissues affected by the disease grow out of proportion to the rest of the body. The overgrowth is usually asymmetric, which means it affects the right and left sides of the body differently. Newborns with Proteus syndrome have few or no signs of the condition. Overgrowth becomes apparent between the ages of 6 and 18 months and gets more severe with age.

    When should I see a Proteus Syndrome doctor in New York, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Proteus Syndrome doctor in New York, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Proteus Syndrome doctors in New York, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Proteus Syndrome doctors in New York, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Proteus Syndrome doctor in New York, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Proteus Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Proteus Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Proteus Syndrome doctor in New York, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Proteus Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Proteus Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Proteus Syndrome doctors in New York, US?

    Look for the filter feature on the left side of the Proteus Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Proteus Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Proteus Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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