ProtoporphyriaSymptoms, Doctors, Treatments, Advances & More
Protoporphyria Overview
Learn About Protoporphyria
Condition 101 content is not available at this time, but we are continually updating the site. Please check back.
However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Francesca Granata practices practicing medicine in Milan, Italy. Ms. Granata is rated as an Elite expert by MediFind in the treatment of Protoporphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.
Gayle Ross practices practicing medicine in Melbourne, Australia. Ms. Ross is rated as an Elite expert by MediFind in the treatment of Protoporphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Porphyria Cutanea Tarda.
Jasmin Barman-Aksozen practices practicing medicine in Zurich, Switzerland. Ms. Barman-Aksozen is rated as an Elite expert by MediFind in the treatment of Protoporphyria. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Protoporphyria, Erythropoietic Protoporphyria, and Acute Hepatic Porphyria (AHP).
Summary: The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.
Summary: The purpose of this study is to collect information about the effects of EPP/XLP in adults and adolescents. This is an observational study in which participants will not receive any treatment. Study details include: * The study duration will be up to 6 months for each participant. * After Screening, participants will have a Baseline (Day 1) visit and return for visits every 4 weeks through 24 week...