Protoporphyria
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Learn About Protoporphyria

Condition 101 content is not available at this time, but we are continually updating the site. Please check back.

However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.

Who are the top Protoporphyria Local Doctors?
Elite in Protoporphyria
Elite in Protoporphyria
Milan, IT 

Francesca Granata practices practicing medicine in Milan, Italy. Ms. Granata is rated as an Elite expert by MediFind in the treatment of Protoporphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.

Elite in Protoporphyria
Elite in Protoporphyria
Parkville, VIC, AU 

Gayle Ross practices practicing medicine in Parkville, Australia. Ms. Ross is rated as an Elite expert by MediFind in the treatment of Protoporphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Porphyria Cutanea Tarda.

 
 
 
 
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Elite in Protoporphyria
Elite in Protoporphyria
Zurich, ZH, CH 

Jasmin Barman-Aksozen practices practicing medicine in Zurich, Switzerland. Ms. Barman-Aksozen is rated as an Elite expert by MediFind in the treatment of Protoporphyria. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Protoporphyria, Erythropoietic Protoporphyria, and Acute Hepatic Porphyria (AHP).

What are the latest Protoporphyria Clinical Trials?
Longitudinal Study of the Porphyrias

Summary: The objective of this protocol is to conduct a longitudinal multidisciplinary investigation of the human porphyrias including the natural history, morbidity, pregnancy outcomes, and mortality in people with these disorders.

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A Phase 3, Multicenter, Open-label, Long-term, Extension Study to Evaluate Safety and Tolerability of Oral Dersimelagon (MT-7117) in Subjects With Erythropoietic Protoporphyria (EPP) or X-Linked Protoporphyria (XLP)

Summary: To evaluate the long-term safety and tolerability of oral dersimelagon.