The 20 Best Pycnodysostosis Doctors in Netherlands

Find the Top Pycnodysostosis Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 17 doctor with experience in Pycnodysostosis near Netherlands. Of these, 12 are Experienced, 4 are Advanced and 1 are Distinguished.

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17 providers found
    Distinguished in Pycnodysostosis
    Distinguished in Pycnodysostosis
    Referral may be required
    Dordrecht, ZH, NL 

    Judith Renes practices practicing medicine in Dordrecht, Netherlands. Ms. Renes is rated as a Distinguished expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Small for Gestational Age, Pycnodysostosis, Russell-Silver Dwarfism, and Genital Dwarfism.

    Advanced in Pycnodysostosis
    Advanced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 

    Ineke Jansen practices practicing medicine in Amsterdam, Netherlands. Ms. Jansen is rated as an Advanced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Pycnodysostosis and Periodontitis.

    Advanced in Pycnodysostosis
    Advanced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 

    Nitash Soonawala-Zwaveling practices practicing medicine in Amsterdam, Netherlands. Soonawala-Zwaveling is rated as an Advanced expert by MediFind in the treatment of Pycnodysostosis. They are also highly rated in 14 other conditions, according to our data. Their clinical expertise encompasses Congenital Hypothyroidism, Hypothyroidism, Neonatal Hypothyroidism, Thyroidectomy, and Hormone Replacement Therapy (HRT).

    Learn about our expert tiers
    Advanced in Pycnodysostosis
    Advanced in Pycnodysostosis
    Referral may be required
    Rotterdam, ZH, NL 

    Theo Sas practices practicing medicine in Rotterdam, Netherlands. Sas is rated as an Advanced expert by MediFind in the treatment of Pycnodysostosis. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Turner Syndrome, Temple Syndrome, Intersex, Pediatric Growth Hormone Deficiency, and Hormone Replacement Therapy (HRT).

    Advanced in Pycnodysostosis
    Advanced in Pycnodysostosis
    Referral may be required
    Rotterdam, ZH, NL 

    Anita Koelega-Hokken practices practicing medicine in Rotterdam, Netherlands. Ms. Koelega-Hokken is rated as an Advanced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Small for Gestational Age, Prader-Willi Syndrome, C Syndrome, Hypopituitarism, and Hormone Replacement Therapy (HRT).

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Leiden, ZH, NL 

    Natasha Dijkstra-Appelman practices practicing medicine in Leiden, Netherlands. Ms. Dijkstra-Appelman is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Fibrous Dysplasia, Mccune-Albright Syndrome, Osteitis Fibrosa, Parathyroidectomy, and Hormone Replacement Therapy (HRT).

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Leiden, ZH, NL 

    Socrates Papapoulos practices practicing medicine in Leiden, Netherlands. Mr. Papapoulos is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Postmenopausal Osteoporosis, Osteoporosis, SOST-Related Sclerosing Bone Dysplasia, Brachydactyly Mononen Type, and Vertebroplasty.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Maria Zillikens practices practicing medicine in Rotterdam, Netherlands. Ms. Zillikens is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Osteoporosis, Hypophosphatemia, Osteoporosis-Pseudoglioma Syndrome, Salpingo-Oophorectomy, and Oophorectomy.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 

    Nathalie Bravenboer practices practicing medicine in Amsterdam, Netherlands. Ms. Bravenboer is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Fibrodysplasia Ossificans Progressiva, Osteogenesis Imperfecta, Osteoporosis, Osteotomy, and Hormone Replacement Therapy (HRT).

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Is A Professor And Training Program Director, 
    Nijmegen, GE, NL 

    Janielle Van Der Velden practices practicing medicine in Nijmegen, Netherlands. Ms. Van Der Velden is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Turner Syndrome, Intersex, Mosaicism, Oophorectomy, and Hormone Replacement Therapy (HRT).

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 

    Ozgur Kilic practices practicing medicine in Amsterdam, Netherlands. Kilic is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. Their clinical expertise encompasses Pycnodysostosis.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Denise Van De Laarschot practices practicing medicine in Rotterdam, Netherlands. Ms. Van De Laarschot is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Osteoporosis-Pseudoglioma Syndrome, Pycnodysostosis, Hypophosphatasia (HPP), and Osteoporosis.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 

    Teun De Vries practices practicing medicine in Amsterdam, Netherlands. De Vries is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Fibrodysplasia Ossificans Progressiva, Periodontitis, Myositis, Pycnodysostosis, and Osteotomy.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Rotterdam, ZH, NL 

    Danielle Van Der Kaay practices practicing medicine in Rotterdam, Netherlands. Van Der Kaay is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses Macrodactyly of the Foot, Pediatric Growth Hormone Deficiency, Growth Hormone Deficiency (GHD), and Hypopituitarism.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 

    Cemile Heijink-Savci practices practicing medicine in Amsterdam, Netherlands. Ms. Heijink-Savci is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. Her clinical expertise encompasses Pycnodysostosis, Upper Tract Urothelial Carcinoma (UTUC), Urothelial Cancer, Bladder Reconstruction, and Prostatectomy.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 

    Sabine Hannema practices practicing medicine in Amsterdam, Netherlands. Ms. Hannema is rated as an Experienced expert by MediFind in the treatment of Pycnodysostosis. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Intersex, Congenital Adrenal Hyperplasia (CAH), Partial Androgen Insensitivity Syndrome (PAIS), Hormone Replacement Therapy (HRT), and Oophorectomy.

    Experienced in Pycnodysostosis
    Experienced in Pycnodysostosis
    Referral may be required
    Amsterdam, NH, NL 
    212-351-2167
    Languages Spoken:
    English

    Peter Kloen practices practicing medicine in Amsterdam, Netherlands. Dr. Kloen is rated as an Experienced provider by MediFind in the treatment of Pycnodysostosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Dupuytren Contracture, Osteogenesis Imperfecta, Fibromatosis, Osteotomy, and Bone Graft.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-17 of 17

    Last Updated: 11/08/2026

    What is the definition of Pycnodysostosis?

    Pycnodysostosis impacts bone growth and is present from birth. Symptoms include a large head and high forehead, undeveloped facial bones, and short fingers and toes. People with Pycnodysostosis may have short stature, dental abnormalities, brittle bones, and delayed closure of the skull bones. Bones may become more brittle with age. Other complications like trouble breathing during sleep (sleep apnea) and bone infections may occur. Pycnodysostosis is caused by a CTSK gene that is not working correctly and inherited in an autosomal recessive pattern. The diagnosis of Pycnodysostosis is based on clinical examination and X-ray findings, and is confirmed by genetic testing.

    When should I see a Pycnodysostosis doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Pycnodysostosis doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Pycnodysostosis doctor in Netherlands?

    You can find a Pycnodysostosis doctor in any of the 10 largest U.S. cities by clicking below:

    Pycnodysostosis doctor near New York, NY
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    Pycnodysostosis doctor near Chicago, IL
    Pycnodysostosis doctor near Houston, TX
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    Pycnodysostosis doctor near Philadelphia, PA
    Pycnodysostosis doctor near Atlanta, GA
    Pycnodysostosis doctor near Boston, MA
    Pycnodysostosis doctor near Dallas, TX
    Pycnodysostosis doctor near San Jose, CA

    How does MediFind rank Pycnodysostosis doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Pycnodysostosis doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Pycnodysostosis doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pycnodysostosis doctor search results page. 

    Why is it important to get a second opinion from a different Pycnodysostosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Pycnodysostosis doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Pycnodysostosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Pycnodysostosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Pycnodysostosis doctors in Netherlands?

    Look for the filter feature on the left side of the Pycnodysostosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Pycnodysostosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Pycnodysostosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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