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    Last Updated: 01/09/2026

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    MediFind found 14 doctor with experience in Pyle Disease near Netherlands. Of these, 14 are Experienced.

    Location
    LocationClose
    14 providers found
      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Rotterdam, ZH, NL 

      Evert Van Velsen practices in Rotterdam, Netherlands. Mr. Van Velsen is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. His top areas of expertise are Follicular Thyroid Cancer, Thyroid Cancer, Papillary Thyroid Cancer, Renal Oncocytoma, and Thyroidectomy.

      Experienced in Pyle Disease
      Experienced in Pyle Disease

      Amsterdam UMC

      Amsterdam, NH, NL 

      Jiddeke Van De Kamp practices in Amsterdam, Netherlands. Van De Kamp is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Their top areas of expertise are X-Linked Creatine Deficiency, Corneal Dystrophy and Perceptive Deafness, Micrognathia, and West Syndrome.

      Experienced in Pyle Disease
      Experienced in Pyle Disease

      Erasmus MC

      Rotterdam, ZH, NL 

      Hanna Mandel practices in Rotterdam, Netherlands. Ms. Mandel is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Her top areas of expertise are Vici Syndrome, Mitochondrial Neurogastrointestinal Encephalopathy Disease, Lactic Acidosis, MELAS Syndrome, and Liver Transplant.

      Learn about our expert tiers
      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Desiree Smith practices in Amsterdam, Netherlands. Ms. Smith is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Her top areas of expertise are Trichothiodystrophy, Microcephaly, Achalasia Microcephaly Syndrome, and Pulmonary Alveolar Proteinosis.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Arend Bokenkamp practices in Amsterdam, Netherlands. Mr. Bokenkamp is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. His top areas of expertise are Schimke Immuno-Osseous Dysplasia, Dent Disease, Lowe Syndrome, Kidney Transplant, and Nephrectomy.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Quinten Waisfisz practices in Amsterdam, Netherlands. Mr. Waisfisz is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. His top areas of expertise are Fetal Akinesia Sequence, Birt-Hogg-Dube Syndrome, CACH Syndrome, and Increased Head Circumference.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Eduard Struys practices in Amsterdam, Netherlands. Mr. Struys is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. His top areas of expertise are L-2-Hydroxyglutaric Aciduria, Chondrosarcoma, West Syndrome, and Epilepsy in Children.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Marieke Verkleij practices in Amsterdam, Netherlands. Ms. Verkleij is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Her top areas of expertise are Cystic Fibrosis, Pyle Disease, Asthma, and Drug Induced Dyskinesia.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Mirjam Wamelink practices in Amsterdam, Netherlands. Wamelink is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Their top areas of expertise are Succinic Semialdehyde Dehydrogenase Deficiency, Classic Galactosemia, Primary Hyperoxaluria Type 2, and West Syndrome.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Taco Kuijpers practices in Amsterdam, Netherlands. Kuijpers is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Their top areas of expertise are Kawasaki Disease, Juvenile Idiopathic Arthritis (JIA), Vasculitis, Coronary Artery Aneurysm, and Bone Marrow Transplant.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Martijn Finken practices in Amsterdam, Netherlands. Mr. Finken is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. His top areas of expertise are Premature Infant, Congenital Adrenal Hyperplasia (CAH), Intersex, Small for Gestational Age, and Hormone Replacement Therapy (HRT).

      Experienced in Pyle Disease
      Experienced in Pyle Disease

      Erasmus MC

      Rotterdam, ZH, NL 

      Maria Zillikens practices in Rotterdam, Netherlands. Ms. Zillikens is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Her top areas of expertise are Osteoporosis, Hypophosphatemia, Osteoporosis-Pseudoglioma Syndrome, Salpingo-Oophorectomy, and Oophorectomy.

      Experienced in Pyle Disease
      Experienced in Pyle Disease
      Amsterdam, NH, NL 

      Erwin Jansen practices in Amsterdam, Netherlands. Mr. Jansen is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. His top areas of expertise are L-2-Hydroxyglutaric Aciduria, Succinic Semialdehyde Dehydrogenase Deficiency, Primary Hyperoxaluria Type 2, and Pyle Disease.

      Experienced in Pyle Disease
      Experienced in Pyle Disease

      Erasmus MC

      Rotterdam, ZH, NL 

      Serwet Demirdas practices in Rotterdam, Netherlands. Demirdas is rated as an Experienced expert by MediFind in the treatment of Pyle Disease. Their top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Phenylketonuria (PKU), and Mucolipidosis Type 4.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-14 of 14

      Last Updated: 01/09/2026

      What is the definition of Pyle Disease?

      Pyle disease is a disorder of the bones. Its hallmark feature is an abnormality of the long bones in the arms and legs in which the ends (metaphyses) of the bones are abnormally broad; the shape of the bones resembles a boat oar or paddle. The broad metaphyses are due to enlargement of the spongy inner layer of bone (trabecular bone). Although trabecular bone is expanded, the dense outermost layer of bone (cortical bone) is thinner than normal. As a result, the bones are fragile and fracture easily. The bone abnormalities in the legs commonly cause knock knees (genu valgum) in affected individuals.

      When should I see a Pyle Disease doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Pyle Disease doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Pyle Disease doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Pyle Disease doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Pyle Disease doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Pyle Disease doctor search results page. 

      Why is it important to get a second opinion from a different Pyle Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Pyle Disease doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Pyle Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Pyle Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Pyle Disease doctors in Netherlands?

      Look for the filter feature on the left side of the Pyle Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Pyle Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Pyle Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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