Assessing the Effectiveness of Customized Computer Activities on Reducing Stereotypies and Improving Independent Upper Extremity Motor Skills in Persons with Rett Syndrome
Status: Recruiting
Location: See location...
Intervention Type: Behavioral
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY
Using a tele-research approach, we will recruit, enroll, guide and support carers and participants to engage in computer based activities (modified virtual reality) with the primary outcome of reducing stereotypies and increasing independent arm and hand use and secondary outcome of improving quality of living. Because of our virtual approach, we are able to recruit from multiple countries and all states and territories of the USA.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 4
Maximum Age: 60
Healthy Volunteers: f
View:
• Rett syndrome,
• Understanding of cause and effect,
• Functional range of motion of arms to complete the movements needed to control the games.
Locations
United States
Washington, D.c.
Georgetown University School of Medicine
RECRUITING
Washington D.c.
Contact Information
Primary
Pamela S Diener, PhD, MS, OT/L
psd23@georgetown.edu
2403811763
Time Frame
Start Date: 2021-05-01
Estimated Completion Date: 2025-12-01
Participants
Target number of participants: 10
Treatments
Experimental: Participants
The study involves a pre-intervention phase (4 weeks long), followed by a cause and effect training phase (1 week long), followed by an intervention phase (12 weeks long), and ending with a post-intervention phase (4-weeks long) for a total of 5-6 months from start to finish.
Related Therapeutic Areas
Sponsors
Leads: Georgetown University
Collaborators: International Rett Syndrome Foundation Rettsyndrome.org