The 20 Best Rett Syndrome Doctors Near Me

Find the Top Rett Syndrome Experts and Specialists

The 20 Best Rett Syndrome Doctors Near Me

Last Updated: 02/22/2026

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MediFind found 2859 doctor with experience in Rett Syndrome. Of these, 2369 are Experienced, 363 are Advanced, 92 are Distinguished and 35 are Elite.

Location
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2,859 providers found
    Daniel Tarquinio
    Elite in Rett Syndrome
    Elite in Rett Syndrome

    Northeast Georgia Physicians Group Neurology

    4445 South Lee Street, Suite 310, 
    Buford, GA 
    Experience:
    22+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Tarquinio is a Neurologist in Buford, Georgia. Dr. Tarquinio has been practicing medicine for over 22 years and is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Epilepsy, Seizures, and Absence Seizure. Dr. Tarquinio is currently accepting new patients.

    Steven A. Skinner
    Elite in Rett Syndrome
    Medical Genetics
    Elite in Rett Syndrome
    Medical Genetics

    Greenwood Genetic Center– Greenwood

    106 Gregor Mendel Circle, 
    Greenwood, SC 
    Languages Spoken:
    English
    Accepting New Patients

    Steven Skinner is a Medical Genetics provider in Greenwood, South Carolina. Dr. Skinner is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Increased Head Circumference, Angelman Syndrome, and Hypotonia. Dr. Skinner is currently accepting new patients.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Vanderbilt University

    2200 Childrens Way, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Neul is a Pediatric Neurologist in Nashville, Tennessee. Dr. Neul is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, Angelman Syndrome, and SHORT Syndrome.

    Learn about our expert tiers
    Elite in Rett Syndrome
    Pediatrics
    Elite in Rett Syndrome
    Pediatrics

    Children's Of Alabama

    1600 7th Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English

    Alan Percy is a Pediatrics provider in Birmingham, Alabama. Dr. Percy is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, West Syndrome, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    15 Hospital Avenue, 
    Nedlands, WA, AU 

    Helen Leonard practices in Nedlands, Australia. Ms. Leonard is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, CDKL5 Deficiency Disorder, West Syndrome, Spasmus Nutans, and Gastrostomy.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Siena, IT 

    Alessandra Renieri practices in Siena, Italy. Ms. Renieri is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Chromosome 13q Deletion, Alport Syndrome, Tissue Biopsy, and Kidney Transplant.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Via Fratelli Cervi 93, 
    Milan, IT 

    Nicoletta Landsberger practices in Milan, Italy. Ms. Landsberger is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, West Syndrome, CDKL5 Deficiency Disorder, and Spasmus Nutans.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    David Lieberman is a Pediatric Neurologist in Boston, Massachusetts. Dr. Lieberman is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Aphantasia, Autism Spectrum Disorder, and Mosaicism.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Edinburgh, SCT, GB 

    Stuart Cobb practices in Edinburgh, United Kingdom. Mr. Cobb is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Congenital Myasthenic Syndrome, Autism Spectrum Disorder, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Office

    3401 Civic Center Blvd Fl 10, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Eric Marsh is a Pediatric Neurologist in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Elite in Rett Syndrome

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
    Languages Spoken:
    English

    Bernhard Suter is a Neurologist in Houston, Texas. Dr. Suter is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, West Syndrome, Spasmus Nutans, and FOXG1 Syndrome.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Esplugues De Llobregat, CT, ES 

    Judith Armstrong practices in Esplugues De Llobregat, Spain. Ms. Armstrong is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Rubinstein-Taybi Syndrome, Ectodermal Dysplasia Neurosensory Deafness, and Occipital Horn Syndrome.

    Elite in Rett Syndrome
    Elite in Rett Syndrome

    Iss

    Rome, IT 

    Bianca De Filippis practices in Rome, Italy. Ms. De Filippis is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Post-Traumatic Stress Disorder (PTSD), CDKL5 Deficiency Disorder, and Spasmus Nutans.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Children's Hospital Colorado

    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English

    Timothy Benke is a Pediatric Neurologist in Aurora, Colorado. Dr. Benke is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, West Syndrome, Spasmus Nutans, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Heydemann is a Pediatric Neurologist in Chicago, Illinois. Dr. Heydemann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Siena, IT 

    Ilaria Meloni practices in Siena, Italy. Ms. Meloni is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, FOXG1 Syndrome, COVID-19, and CDKL5 Deficiency Disorder.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Siena, IT 

    Joussef Hayek practices in Siena, Italy. Hayek is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Their top areas of expertise are Rett Syndrome, Nicolaides-Baraitser Syndrome, Acheiropody, and Autism Spectrum Disorder.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Winnipeg, MB, CA 

    Mojgan Rastegar practices in Winnipeg, Canada. Rastegar is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. Their top areas of expertise are Rett Syndrome, Ring Chromosome 6, Fetal Alcohol Syndrome (FAS), and Autism Spectrum Disorder.

    Elite in Rett Syndrome
    Neurology
    Elite in Rett Syndrome
    Neurology

    Bloomington/Edina Clinic

    3601 Minnesota Dr Ste 200, 
    Edina, MN 
    Languages Spoken:
    English

    Tim Feyma is a Neurologist in Edina, Minnesota. Dr. Feyma is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression.

    Elite in Rett Syndrome
    Elite in Rett Syndrome
    30 Flemington Road, 
    Parkville, VIC, AU 

    John Christodoulou practices in Parkville, Australia. Mr. Christodoulou is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Perrault Syndrome, Leigh Syndrome, Holocarboxylase Synthetase Deficiency, and Gastrostomy.

    Showing 1-20 of 2,859

    Last Updated: 02/22/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Rett Syndrome doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors near me?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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