The 20 Best Rhabdoid Tumor Predisposition Syndrome Doctors in Netherlands

Find the Top Rhabdoid Tumor Predisposition Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 2 doctor with experience in Rhabdoid Tumor Predisposition Syndrome near Netherlands. Of these, 2 are Experienced.

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2 providers found
    Experienced in Rhabdoid Tumor Predisposition Syndrome

    Jan J. Molenaar
    Experienced in Rhabdoid Tumor Predisposition Syndrome

    Jan J. Molenaar
    Uppsalalaan 8, 3584, CT, 
    Utrecht, UT, NL 

    Jan Molenaar practices practicing medicine in Utrecht, Netherlands. Molenaar is rated as an Experienced expert by MediFind in the treatment of Rhabdoid Tumor Predisposition Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Gliomatosis Cerebri, and Rhabdomyosarcoma.

    Experienced in Rhabdoid Tumor Predisposition Syndrome

    Marcel J. Kool
    Experienced in Rhabdoid Tumor Predisposition Syndrome

    Marcel J. Kool

    Erasmus MC

    Rotterdam, ZH, NL 

    Marcel Kool practices practicing medicine in Rotterdam, Netherlands. Mr. Kool is rated as an Experienced expert by MediFind in the treatment of Rhabdoid Tumor Predisposition Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Medulloblastoma, Ependymoma, Embryonal Tumor with Multilayered Rosettes, and Brain Tumor.

    Learn about our expert tiers
    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 04/28/2026

    What is the definition of Rhabdoid Tumor Predisposition Syndrome?

    Limb-girdle muscular dystrophy type 2A (LGMD2A) is an autosomal recessive limb-girdle muscular dystrophy characterized by progressive, symmetrical weakness of the proximal limb and girdle muscles (mainly those around the hips and shoulders) without heart involvement or intellectual disability. The condition is caused by genetic changes in the CAPN3 gene. Type 2A is the most common form of limb-girdle muscular dystrophy, accounting for about 30 percent of cases. LGMD2A is also known as primary calpainopathy. Calpainopathies are diseases caused by genetic changes in the CAPN3 gene and can be autosomal recessive or autosomal dominant. Pelvifemoral limb-girdle muscular dystrophy (also known as Leyden-Mobius LGMD) is the most frequently observed subtype. In these cases, muscle weakness is first evident in the pelvic girdle and later in the shoulder girdle. In most cases, muscle weakness is first evident in the shoulder girdle and later in the pelvic girdle; HyperCKemia is usually observed in children or young individuals. In most cases, those affected do not have symptoms, just high levels of creatine kinase in their blood.

    When should I see an Rhabdoid Tumor Predisposition Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Rhabdoid Tumor Predisposition Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Rhabdoid Tumor Predisposition Syndrome doctor in Netherlands?

    You can find an Rhabdoid Tumor Predisposition Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Rhabdoid Tumor Predisposition Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rhabdoid Tumor Predisposition Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Rhabdoid Tumor Predisposition Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rhabdoid Tumor Predisposition Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rhabdoid Tumor Predisposition Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Rhabdoid Tumor Predisposition Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rhabdoid Tumor Predisposition Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rhabdoid Tumor Predisposition Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rhabdoid Tumor Predisposition Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the Rhabdoid Tumor Predisposition Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Rhabdoid Tumor Predisposition Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rhabdoid Tumor Predisposition Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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