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    Last Updated: 10/30/2025

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    MediFind found 46 doctor with experience in Sandhoff Disease near Germany. Of these, 39 are Experienced, 5 are Advanced and 2 are Distinguished.

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    46 providers found
      Distinguished in Sandhoff Disease

      Andreas Hahn
      Distinguished in Sandhoff Disease

      Andreas Hahn
      Bernhard Nocht Str. 74, 
      Hamburg, HH, DE 

      Andreas Hahn practices in Hamburg, Germany. Mr. Hahn is rated as a Distinguished expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Pompe Disease, Noonan Syndrome, Sandhoff Disease, Deep Brain Stimulation, and Hormone Replacement Therapy (HRT).

      Distinguished in Sandhoff Disease

      Michael L. Strupp
      Distinguished in Sandhoff Disease

      Michael L. Strupp
      Munich, BY, DE 

      Michael Strupp practices in Munich, Germany. Mr. Strupp is rated as a Distinguished expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Vertigo, Brown Syndrome, Benign Paroxysmal Positional Vertigo, Niemann-Pick Disease, and Stent Placement.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Sandhoff Disease

      Kyriakos Martakis
      Advanced in Sandhoff Disease

      Kyriakos Martakis
      Koeln, NW, DE 

      Kyriakos Martakis practices in Koeln, Germany. Mr. Martakis is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Spastic Diplegia Infantile Type, and Cerebral Palsy.

      Learn about our expert tiers
      Advanced in Sandhoff Disease

      Susanne A. Schneider
      Advanced in Sandhoff Disease

      Susanne A. Schneider
      Arnold Heller Str 3, 
      Kiel, SH, DE 

      Susanne Schneider practices in Kiel, Germany. Ms. Schneider is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Hallervorden-Spatz Disease, Pantothenate Kinase-Associated Neurodegeneration, Chorea, Deep Brain Stimulation, and Cataract Removal.

      Advanced in Sandhoff Disease

      Matthis Synofzik
      Advanced in Sandhoff Disease

      Matthis Synofzik
      Otfried Müller Str. 23, 
      Tuebingen, BW, DE 

      Matthis Synofzik practices in Tuebingen, Germany. Mr. Synofzik is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Drug Induced Dyskinesia, Frontotemporal Dementia, Acute Cerebellar Ataxia, Spinocerebellar Ataxia, and Deep Brain Stimulation.

      Advanced in Sandhoff Disease

      Jens Claassen
      Advanced in Sandhoff Disease

      Jens Claassen
      Essen, NW, DE 

      Jens Claassen practices in Essen, Germany. Mr. Claassen is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Sandhoff Disease, Brown Syndrome, Spinocerebellar Ataxia Type 6, and Drug Induced Dyskinesia.

      Advanced in Sandhoff Disease

      Nicolina Goldschagg
      Advanced in Sandhoff Disease

      Nicolina Goldschagg
      Munich, BY, DE 

      Nicolina Goldschagg practices in Munich, Germany. Ms. Goldschagg is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Vertigo, Benign Paroxysmal Positional Vertigo, Sandhoff Disease, and Brown Syndrome.

      Ingeborg Mann-Krageloh
      Experienced in Sandhoff Disease

      Ingeborg Mann-Krageloh
      Experienced in Sandhoff Disease

      Ingeborg Mann-Krageloh
      Tuebingen, BW, DE 

      Ingeborg Mann-Krageloh practices in Tuebingen, Germany. Ms. Mann-Krageloh is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

      Regina Trollmann
      Experienced in Sandhoff Disease

      Regina Trollmann
      Experienced in Sandhoff Disease

      Regina Trollmann
      Erlangen, BY, DE 

      Regina Trollmann practices in Erlangen, Germany. Ms. Trollmann is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Cerebral Hypoxia, Spinal Muscular Atrophy (SMA), Myoclonic Epilepsy, and Primary Lateral Sclerosis.

      Experienced in Sandhoff Disease

      Jan Kern
      Experienced in Sandhoff Disease

      Jan Kern
      Tuebingen, BW, DE 

      Jan Kern practices in Tuebingen, Germany. Kern is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Their top areas of expertise are Sandhoff Disease, Tay-Sachs Disease, Gangliosidosis, and Dysarthria.

      Experienced in Sandhoff Disease

      Maximilian Frosch
      Experienced in Sandhoff Disease

      Maximilian Frosch
      Freiburg, BW, DE 

      Maximilian Frosch practices in Freiburg, Germany. Mr. Frosch is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Sandhoff Disease, Tay-Sachs Disease, Gangliosidosis, CACH Syndrome, and Deep Brain Stimulation.

      Experienced in Sandhoff Disease

      Godwin K. Dogbevia
      Experienced in Sandhoff Disease

      Godwin K. Dogbevia
      Luebeck, SH, DE 

      Godwin Dogbevia practices in Luebeck, Germany. Mr. Dogbevia is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Incontinentia Pigmenti, Sandhoff Disease, Tay-Sachs Disease, and Gangliosidosis.

      Experienced in Sandhoff Disease

      Dennis-dominik Rosmus
      Experienced in Sandhoff Disease

      Dennis-dominik Rosmus
      Leipzig, SN, DE 

      Dennis-dominik Rosmus practices in Leipzig, Germany. Rosmus is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Their top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Sandhoff Disease, and Tay-Sachs Disease.

      Experienced in Sandhoff Disease

      Samuel Groeschel
      Experienced in Sandhoff Disease

      Samuel Groeschel
      Tuebingen, BW, DE 

      Samuel Groeschel practices in Tuebingen, Germany. Mr. Groeschel is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

      Experienced in Sandhoff Disease

      Stefanie Beck-Wodl
      Experienced in Sandhoff Disease

      Stefanie Beck-Wodl
      Tuebingen, BW, DE 

      Stefanie Beck-Wodl practices in Tuebingen, Germany. Ms. Beck-Wodl is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Coffin-Siris Syndrome, and Micrognathia.

      Experienced in Sandhoff Disease

      Vidiyaah Santhanakumaran
      Experienced in Sandhoff Disease

      Vidiyaah Santhanakumaran
      Tuebingen, BW, DE 

      Vidiyaah Santhanakumaran practices in Tuebingen, Germany. Santhanakumaran is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Their top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gangliosidosis.

      Experienced in Sandhoff Disease

      Gabriele Hahn
      Experienced in Sandhoff Disease

      Gabriele Hahn
      Dresden, SN, DE 

      Gabriele Hahn practices in Dresden, Germany. Ms. Hahn is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Her top areas of expertise are Osteomyelitis in Children, Chronic Recurrent Multifocal Osteomyelitis, Osteomyelitis, Prolactinoma, and Thrombectomy.

      Experienced in Sandhoff Disease

      Joerg M. Buescher
      Experienced in Sandhoff Disease

      Joerg M. Buescher
      Freiburg, BW, DE 

      Joerg Buescher practices in Freiburg, Germany. Buescher is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Their top areas of expertise are Sandhoff Disease, Acute Myeloid Leukemia (AML), Tay-Sachs Disease, and Gangliosidosis.

      Experienced in Sandhoff Disease

      Andreas Hermann
      Experienced in Sandhoff Disease

      Andreas Hermann
      Otto Hahn Str. 6, 
      Dortmund, NW, DE 

      Andreas Hermann practices in Dortmund, Germany. Mr. Hermann is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Chorea-Acanthocytosis, Mcleod Neuroacanthocytosis Syndrome, and Gastrostomy.

      Experienced in Sandhoff Disease

      Johannes J. Letzkus
      Experienced in Sandhoff Disease

      Johannes J. Letzkus
      Freiburg, BW, DE 

      Johannes Letzkus practices in Freiburg, Germany. Mr. Letzkus is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. His top areas of expertise are Sandhoff Disease, Tay-Sachs Disease, and Gangliosidosis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 46

      Last Updated: 10/30/2025

      What is the definition of Sandhoff Disease?

      Sandhoff disease is a rare inherited disorder that progressively destroys nerve cells (neurons) in the brain and spinal cord (central nervous system). This condition is classified into three major types based on the age at which signs and symptoms first appear: infantile, juvenile, and adult.

      When should I see a Sandhoff Disease doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sandhoff Disease doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Sandhoff Disease doctor in Germany?

      You can find a Sandhoff Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Sandhoff Disease doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sandhoff Disease doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sandhoff Disease doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sandhoff Disease doctor search results page. 

      Why is it important to get a second opinion from a different Sandhoff Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sandhoff Disease doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sandhoff Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sandhoff Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sandhoff Disease doctors in Germany?

      Look for the filter feature on the left side of the Sandhoff Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sandhoff Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Sandhoff Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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