The 20 Best Sandhoff Disease Doctors in Germany

Find the Top Sandhoff Disease Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 47 doctor with experience in Sandhoff Disease near Germany. Of these, 40 are Experienced, 5 are Advanced and 2 are Distinguished.

Location
LocationClose
47 providers found
    Distinguished in Sandhoff Disease

    Andreas Hahn
    Distinguished in Sandhoff Disease

    Andreas Hahn
    Referral may be required
    Bernhard Nocht Str. 74, 
    Hamburg, HH, DE 

    Andreas Hahn practices practicing medicine in Hamburg, Germany. Mr. Hahn is rated as a Distinguished expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Spinal Muscular Atrophy (SMA), Noonan Syndrome, Deep Brain Stimulation, and Hormone Replacement Therapy (HRT).

    Distinguished in Sandhoff Disease

    Michael L. Strupp
    Distinguished in Sandhoff Disease

    Michael L. Strupp
    Referral may be required
    Munich, BY, DE 

    Michael Strupp practices practicing medicine in Munich, Germany. Mr. Strupp is rated as a Distinguished expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Vertigo, Brown Syndrome, Benign Paroxysmal Positional Vertigo, and Niemann-Pick Disease.

    Advanced in Sandhoff Disease

    Kyriakos Martakis
    Advanced in Sandhoff Disease

    Kyriakos Martakis
    Referral may be required
    Koeln, NW, DE 

    Kyriakos Martakis practices practicing medicine in Koeln, Germany. Mr. Martakis is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Spastic Diplegia Infantile Type, and Cerebral Palsy.

    Learn about our expert tiers
    Advanced in Sandhoff Disease

    Susanne A. Schneider
    Advanced in Sandhoff Disease

    Susanne A. Schneider
    Referral may be required
    Arnold Heller Str 3, 
    Kiel, SH, DE 

    Susanne Schneider practices practicing medicine in Kiel, Germany. Ms. Schneider is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Hallervorden-Spatz Disease, Pantothenate Kinase-Associated Neurodegeneration, Chorea, Deep Brain Stimulation, and Cataract Removal.

    Advanced in Sandhoff Disease

    Matthis Synofzik
    Advanced in Sandhoff Disease

    Matthis Synofzik
    Referral may be required
    Otfried Müller Str. 23, 
    Tuebingen, BW, DE 

    Matthis Synofzik practices practicing medicine in Tuebingen, Germany. Mr. Synofzik is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Frontotemporal Dementia, Acute Cerebellar Ataxia, Spinocerebellar Ataxia, and Deep Brain Stimulation.

    Advanced in Sandhoff Disease

    Jens Claassen
    Advanced in Sandhoff Disease

    Jens Claassen
    Referral may be required
    Essen, NW, DE 

    Jens Claassen practices practicing medicine in Essen, Germany. Mr. Claassen is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Sandhoff Disease, Brown Syndrome, Spinocerebellar Ataxia Type 6, and Acute Cerebellar Ataxia.

    Advanced in Sandhoff Disease

    Nicolina Goldschagg
    Advanced in Sandhoff Disease

    Nicolina Goldschagg
    Referral may be required
    Munich, BY, DE 

    Nicolina Goldschagg practices practicing medicine in Munich, Germany. Ms. Goldschagg is rated as an Advanced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Vertigo, Benign Paroxysmal Positional Vertigo, Sandhoff Disease, and Brown Syndrome.

    Experienced in Sandhoff Disease

    Ingeborg Mann-Kraegeloh
    Experienced in Sandhoff Disease

    Ingeborg Mann-Kraegeloh
    Referral may be required
    Tuebingen, BW, DE 

    Ingeborg Mann-Kraegeloh practices practicing medicine in Tuebingen, Germany. Ms. Mann-Kraegeloh is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

    Experienced in Sandhoff Disease

    Regina Trollmann
    Experienced in Sandhoff Disease

    Regina Trollmann
    Referral may be required
    Erlangen, BY, DE 

    Regina Trollmann practices practicing medicine in Erlangen, Germany. Ms. Trollmann is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Cerebral Hypoxia, Myoclonic Epilepsy, and Primary Lateral Sclerosis.

    Experienced in Sandhoff Disease

    Maximilian Frosch
    Experienced in Sandhoff Disease

    Maximilian Frosch
    Referral may be required
    Freiburg, BW, DE 

    Maximilian Frosch practices practicing medicine in Freiburg, Germany. Mr. Frosch is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. His clinical expertise encompasses Sandhoff Disease, Tay-Sachs Disease, Gangliosidosis, CACH Syndrome, and Deep Brain Stimulation.

    Experienced in Sandhoff Disease

    Jan Kern
    Experienced in Sandhoff Disease

    Jan Kern
    Referral may be required
    Tuebingen, BW, DE 

    Jan Kern practices practicing medicine in Tuebingen, Germany. Kern is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. Their clinical expertise encompasses Sandhoff Disease, Tay-Sachs Disease, Gangliosidosis, and Spasticity.

    Experienced in Sandhoff Disease

    Godwin K. Dogbevia
    Experienced in Sandhoff Disease

    Godwin K. Dogbevia
    Referral may be required
    Luebeck, SH, DE 

    Godwin Dogbevia practices practicing medicine in Luebeck, Germany. Mr. Dogbevia is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Incontinentia Pigmenti, Sandhoff Disease, Tay-Sachs Disease, and Gangliosidosis.

    Experienced in Sandhoff Disease

    Samuel Groeschel
    Experienced in Sandhoff Disease

    Samuel Groeschel
    Referral may be required
    Tuebingen, BW, DE 

    Samuel Groeschel practices practicing medicine in Tuebingen, Germany. Mr. Groeschel is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

    Experienced in Sandhoff Disease

    Stefanie Beck-Wodl
    Experienced in Sandhoff Disease

    Stefanie Beck-Wodl
    Referral may be required
    Tuebingen, BW, DE 

    Stefanie Beck-Wodl practices practicing medicine in Tuebingen, Germany. Ms. Beck-Wodl is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Coffin-Siris Syndrome, and Micrognathia.

    Experienced in Sandhoff Disease

    Vidiyaah Santhanakumaran
    Experienced in Sandhoff Disease

    Vidiyaah Santhanakumaran
    Referral may be required
    Tuebingen, BW, DE 

    Vidiyaah Santhanakumaran practices practicing medicine in Tuebingen, Germany. Santhanakumaran is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gangliosidosis.

    Experienced in Sandhoff Disease

    Jutta Gartner
    Experienced in Sandhoff Disease

    Jutta Gartner
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Jutta Gartner practices practicing medicine in Goettingen, Germany. Ms. Gartner is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, Multiple Sulfatase Deficiency, Zellweger Syndrome, CACH Syndrome, and Thrombectomy.

    Experienced in Sandhoff Disease

    Maja Von Der Hagen
    Experienced in Sandhoff Disease

    Maja Von Der Hagen
    Referral may be required
    Dresden, SN, DE 

    Maja Von Der Hagen practices practicing medicine in Dresden, Germany. Ms. Von Der Hagen is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Nemaline Myopathy, Achalasia Microcephaly Syndrome, and Thrombectomy.

    Experienced in Sandhoff Disease

    Andreas Hermann
    Experienced in Sandhoff Disease

    Andreas Hermann
    Referral may be required
    Otto Hahn Str. 6, 
    Dortmund, NW, DE 

    Andreas Hermann practices practicing medicine in Dortmund, Germany. Mr. Hermann is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Chorea-Acanthocytosis, Mcleod Neuroacanthocytosis Syndrome, and Gastrostomy.

    Experienced in Sandhoff Disease

    Gabriele Hahn
    Experienced in Sandhoff Disease

    Gabriele Hahn
    Referral may be required
    Dresden, SN, DE 

    Gabriele Hahn practices practicing medicine in Dresden, Germany. Ms. Hahn is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Chronic Recurrent Multifocal Osteomyelitis, Osteomyelitis in Children, Osteomyelitis, Prolactinoma, and Thrombectomy.

    Experienced in Sandhoff Disease

    Lukas K. Amann
    Experienced in Sandhoff Disease

    Lukas K. Amann
    Referral may be required
    Freiburg, BW, DE 

    Lukas Amann practices practicing medicine in Freiburg, Germany. Mr. Amann is rated as an Experienced expert by MediFind in the treatment of Sandhoff Disease. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Wallerian Degeneration, Sandhoff Disease, and Tay-Sachs Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 47

    Last Updated: 06/30/2026

    What is the definition of Sandhoff Disease?

    Sandhoff disease is a rare inherited disorder that progressively destroys nerve cells (neurons) in the brain and spinal cord (central nervous system). This condition is classified into three major types based on the age at which signs and symptoms first appear: infantile, juvenile, and adult.

    When should I see a Sandhoff Disease doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Sandhoff Disease doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Sandhoff Disease doctor in Germany?

    You can find a Sandhoff Disease doctor in any of the 10 largest U.S. cities by clicking below:

    Sandhoff Disease doctor near New York, NY
    Sandhoff Disease doctor near Los Angeles, CA
    Sandhoff Disease doctor near Chicago, IL
    Sandhoff Disease doctor near Houston, TX
    Sandhoff Disease doctor near Phoenix, AZ
    Sandhoff Disease doctor near Philadelphia, PA
    Sandhoff Disease doctor near Atlanta, GA
    Sandhoff Disease doctor near Boston, MA
    Sandhoff Disease doctor near Dallas, TX
    Sandhoff Disease doctor near San Jose, CA

    How does MediFind rank Sandhoff Disease doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Sandhoff Disease doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Sandhoff Disease doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sandhoff Disease doctor search results page. 

    Why is it important to get a second opinion from a different Sandhoff Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Sandhoff Disease doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Sandhoff Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Sandhoff Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Sandhoff Disease doctors in Germany?

    Look for the filter feature on the left side of the Sandhoff Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Sandhoff Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Sandhoff Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.