Assessment of Patient Experience With Auto-Captioning Glasses in NF2-Related-Schwannomatosis
The goal of this clinical trial is to investigate the usability of auto-captioning glasses for adults diagnosed with NF2-related schwannomatosis and loss of hearing. The primary objective of the study is to determine the feasibility and acceptability of auto-captioning glasses in this population. Participants will be asked to: * Use the glasses at their discretion for 12 weeks * Report their feedback at 3 and 12 week timepoints via online surveys and remote qualitative interviews
• Diagnosis of NF2-SWN by 2022 revised criteria
• Age 18 years or older at time of consent
• Willing and able to sign informed consent
• Access to a mobile phone with current operating software (i.e., iOS 16+ or Android 12+) and an internet connection
• Does not require prescription glasses to communicate others (e.g. may use reading glasses or similar)
• Resident of the U.S.
• English-speaking