The 20 Best Seckel Syndrome Doctors in The United States

Find the Top Seckel Syndrome Experts and Specialists

The 20 Best Seckel Syndrome Doctors in The United States

Last Updated: 02/22/2026

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MediFind found 322 doctor with experience in Seckel Syndrome near The United States. Of these, 233 are Experienced, 86 are Advanced and 3 are Distinguished.

Location
LocationClose
322 providers found
    James W. Shine
    Experienced in Seckel Syndrome
    Family Medicine
    Experienced in Seckel Syndrome
    Family Medicine

    BHMA Inpatient Services- JCCH

    1901 S Shady St, Ste A, 
    Mountain City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Shine is rated as an Experienced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Osteoglophonic Dysplasia, Mulibrey Nanism, Wiedemann-Steiner Syndrome, and Dubowitz Syndrome.

    Dana Fletcher
    Advanced in Seckel Syndrome
    Endocrinology
    Advanced in Seckel Syndrome
    Endocrinology

    Doctor's Approach Dermatology & Laser Center PC

    2900 Hannah Blvd Ste 114, 
    East Lansing, MI 
    Languages Spoken:
    English

    Dana Fletcher is an Endocrinologist in East Lansing, Michigan. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. Her top areas of expertise are Hypothyroidism, Obesity in Children, Cornelia De Lange Syndrome, and Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1).

    Advanced in Seckel Syndrome
    Pediatric Cardiology
    Advanced in Seckel Syndrome
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist in Minneapolis, Minnesota. Dr. Lohr is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Craniofrontonasal Dysplasia.

    Learn about our expert tiers
    Advanced in Seckel Syndrome
    Endocrinology
    Advanced in Seckel Syndrome
    Endocrinology

    Clinical Cancer Center-Froedtert Hospital

    8800 W Doyne Ave, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Gilbert Fareau is an Endocrinologist in Milwaukee, Wisconsin. Dr. Fareau is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Thyroid Cancer, Papillary Thyroid Cancer, Medullary Thyroid Carcinoma, Anaplastic Thyroid Cancer, and Thyroidectomy.

    Bhavin Shastri
    Advanced in Seckel Syndrome
    Endocrinology
    Advanced in Seckel Syndrome
    Endocrinology

    Aurora Endocrinology

    N84W16889 Menomonee Ave, 
    Menomonee Falls, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Bhavin Shastri is an Endocrinologist in Menomonee Falls, Wisconsin. Dr. Shastri is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Osteoporosis, Postmenopausal Osteoporosis, Type 1 Diabetes (T1D), and Cockayne Syndrome.

    Andrew Sakiewicz
    Advanced in Seckel Syndrome
    Advanced in Seckel Syndrome

    West Valley Medical Building

    20455 Lorain Road, 
    Fairview Park, OH 
    Languages Spoken:
    English, German

    Andrew Sakiewicz is a Cardiologist in Fairview Park, Ohio. Dr. Sakiewicz is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Coronary Heart Disease, Angina, Atrial Fibrillation, and Atherosclerosis.

    Chun Lim
    Advanced in Seckel Syndrome
    Neurology
    Advanced in Seckel Syndrome
    Neurology

    BIDMC Department Of Neurology

    330 Brookline Avenue, Kirstein 253, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Chun Lim is a Neurologist in Boston, Massachusetts. Dr. Lim is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Cerebellar Degeneration, Lewy Body Dementia (LBD), Memory Loss, and Alzheimer's Disease.

    Distinguished in Seckel Syndrome
    Distinguished in Seckel Syndrome

    UF Health Comprehensive Skull Base Surgery Center

    1505 SW Archer Rd, 
    Gainesville, FL 
    Languages Spoken:
    English

    Jennifer Miller is a Pediatrics provider in Gainesville, Florida. Dr. Miller is rated as a Distinguished provider by MediFind in the treatment of Seckel Syndrome. Her top areas of expertise are Prader-Willi Syndrome, Robinow Syndrome, Russell-Silver Dwarfism, and SHORT Syndrome.

    Distinguished in Seckel Syndrome
    Endocrinology
    Distinguished in Seckel Syndrome
    Endocrinology

    Tufts Medical Center

    800 Washington St, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Ronald Lechan is an Endocrinologist in Boston, Massachusetts. Dr. Lechan is rated as a Distinguished provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Pituitary Tumor, Prolactinoma, Pena-Shokeir Syndrome Type 2, and Prader-Willi Syndrome.

    Distinguished in Seckel Syndrome
    Medical Genetics | Neurology
    Distinguished in Seckel Syndrome
    Medical Genetics | Neurology

    The Association Of University Physicians

    1701 Columbia Rd, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Fuki Hisama is a Medical Genetics specialist and a Neurologist in Seattle, Washington. Dr. Hisama is rated as a Distinguished provider by MediFind in the treatment of Seckel Syndrome. Her top areas of expertise are Werner Syndrome, Cockayne Syndrome, Coffin-Siris Syndrome, and Cornelia De Lange Syndrome.

    Advanced in Seckel Syndrome
    Pediatric Endocrinology
    Advanced in Seckel Syndrome
    Pediatric Endocrinology

    SSM Health Cardinal Glennon Children's Hospital

    1465 S Grand Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Susan Myers is a Pediatric Endocrinologist in Saint Louis, Missouri. Dr. Myers is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. Her top areas of expertise are Prader-Willi Syndrome, Sjogren-Larsson Syndrome, Wiedemann-Steiner Syndrome, and Robinow Syndrome.

    Advanced in Seckel Syndrome
    Pediatric Endocrinology
    Advanced in Seckel Syndrome
    Pediatric Endocrinology

    University Of Texas Medical Branch

    301 University Blvd, 
    Galveston, TX 
    Languages Spoken:
    English

    Phillip Lee is a Pediatric Endocrinologist in Galveston, Texas. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Prader-Willi Syndrome, Meier-Gorlin Syndrome, Pena-Shokeir Syndrome Type 2, and Coffin-Siris Syndrome.

    Advanced in Seckel Syndrome
    Pediatric Endocrinology
    Advanced in Seckel Syndrome
    Pediatric Endocrinology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
    Languages Spoken:
    English

    Michael Tansey is a Pediatric Endocrinologist in Iowa City, Iowa. Dr. Tansey is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), Prader-Willi Syndrome, Seckel Syndrome, and Wiedemann-Steiner Syndrome.

    Advanced in Seckel Syndrome
    Pediatric Endocrinology
    Advanced in Seckel Syndrome
    Pediatric Endocrinology

    Erin K. Torson PhD LLC

    55 Dillmont Dr Ste 100, 
    Columbus, OH 
    Languages Spoken:
    English

    Jennifer Dyer is a Pediatric Endocrinologist in Columbus, Ohio. Dr. Dyer is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Russell-Silver Dwarfism, SHORT Syndrome, and Rommen Mueller Sybert Syndrome.

    Advanced in Seckel Syndrome
    Interventional Cardiology
    Advanced in Seckel Syndrome
    Interventional Cardiology

    Kansas Physician Group

    2600 N Woodlawn Blvd, 
    Wichita,, KS 
    Languages Spoken:
    English

    Mohamed Elmassry is an Interventional Cardiologist in Wichita,, Kansas. Dr. Elmassry is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Cardiac Tamponade, Seckel Syndrome, Sinus of Valsalva Aneurysm, Pulmonary Edema, and Cardiac Ablation.

    Advanced in Seckel Syndrome
    Advanced in Seckel Syndrome

    Office

    1301 River St Ste 201, 
    Valatie,, NY 
    Languages Spoken:
    English

    Princewill Ogbuji is a Cardiologist in Valatie,, New York. Dr. Ogbuji is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Coronary Heart Disease, Atherosclerosis, Idiopathic Edema, and Angina.

    Advanced in Seckel Syndrome
    Advanced in Seckel Syndrome

    University Of Kansas Hospital Transplant Center

    3901 Rainbow Blvd, 
    Kansas City, KS 
    Languages Spoken:
    English

    Kevin Mulhern is a Cardiologist in Kansas City, Kansas. Dr. Mulhern is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Familial Progressive Cardiac Conduction Defect, Tetralogy of Fallot, Atrial Fibrillation, Cardiac Ablation, and Pacemaker Implantation.

    Advanced in Seckel Syndrome
    Cardiology
    Advanced in Seckel Syndrome
    Cardiology

    Endocrinology-University Medicine Associates-Dominion Crossing

    21727 W Interstate 10 Ste 103, 
    San Antonio, TX 
    Languages Spoken:
    English

    Pankaj Madan is a Cardiologist in San Antonio, Texas. Dr. Madan is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Eisenmenger Syndrome, Ebstein's Anomaly, Tetralogy of Fallot, and Bicuspid Aortic Valve.

    Advanced in Seckel Syndrome
    Endocrinology
    Advanced in Seckel Syndrome
    Endocrinology

    Office

    500 Poplar St Ste 300, 
    South Charleston, WV 
    Languages Spoken:
    English
    Offers Telehealth

    Greta Guyer is an Endocrinologist in South Charleston, West Virginia. Dr. Guyer is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. Her top areas of expertise are Hypothyroidism, Hyperthyroidism, Peripheral Neuropathy, and Type 2 Diabetes (T2D).

    Advanced in Seckel Syndrome
    Endocrinology
    Advanced in Seckel Syndrome
    Endocrinology

    Essentia Health-Duluth Clinic 2nd Street (Building C)

    502 E 2nd St, 
    Duluth, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Nahi Kiblawi is an Endocrinologist in Duluth, Minnesota. Dr. Kiblawi is rated as an Advanced provider by MediFind in the treatment of Seckel Syndrome. His top areas of expertise are Klinefelter Syndrome, Hyperparathyroidism, Obesity in Children, and Addison's Disease.

    Showing 1-20 of 322

    Last Updated: 02/22/2026

    What is the definition of Seckel Syndrome?

    Seckel syndrome is a genetic disorder characterized by growth retardation, very small head (microcephaly( with intellectual disability , and unique facial features such as large eyes, beak-like nose, narrow face, and receding lower jaw. Some people with Seckel syndrome may also have blood abnormalities. Seckel syndrome is inherited in an autosomal recessive fashion.

    When should I see an Seckel Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Seckel Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Seckel Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Seckel Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Seckel Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Seckel Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Seckel Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Seckel Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Seckel Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Seckel Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Seckel Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Seckel Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Seckel Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Seckel Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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