The 20 Best Sialic Acid Storage Disease Doctors in Germany

Find the Top Sialic Acid Storage Disease Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 35 doctor with experience in Sialic Acid Storage Disease near Germany. Of these, 29 are Experienced and 6 are Advanced.

Location
LocationClose
35 providers found
    Advanced in Sialic Acid Storage Disease

    Roger Sandhoff
    Advanced in Sialic Acid Storage Disease

    Roger Sandhoff
    Referral may be required
    Heidelberg, BW, DE 

    Roger Sandhoff practices practicing medicine in Heidelberg, Germany. Mr. Sandhoff is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Sialic Acid Storage Disease, Sialuria, Lamellar Ichthyosis, and Farber Lipogranulomatosis.

    Advanced in Sialic Acid Storage Disease

    Roland J. Schauer
    Advanced in Sialic Acid Storage Disease

    Roland J. Schauer
    Referral may be required
    Kiel, SH, DE 

    Roland Schauer practices practicing medicine in Kiel, Germany. Mr. Schauer is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Galactosialidosis, Sialuria, Sialic Acid Storage Disease, and Sialidosis.

    Advanced in Sialic Acid Storage Disease

    Rudiger Horstkorte
    Advanced in Sialic Acid Storage Disease

    Rudiger Horstkorte
    Referral may be required
    Ernst Grube Str. 40, 
    Halle, NI, DE 

    Rudiger Horstkorte practices practicing medicine in Halle, Germany. Horstkorte is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Inclusion Body Myopathy 2, Sialuria, Sialic Acid Storage Disease, and Cramp-Fasciculation Syndrome.

    Learn about our expert tiers
    Advanced in Sialic Acid Storage Disease

    Matthias Zielonka
    Advanced in Sialic Acid Storage Disease

    Matthias Zielonka
    Referral may be required
    Heidelberg, BW, DE 

    Matthias Zielonka practices practicing medicine in Heidelberg, Germany. Mr. Zielonka is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Argininosuccinic Aciduria, Citrullinemia, Urea Cycle Disorders (UCD), Visceromegaly, and Liver Transplant.

    Advanced in Sialic Acid Storage Disease

    Ulrike Mutze
    Advanced in Sialic Acid Storage Disease

    Ulrike Mutze
    Referral may be required
    Heidelberg, BW, DE 

    Ulrike Mutze practices practicing medicine in Heidelberg, Germany. Ms. Mutze is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Isovaleric Acidemia, Vitamin B12 Deficiency, Vitamin B12 Deficiency Anemia, and Phenylketonuria (PKU).

    Advanced in Sialic Acid Storage Disease

    Antje Banning
    Advanced in Sialic Acid Storage Disease

    Antje Banning
    Referral may be required
    Giessen, HE, DE 

    Antje Banning practices practicing medicine in Giessen, Germany. Ms. Banning is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Aspartylglucosaminuria, CLN1 Disease, CLN3 Disease, and CLN4 Disease.

    Peter J. Lang

    Peter J. Lang
    Referral may be required
    Tuebingen, BW, DE 

    Peter Lang practices practicing medicine in Tuebingen, Germany. Mr. Lang is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Graft Versus Host Disease (GvHD), Acute Lymphoblastic Leukemia (ALL), and Bone Marrow Transplant.

    Experienced in Sialic Acid Storage Disease

    Alexander W. Fischer
    Experienced in Sialic Acid Storage Disease

    Alexander W. Fischer
    Referral may be required
    Hamburg, HH, DE 

    Alexander Fischer practices practicing medicine in Hamburg, Germany. Mr. Fischer is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His clinical expertise encompasses Obesity, Sialuria, Sialic Acid Storage Disease, and Wolman Disease.

    Experienced in Sialic Acid Storage Disease

    Georg F. Hoffmann
    Experienced in Sialic Acid Storage Disease

    Georg F. Hoffmann
    Referral may be required
    Im Neuenheimer Field 669, 
    Heidelberg, BW, DE 

    Georg Hoffmann practices practicing medicine in Heidelberg, Germany. Mr. Hoffmann is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Urea Cycle Disorders (UCD), Isovaleric Acidemia, Vitamin B12 Deficiency, Propionic Acidemia, and Liver Transplant.

    Experienced in Sialic Acid Storage Disease

    Stefan Kolker
    Experienced in Sialic Acid Storage Disease

    Stefan Kolker
    Referral may be required
    Heidelberg, BW, DE 

    Stefan Kolker practices practicing medicine in Heidelberg, Germany. Mr. Kolker is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Methylmalonyl Coenzyme A Mutase Deficiency, Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Liver Transplant, and Kidney Transplant.

    Experienced in Sialic Acid Storage Disease

    Konrad Sandhoff
    Experienced in Sialic Acid Storage Disease

    Konrad Sandhoff
    Referral may be required
    Bonn, NW, DE 

    Konrad Sandhoff practices practicing medicine in Bonn, Germany. Mr. Sandhoff is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Farber Lipogranulomatosis, and Gangliosidosis.

    Experienced in Sialic Acid Storage Disease

    Jessica Hoffmann
    Experienced in Sialic Acid Storage Disease

    Jessica Hoffmann
    Referral may be required
    Leipziger Str. 44, 
    Magdeburg, ST, DE 

    Jessica Hoffmann practices practicing medicine in Magdeburg, Germany. Ms. Hoffmann is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Her clinical expertise encompasses Acute Arterial Occlusion of Kidney, Vascular Dementia, Sialuria, and Sialic Acid Storage Disease.

    Experienced in Sialic Acid Storage Disease

    Guido Kohla
    Experienced in Sialic Acid Storage Disease

    Guido Kohla
    Referral may be required
    Berlin, BE, DE 

    Guido Kohla practices practicing medicine in Berlin, Germany. Mr. Kohla is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His clinical expertise encompasses Sialuria, Sialic Acid Storage Disease, Blood Clots, and Hemophilia A.

    Experienced in Sialic Acid Storage Disease

    Friederike Burger
    Experienced in Sialic Acid Storage Disease

    Friederike Burger
    Referral may be required
    Heidelberg, BW, DE 

    Friederike Burger practices practicing medicine in Heidelberg, Germany. Burger is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Sialuria, and Sialic Acid Storage Disease.

    Experienced in Sialic Acid Storage Disease

    Skadi Beblo
    Experienced in Sialic Acid Storage Disease

    Skadi Beblo
    Referral may be required
    Leipzig, SN, DE 

    Skadi Beblo practices practicing medicine in Leipzig, Germany. Ms. Beblo is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Glutaric Acidemia Type 1, and Isovaleric Acidemia.

    Experienced in Sialic Acid Storage Disease

    Markus Ries
    Experienced in Sialic Acid Storage Disease

    Markus Ries
    Referral may be required
    Prof. Ernst Nathan Str. 1, 
    Nuernberg, BY, DE 

    Markus Ries practices practicing medicine in Nuernberg, Germany. Mr. Ries is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Galactosialidosis, Molybdenum Cofactor Deficiency (MoCD), Visceromegaly, and West Syndrome.

    Experienced in Sialic Acid Storage Disease

    Anna T. Zakrzewicz
    Experienced in Sialic Acid Storage Disease

    Anna T. Zakrzewicz
    Referral may be required
    Giessen, HE, DE 

    Anna Zakrzewicz practices practicing medicine in Giessen, Germany. Ms. Zakrzewicz is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Pemphigus Foliaceus, Pemphigus, Pemphigus Vulgaris, and Sialuria.

    Experienced in Sialic Acid Storage Disease

    Helmut Tegetmeyer
    Experienced in Sialic Acid Storage Disease

    Helmut Tegetmeyer
    Referral may be required
    Leipzig, SN, DE 

    Helmut Tegetmeyer practices practicing medicine in Leipzig, Germany. Mr. Tegetmeyer is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Coloboma of Optic Nerve, Coloboma of Optic Papilla, Optic Nerve Atrophy, and Sialuria.

    Experienced in Sialic Acid Storage Disease

    Carsten Hopf
    Experienced in Sialic Acid Storage Disease

    Carsten Hopf
    Referral may be required
    Paul Wittsack Str. 10, 
    Mannheim, BW, DE 

    Carsten Hopf practices practicing medicine in Mannheim, Germany. Mr. Hopf is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His clinical expertise encompasses Tay-Sachs Disease, Gangliosidosis, Sialuria, and Alzheimer's Disease.

    Experienced in Sialic Acid Storage Disease

    Kaya Bork
    Experienced in Sialic Acid Storage Disease

    Kaya Bork
    Referral may be required
    Ernst Grube Str. 40, 
    Halle, NI, DE 

    Kaya Bork practices practicing medicine in Halle, Germany. Ms. Bork is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Inclusion Body Myopathy 2, Sialuria, Sialic Acid Storage Disease, and Neuroblastoma.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 35

    Last Updated: 06/30/2026

    What is the definition of Sialic Acid Storage Disease?

    Free sialic acid storage disorder (FSASD) is an inherited condition that primarily affects the brain and spinal cord (central nervous system). The signs and symptoms of FSASD can vary from person to person, and the condition is often divided into three forms based on the severity of these features.

    When should I see a Sialic Acid Storage Disease doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Sialic Acid Storage Disease doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Sialic Acid Storage Disease doctor in Germany?

    You can find a Sialic Acid Storage Disease doctor in any of the 10 largest U.S. cities by clicking below:

    Sialic Acid Storage Disease doctor near New York, NY
    Sialic Acid Storage Disease doctor near Los Angeles, CA
    Sialic Acid Storage Disease doctor near Chicago, IL
    Sialic Acid Storage Disease doctor near Houston, TX
    Sialic Acid Storage Disease doctor near Phoenix, AZ
    Sialic Acid Storage Disease doctor near Philadelphia, PA
    Sialic Acid Storage Disease doctor near Atlanta, GA
    Sialic Acid Storage Disease doctor near Boston, MA
    Sialic Acid Storage Disease doctor near Dallas, TX
    Sialic Acid Storage Disease doctor near San Jose, CA

    How does MediFind rank Sialic Acid Storage Disease doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Sialic Acid Storage Disease doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Sialic Acid Storage Disease doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sialic Acid Storage Disease doctor search results page. 

    Why is it important to get a second opinion from a different Sialic Acid Storage Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Sialic Acid Storage Disease doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Sialic Acid Storage Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Sialic Acid Storage Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Sialic Acid Storage Disease doctors in Germany?

    Look for the filter feature on the left side of the Sialic Acid Storage Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Sialic Acid Storage Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Sialic Acid Storage Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.