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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Sialic Acid Storage Disease near Baden-Wuerttemberg, DE. Of these, 14 are Experienced, 2 are Advanced and 1 are Distinguished.

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    17 providers found
      Distinguished in Sialic Acid Storage Disease

      Roger Sandhoff
      Distinguished in Sialic Acid Storage Disease

      Roger Sandhoff
      Heidelberg, BW, DE 

      Roger Sandhoff practices in Heidelberg, Germany. Mr. Sandhoff is rated as a Distinguished expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Sialuria, Sialic Acid Storage Disease, Lamellar Ichthyosis, and Nonbullous Congenital Ichthyosiform Erythroderma.

      Advanced in Sialic Acid Storage Disease

      Matthias Zielonka
      Advanced in Sialic Acid Storage Disease

      Matthias Zielonka
      Heidelberg, BW, DE 

      Matthias Zielonka practices in Heidelberg, Germany. Mr. Zielonka is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Citrullinemia, Visceromegaly, and Liver Transplant.

      Advanced in Sialic Acid Storage Disease

      Ulrike Mutze
      Advanced in Sialic Acid Storage Disease

      Ulrike Mutze
      Heidelberg, BW, DE 

      Ulrike Mutze practices in Heidelberg, Germany. Ms. Mutze is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. Her top areas of expertise are Isovaleric Acidemia, Vitamin B12 Deficiency, Vitamin B12 Deficiency Anemia, and Phenylketonuria (PKU).

      Learn about our expert tiers
      Peter J. Lang

      Peter J. Lang

      Peter J. Lang
      Tuebingen, BW, DE 

      Peter Lang practices in Tuebingen, Germany. Mr. Lang is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Acute Lymphoblastic Leukemia (ALL), Graft Versus Host Disease (GvHD), and Bone Marrow Transplant.

      Experienced in Sialic Acid Storage Disease

      Stefan Kolker
      Experienced in Sialic Acid Storage Disease

      Stefan Kolker
      Heidelberg, BW, DE 

      Stefan Kolker practices in Heidelberg, Germany. Mr. Kolker is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Methylmalonyl Coenzyme A Mutase Deficiency, Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Liver Transplant, and Kidney Transplant.

      Experienced in Sialic Acid Storage Disease

      Georg F. Hoffmann
      Experienced in Sialic Acid Storage Disease

      Georg F. Hoffmann
      Im Neuenheimer Field 669, 
      Heidelberg, BW, DE 

      Georg Hoffmann practices in Heidelberg, Germany. Mr. Hoffmann is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Isovaleric Acidemia, Urea Cycle Disorders (UCD), Glutaric Acidemia Type 1, Propionic Acidemia, and Liver Transplant.

      Experienced in Sialic Acid Storage Disease

      Sven F. Garbade
      Experienced in Sialic Acid Storage Disease

      Sven F. Garbade
      Heidelberg, BW, DE 

      Sven Garbade practices in Heidelberg, Germany. Mr. Garbade is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Argininosuccinic Aciduria, Isovaleric Acidemia, Glutaric Acidemia Type 1, Urea Cycle Disorders (UCD), and Liver Transplant.

      Experienced in Sialic Acid Storage Disease

      Carsten Hopf
      Experienced in Sialic Acid Storage Disease

      Carsten Hopf
      Paul Wittsack Str. 10, 
      Mannheim, BW, DE 

      Carsten Hopf practices in Mannheim, Germany. Mr. Hopf is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Tay-Sachs Disease, Gangliosidosis, Sialuria, and Sialic Acid Storage Disease.

      Experienced in Sialic Acid Storage Disease

      Christian Marsching
      Experienced in Sialic Acid Storage Disease

      Christian Marsching
      Paul Wittsack Str. 10, 
      Mannheim, BW, DE 

      Christian Marsching practices in Mannheim, Germany. Mr. Marsching is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Sialuria, Sialic Acid Storage Disease, Farber Lipogranulomatosis, and Lipogranulomatosis.

      Experienced in Sialic Acid Storage Disease

      Steffen Syrbe
      Experienced in Sialic Acid Storage Disease

      Steffen Syrbe
      Heidelberg, BW, DE 

      Steffen Syrbe practices in Heidelberg, Germany. Mr. Syrbe is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are West Syndrome, Epilepsy, Epilepsy in Children, and Spasmus Nutans.

      Experienced in Sialic Acid Storage Disease

      Johannes R. Lemke
      Experienced in Sialic Acid Storage Disease

      Johannes R. Lemke
      Albert Einstein Allee 23, 
      Ulm, BW, DE 

      Johannes Lemke practices in Ulm, Germany. Mr. Lemke is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His top areas of expertise are Epilepsy, Benign Familial Neonatal Seizures, Epilepsy in Children, Hepato-Pancreato-Biliary Surgery, and Parathyroidectomy.

      Experienced in Sialic Acid Storage Disease

      Friederike Burger
      Experienced in Sialic Acid Storage Disease

      Friederike Burger
      Heidelberg, BW, DE 

      Friederike Burger practices in Heidelberg, Germany. Burger is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Their top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Sialuria, and Sialic Acid Storage Disease.

      Miriam Erlacher

      Miriam Erlacher
      Freiburg, BW, DE 

      Miriam Erlacher practices in Freiburg, Germany. Ms. Erlacher is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Her top areas of expertise are Juvenile Myelomonocytic Leukemia (JMML), Chromosome 7p Deletion, RUNX1 Familial Platelet Disorder, Myelodysplastic Syndrome (MDS), and Bone Marrow Transplant.

      Ekkehart Lausch

      Ekkehart Lausch
      Freiburg, BW, DE 

      Ekkehart Lausch practices in Freiburg, Germany. Lausch is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Their top areas of expertise are Hyaline Fibromatosis Syndrome, Kozlowski Spondylometaphyseal Dysplasia, Achondrogenesis, and Spondyloenchondrodysplasia.

      Brigitte Strahm

      Brigitte Strahm
      Freiburg, BW, DE 

      Brigitte Strahm practices in Freiburg, Germany. Ms. Strahm is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Her top areas of expertise are Juvenile Myelomonocytic Leukemia (JMML), Dyskeratosis Congenita, Myelodysplastic Syndrome (MDS), Aplastic Anemia, and Bone Marrow Transplant.

      Doris Boeckelmann

      Doris Boeckelmann
      Freiburg, BW, DE 

      Doris Boeckelmann practices in Freiburg, Germany. Ms. Boeckelmann is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Her top areas of expertise are Platelet Storage Pool Deficiency, Bernard-Soulier Syndrome, Hermansky-Pudlak Syndrome, and Oculocutaneous Albinism Type 1.

      Barbara Zieger

      Barbara Zieger
      Hugstetter Str. 55, 
      Freiburg, BW, DE 

      Barbara Zieger practices in Freiburg, Germany. Ms. Zieger is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Her top areas of expertise are Bernard-Soulier Syndrome, Blood Clots, Platelet Storage Pool Deficiency, and Glanzmann Thrombasthenia.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Sialic Acid Storage Disease?

      Free sialic acid storage disorder (FSASD) is an inherited condition that primarily affects the brain and spinal cord (central nervous system). The signs and symptoms of FSASD can vary from person to person, and the condition is often divided into three forms based on the severity of these features.

      When should I see a Sialic Acid Storage Disease doctor in Baden-Wuerttemberg, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sialic Acid Storage Disease doctor in Baden-Wuerttemberg, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Sialic Acid Storage Disease doctor in Baden-Wuerttemberg, DE?

      You can find a Sialic Acid Storage Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Sialic Acid Storage Disease doctors in Baden-Wuerttemberg, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sialic Acid Storage Disease doctors in Baden-Wuerttemberg, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sialic Acid Storage Disease doctor in Baden-Wuerttemberg, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sialic Acid Storage Disease doctor search results page. 

      Why is it important to get a second opinion from a different Sialic Acid Storage Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sialic Acid Storage Disease doctor in Baden-Wuerttemberg, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sialic Acid Storage Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sialic Acid Storage Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sialic Acid Storage Disease doctors in Baden-Wuerttemberg, DE?

      Look for the filter feature on the left side of the Sialic Acid Storage Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sialic Acid Storage Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Sialic Acid Storage Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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