The 20 Best Sialic Acid Storage Disease Doctors in Netherlands

Find the Top Sialic Acid Storage Disease Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 22 doctor with experience in Sialic Acid Storage Disease near Netherlands. Of these, 21 are Experienced and 1 are Advanced.

Location
LocationClose
22 providers found
    Advanced in Sialic Acid Storage Disease

    Marne C. Hagemeijer
    Advanced in Sialic Acid Storage Disease

    Marne C. Hagemeijer
    Referral may be required
    Rotterdam, ZH, NL 

    Marne Hagemeijer practices practicing medicine in Rotterdam, Netherlands. Ms. Hagemeijer is rated as an Advanced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Aspartylglucosaminuria, Fucosidosis, Sialuria, and Sialic Acid Storage Disease.

    Experienced in Sialic Acid Storage Disease

    Monique M. De Sain-Van Der Velden
    Experienced in Sialic Acid Storage Disease

    Monique M. De Sain-Van Der Velden
    Referral may be required
    Utrecht, UT, NL 

    Monique De Sain-Van Der Velden practices practicing medicine in Utrecht, Netherlands. Ms. De Sain-Van Der Velden is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, Hartnup Disease, Purine Nucleoside Phosphorylase Deficiency, and Rhabdomyolysis.

    Experienced in Sialic Acid Storage Disease

    Johanna P. Van Den Hout
    Experienced in Sialic Acid Storage Disease

    Johanna P. Van Den Hout
    Referral may be required
    Rotterdam, ZH, NL 

    Johanna Van Den Hout practices practicing medicine in Rotterdam, Netherlands. Van Den Hout is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Pompe Disease, Mucolipidosis Type 4, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Fucosidosis.

    Learn about our expert tiers
    Experienced in Sialic Acid Storage Disease

    Esmee Oussoren
    Experienced in Sialic Acid Storage Disease

    Esmee Oussoren
    Referral may be required
    Rotterdam, ZH, NL 

    Esmee Oussoren practices practicing medicine in Rotterdam, Netherlands. Ms. Oussoren is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Mucolipidosis Type 4, Sialidosis, Mucolipidosis 3, and Classic Galactosemia.

    Experienced in Sialic Acid Storage Disease

    Rachel Schot
    Experienced in Sialic Acid Storage Disease

    Rachel Schot
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Rachel Schot practices practicing medicine in Rotterdam, Netherlands. Ms. Schot is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Cortical Dysplasia, Achalasia Microcephaly Syndrome, Microcephaly, and Periventricular Heterotopia.

    Experienced in Sialic Acid Storage Disease

    George G. Ruijter
    Experienced in Sialic Acid Storage Disease

    George G. Ruijter
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    George Ruijter practices practicing medicine in Rotterdam, Netherlands. Mr. Ruijter is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Mucolipidosis Type 4, Mucopolysaccharidoses (MPS), Sialidosis, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

    Experienced in Sialic Acid Storage Disease

    Fokje M. Zijlstra
    Experienced in Sialic Acid Storage Disease

    Fokje M. Zijlstra
    Referral may be required
    Nijmegen, GE, NL 

    Fokje Zijlstra practices practicing medicine in Nijmegen, Netherlands. Zijlstra is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Their clinical expertise encompasses Sialuria, Sialic Acid Storage Disease, Galactosemia, and Galactose Epimerase Deficiency.

    Experienced in Sialic Acid Storage Disease

    Monique Van Scherpenzeel
    Experienced in Sialic Acid Storage Disease

    Monique Van Scherpenzeel
    Referral may be required
    Oss, NB, NL 

    Monique Van Scherpenzeel practices practicing medicine in Oss, Netherlands. Ms. Van Scherpenzeel is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses PGM1-CDG, Cutis Laxa, Delayed Growth, and Autosomal Recessive Cutis Laxa Type 1.

    Experienced in Sialic Acid Storage Disease

    Karin Huijben
    Experienced in Sialic Acid Storage Disease

    Karin Huijben
    Referral may be required
    Nijmegen, GE, NL 

    Karin Huijben practices practicing medicine in Nijmegen, Netherlands. Ms. Huijben is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses MASS Phenotype, Sialuria, Sialic Acid Storage Disease, and Delayed Growth.

    Experienced in Sialic Acid Storage Disease

    Grazia S. Mancini
    Experienced in Sialic Acid Storage Disease

    Grazia S. Mancini
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Grazia Mancini practices practicing medicine in Rotterdam, Netherlands. Mancini is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. They are also highly rated in 26 other conditions, according to our data. Their clinical expertise encompasses Cerebellar Agenesis, Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, and Polymicrogyria.

    Experienced in Sialic Acid Storage Disease

    Ans M. Van Den Ouweland
    Experienced in Sialic Acid Storage Disease

    Ans M. Van Den Ouweland
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Ans Van Den Ouweland practices practicing medicine in Rotterdam, Netherlands. Van Den Ouweland is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Greig Cephalopolysyndactyly Syndrome, Bone Dysplasia Corpus Callosum Agenesis, Pallister-Hall Syndrome, Tuberous Sclerosis Complex, and Mastectomy.

    Experienced in Sialic Acid Storage Disease

    Johannis P. Kamerling
    Experienced in Sialic Acid Storage Disease

    Johannis P. Kamerling
    Referral may be required
    Groningen, GR, NL 

    Johannis Kamerling practices practicing medicine in Groningen, Netherlands. Kamerling is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Galactosialidosis, Sialuria, Sialic Acid Storage Disease, and Sialidosis.

    Experienced in Sialic Acid Storage Disease

    Frans W. Verheijen
    Experienced in Sialic Acid Storage Disease

    Frans W. Verheijen
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Frans Verheijen practices practicing medicine in Rotterdam, Netherlands. Mr. Verheijen is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Agyria Pachygyria Polymicrogyria, Achalasia Microcephaly Syndrome, Microcephaly, and Cortical Dysplasia.

    Experienced in Sialic Acid Storage Disease

    Jeroen C. Van Den Bosch
    Experienced in Sialic Acid Storage Disease

    Jeroen C. Van Den Bosch
    Referral may be required
    Rotterdam, ZH, NL 

    Jeroen Van Den Bosch practices practicing medicine in Rotterdam, Netherlands. Mr. Van Den Bosch is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. His clinical expertise encompasses Fucosidosis, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Sialuria, and Sialic Acid Storage Disease.

    Experienced in Sialic Acid Storage Disease

    Dirk J. Lefeber
    Experienced in Sialic Acid Storage Disease

    Dirk J. Lefeber
    Referral may be required
    Nijmegen, GE, NL 

    Dirk Lefeber practices practicing medicine in Nijmegen, Netherlands. Mr. Lefeber is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses ALG6-CDG, PGM1-CDG, PMM2-Congenital Disorder of Glycosylation, and DPAGT1-CDG.

    Experienced in Sialic Acid Storage Disease

    Nurulamin A. Abu Bakar
    Experienced in Sialic Acid Storage Disease

    Nurulamin A. Abu Bakar
    Referral may be required
    Nijmegen, GE, NL 

    Nurulamin Abu Bakar practices practicing medicine in Nijmegen, Netherlands. Abu Bakar is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Their clinical expertise encompasses PGM1-CDG, Hypotonia, Sialuria, and Sialic Acid Storage Disease.

    Experienced in Sialic Acid Storage Disease

    Ron A. Wevers
    Experienced in Sialic Acid Storage Disease

    Ron A. Wevers
    Referral may be required
    Nijmegen, GE, NL 

    Ron Wevers practices practicing medicine in Nijmegen, Netherlands. Mr. Wevers is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Xanthoma, Cerebrotendinous Xanthomatosis, Cutis Laxa, and Delta-1-Pyrroline-5-Carboxylate Dehydrogenase Deficiency.

    Experienced in Sialic Acid Storage Disease

    Arjan M. De Brouwer
    Experienced in Sialic Acid Storage Disease

    Arjan M. De Brouwer
    Referral may be required
    Nijmegen, GE, NL 

    Arjan De Brouwer practices practicing medicine in Nijmegen, Netherlands. Mr. De Brouwer is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Blepharophimosis, Lissencephaly, Cortical Dysplasia, and FG Syndrome.

    Experienced in Sialic Acid Storage Disease

    Anke P. Willems
    Experienced in Sialic Acid Storage Disease

    Anke P. Willems
    Referral may be required
    Utrecht, UT, NL 

    Anke Willems practices practicing medicine in Utrecht, Netherlands. Ms. Willems is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. Her clinical expertise encompasses Sialuria and Sialic Acid Storage Disease.

    Experienced in Sialic Acid Storage Disease

    Michiel C. Bongaerts
    Experienced in Sialic Acid Storage Disease

    Michiel C. Bongaerts
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Michiel Bongaerts practices practicing medicine in Rotterdam, Netherlands. Mr. Bongaerts is rated as an Experienced expert by MediFind in the treatment of Sialic Acid Storage Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Mucolipidosis Type 4, Fucosidosis, Sialuria, and Sialic Acid Storage Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 22

    Last Updated: 06/30/2026

    What is the definition of Sialic Acid Storage Disease?

    Free sialic acid storage disorder (FSASD) is an inherited condition that primarily affects the brain and spinal cord (central nervous system). The signs and symptoms of FSASD can vary from person to person, and the condition is often divided into three forms based on the severity of these features.

    When should I see a Sialic Acid Storage Disease doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Sialic Acid Storage Disease doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Sialic Acid Storage Disease doctor in Netherlands?

    You can find a Sialic Acid Storage Disease doctor in any of the 10 largest U.S. cities by clicking below:

    Sialic Acid Storage Disease doctor near New York, NY
    Sialic Acid Storage Disease doctor near Los Angeles, CA
    Sialic Acid Storage Disease doctor near Chicago, IL
    Sialic Acid Storage Disease doctor near Houston, TX
    Sialic Acid Storage Disease doctor near Phoenix, AZ
    Sialic Acid Storage Disease doctor near Philadelphia, PA
    Sialic Acid Storage Disease doctor near Atlanta, GA
    Sialic Acid Storage Disease doctor near Boston, MA
    Sialic Acid Storage Disease doctor near Dallas, TX
    Sialic Acid Storage Disease doctor near San Jose, CA

    How does MediFind rank Sialic Acid Storage Disease doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Sialic Acid Storage Disease doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Sialic Acid Storage Disease doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sialic Acid Storage Disease doctor search results page. 

    Why is it important to get a second opinion from a different Sialic Acid Storage Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Sialic Acid Storage Disease doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Sialic Acid Storage Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Sialic Acid Storage Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Sialic Acid Storage Disease doctors in Netherlands?

    Look for the filter feature on the left side of the Sialic Acid Storage Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Sialic Acid Storage Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Sialic Acid Storage Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

    Recommended has been selected.