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    Last Updated: 10/30/2025

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    MediFind found 140 doctor with experience in Stiff Skin Syndrome near Kansas, US. Of these, 124 are Experienced and 16 are Advanced.

    Location
    LocationClose
    140 providers found
      Advanced in Stiff Skin Syndrome
      Dermatology
      Advanced in Stiff Skin Syndrome
      Dermatology
      11520 W 119th St, 
      Overland Park, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Meena Singh is a Dermatologist in Overland Park, Kansas. Dr. Singh is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Acrogeria, Gottron Type, Congenital Hypotrichosis Milia, Bazex Syndrome, and Nakajo-Nishimura Syndrome. Dr. Singh is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Family Medicine
      Advanced in Stiff Skin Syndrome
      Family Medicine

      Ottawa Family Physicians, Chartered

      1418 S Main St, 
      Ottawa, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Dennis Spratt is a primary care provider, practicing in Family Medicine in Ottawa, Kansas. Dr. Spratt is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, Endoscopy, and Hip Replacement. Dr. Spratt is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Stiff Skin Syndrome
      Family Medicine
      Advanced in Stiff Skin Syndrome
      Family Medicine

      Ottawa Family Physicians, Chartered

      1418 S Main St, Suite 5, 
      Ottawa, KS 
      Languages Spoken:
      English, Spanish, Yoruba
      Accepting New Patients

      Akinola Ojeleye is a primary care provider, practicing in Family Medicine in Ottawa, Kansas. Dr. Ojeleye is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Breast Cancer in Men, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Endoscopy, and Hip Replacement. Dr. Ojeleye is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Stiff Skin Syndrome
      Family Medicine | General Practice
      Advanced in Stiff Skin Syndrome
      Family Medicine | General Practice

      Great Plains Of Republic Co Inc

      2337 G St, Suite 100, 
      Belleville, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Nolan Beavers is a primary care provider, practicing in Family Medicine and General Practice in Belleville, Kansas. Dr. Beavers is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Atypical Pneumonia, Hospital-Acquired Pneumonia, Pneumonia, and Sciatica. Dr. Beavers is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Plastic Surgery | Hand Surgery
      Advanced in Stiff Skin Syndrome
      Plastic Surgery | Hand Surgery
      4601 College Blvd, Suite 222, 
      Leawood, KS 
      Languages Spoken:
      English
      Accepting New Patients

      J Cusick is a Plastic Surgeon and a Hand Surgeon in Leawood, Kansas. Dr. Cusick is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Acrogeria, Gottron Type, Stiff Skin Syndrome, Bazex Syndrome, and Keloids. Dr. Cusick is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Family Medicine
      Advanced in Stiff Skin Syndrome
      Family Medicine
      1418 S Main St, Suite 5, 
      Ottawa, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      John Gollier is a primary care provider, practicing in Family Medicine in Ottawa, Kansas. Dr. Gollier is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Sitosterolemia, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hip Replacement, and Endoscopy. Dr. Gollier is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Advanced in Stiff Skin Syndrome

      Ottawa Family Physicians, Chartered

      1418 S Main St, Suite 5, 
      Ottawa, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Ellen Sinclair-Webber is a primary care provider, practicing in Family Medicine in Ottawa, Kansas. Dr. Sinclair-Webber is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Tracheitis, Pneumonia, Urinary Tract Infection (UTI), Hip Replacement, and Endoscopy. Dr. Sinclair-Webber is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Family Medicine
      Advanced in Stiff Skin Syndrome
      Family Medicine

      West Central Kansas Association Inc

      200 S Main St Bldg B, Russell Regional Hospital, 
      Russell, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Tyrel Somers is a primary care provider, practicing in Family Medicine in Russell, Kansas. Dr. Somers is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Familial Colorectal Cancer, Type 2 Diabetes (T2D), Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Somers is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Internal Medicine
      Advanced in Stiff Skin Syndrome
      Internal Medicine

      William Newton Memorial Hospital

      1300 E 5th Ave, 
      Winfield, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Sapna Shah-Haque is a primary care provider, practicing in Internal Medicine in Winfield, Kansas. Dr. Shah-Haque is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Nephrosclerosis, Renovascular Hypertension, Migraine, and Nakajo-Nishimura Syndrome. Dr. Shah-Haque is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Advanced in Stiff Skin Syndrome

      Coffey County Hospital

      110 S 6th St, Suite 202, 
      Burlington, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Jarvis is a primary care provider, practicing in Family Medicine in Burlington, Kansas. Dr. Jarvis is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Inappropriate Sinus Tachycardia (IST), Gastroesophageal Reflux Disease (GERD), Otitis, and Urinary Tract Infection in Children. Dr. Jarvis is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      General Surgery
      Advanced in Stiff Skin Syndrome
      General Surgery

      The Clara Barton Hospital Association Inc Hoisington Kansas

      252 W 9th St, 
      Hoisington, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Patrick Stiles is a General Surgeon in Hoisington, Kansas. Dr. Stiles is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Gallbladder Disease, Cholecystitis, Hernia, Endoscopy, and Gastrectomy. Dr. Stiles is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Family Medicine
      Advanced in Stiff Skin Syndrome
      Family Medicine

      Great Plains Of Republic Co Inc

      2420 G St, 
      Belleville, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Kurtis Klecan is a primary care provider, practicing in Family Medicine in Belleville, Kansas. Dr. Klecan is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Acquired Tracheomalacia, Tracheobronchomalacia, Congenital Hypotrichosis Milia, Stiff Skin Syndrome, and Hemorrhoidectomy. Dr. Klecan is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Family Medicine | General Surgery
      Advanced in Stiff Skin Syndrome
      Family Medicine | General Surgery
      222 S Kansas St, Ste E, 
      Russell, KS 
      Languages Spoken:
      English

      Earl Merkel is a General Surgeon in Russell, Kansas. Dr. Merkel is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Hereditary Mucoepithelial Dysplasia, Nakajo-Nishimura Syndrome, Congenital Hypotrichosis Milia, and Acrogeria, Gottron Type.

      Advanced in Stiff Skin Syndrome
      Family Medicine
      Advanced in Stiff Skin Syndrome
      Family Medicine

      Ottawa Family Physicians, Chartered

      1418 S Main St, Suite 5, 
      Ottawa, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Simmons is a primary care provider, practicing in Family Medicine in Ottawa, Kansas. Dr. Simmons is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Tracheitis, Empyema, Sinusitis, and Cellulitis. Dr. Simmons is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Family Medicine
      Advanced in Stiff Skin Syndrome
      Family Medicine

      Hiawatha Hospital Association Inc

      300 Utah St, 
      Hiawatha, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Peter Rosa is a primary care provider, practicing in Family Medicine in Hiawatha, Kansas. Dr. Rosa is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Ringworm, Lung Metastases, Hypothyroidism, Parkinson's Disease, and Endoscopy. Dr. Rosa is currently accepting new patients.

      Advanced in Stiff Skin Syndrome
      Nurse Practitioner | Dermatology
      Advanced in Stiff Skin Syndrome
      Nurse Practitioner | Dermatology

      Derby Derm

      1121 N College Park St, Suite 400, 
      Derby, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Lori Falcone is a Nurse Practitioner specialist and a Dermatologist in Derby, Kansas. Ms. Falcone is rated as an Advanced provider by MediFind in the treatment of Stiff Skin Syndrome. Her top areas of expertise are Actinic Keratosis, Warts, Comedones, and Rosacea. Ms. Falcone is currently accepting new patients.

      Carson T. Williams
      Experienced in Stiff Skin Syndrome
      Plastic Surgery
      Experienced in Stiff Skin Syndrome
      Plastic Surgery

      Head And Neck Surgery Of Kansas City P A

      5370 College Blvd, Suite 100, 
      Overland Park, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Carson Williams is a Plastic Surgeon in Overland Park, Kansas. Dr. Williams is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Low Nasal Bridge, Nasal Flaring, and Head and Neck Squamous Cell Carcinoma (HNSCC). Dr. Williams is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome
      15 E 11th St, 
      Liberal, KS 
      Languages Spoken:
      English, Polish, Spanish
      Accepting New Patients

      Marek Kaminski is a Dermatologist in Liberal, Kansas. Dr. Kaminski is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Actinic Keratosis, Pompholyx Eczema, Stiff Skin Syndrome, and Hereditary Mucoepithelial Dysplasia. Dr. Kaminski is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Family Medicine
      Experienced in Stiff Skin Syndrome
      Family Medicine

      Ottawa Family Physicians, Chartered

      1418 S Main St, Suite 5, 
      Ottawa, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Nichols is a primary care provider, practicing in Family Medicine in Ottawa, Kansas. Dr. Nichols is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Tracheitis, Osteoarthritis, Painful Swallowing, Hip Replacement, and Endoscopy. Dr. Nichols is currently accepting new patients.

      Experienced in Stiff Skin Syndrome
      Experienced in Stiff Skin Syndrome

      Hutchinson Clinic P A Inc

      2107 N Waldron St, 
      Hutchinson, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Russell Kelley is a Dermatologist in Hutchinson, Kansas. Dr. Kelley is rated as an Experienced provider by MediFind in the treatment of Stiff Skin Syndrome. His top areas of expertise are Actinic Keratosis, Eosinophilic Pustular Folliculitis, Warts, and Syringoma. Dr. Kelley is currently accepting new patients.

      Showing 1-20 of 140

      Last Updated: 10/30/2025

      What is the definition of Stiff Skin Syndrome?

      Stiff skin syndrome (SSS) is a rare syndrome characterized by hard, thick skin, usually on the entire body. The thickening of the skin can limit joint mobility and causes joints to be stuck in a bent position (flexion contractures). Other signs and symptoms may include excessive hair growth (hypertrichosis), loss of body fat (lipodystrophy), scoliosis, muscle weakness, slow growth, and short stature. Weakness or paralysis of the eye muscles have also been reported. Stiff skin syndrome is caused by genetic changes (changes) in the FBN1 gene and is inherited in an autosomal dominant manner. Diagnosis is based on a clinical evaluation that is consistent with Stiff skin syndrome, and the diagnosis can be confirmed with genetic testing.

      When should I see a Stiff Skin Syndrome doctor in Kansas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Stiff Skin Syndrome doctor in Kansas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Stiff Skin Syndrome doctors in Kansas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Stiff Skin Syndrome doctors in Kansas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Stiff Skin Syndrome doctor in Kansas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Stiff Skin Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Stiff Skin Syndrome doctor in Kansas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Stiff Skin Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Stiff Skin Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Stiff Skin Syndrome doctors in Kansas, US?

      Look for the filter feature on the left side of the Stiff Skin Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Stiff Skin Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Stiff Skin Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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