MediFind found 2166 doctor with experience in Sturge-Weber Syndrome. Of these, 1903 are Experienced, 223 are Advanced, 28 are Distinguished and 11 are Elite.
The Kennedy Krieger Institute
Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization.
Duke Eye Center
Sharon Freedman is an Ophthalmologist and a Pediatrics provider in Durham, North Carolina. Dr. Freedman is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Retinopathy of Prematurity, Strabismus, Brown Syndrome, Trabeculectomy, and Cataract Removal. Dr. Freedman is currently accepting new patients.
Duke Eye Center
Miguel Materin is an Ophthalmologist in Durham, North Carolina. Dr. Materin is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Uveal Melanoma, and Choroid Plexus Carcinoma. Dr. Materin is currently accepting new patients.
Hidenori Sugano practices in Tokyo, Japan. Sugano is rated as an Elite expert by MediFind in the treatment of Sturge-Weber Syndrome. Their top areas of expertise are Sturge-Weber Syndrome, Hemangioma, Parkes Weber Syndrome, and Epilepsy.
Yasushi Iimura practices in Tokyo, Japan. Iimura is rated as an Elite expert by MediFind in the treatment of Sturge-Weber Syndrome. Their top areas of expertise are Sturge-Weber Syndrome, Hemangioma, Epilepsy, and Parkes Weber Syndrome.
C H Neurology Foundation Inc
Masanori Takeoka is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Takeoka is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Seizures, Epilepsy, and West Syndrome. Dr. Takeoka is currently accepting new patients.
Hiroharu Suzuki practices in Tokyo, Japan. Suzuki is rated as an Elite expert by MediFind in the treatment of Sturge-Weber Syndrome. Their top areas of expertise are Sturge-Weber Syndrome, Hemangioma, Epilepsy, and Parkes Weber Syndrome.
Madoka Nakajima practices in Tokyo, Japan. Ms. Nakajima is rated as an Elite expert by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Normal Pressure Hydrocephalus, Hydrocephalus, Sturge-Weber Syndrome, Hemangioma, and Deep Brain Stimulation.
Mustafa Sahin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Sahin is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Spastic Paraplegia Type 7. Dr. Sahin is currently accepting new patients.
Takuma Higo practices in Tokyo, Japan. Mr. Higo is rated as an Elite expert by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Hemangioma, Epilepsy, and Parkes Weber Syndrome.
Yue Wu practices in Huangpu, China. Wu is rated as an Elite expert by MediFind in the treatment of Sturge-Weber Syndrome. Their top areas of expertise are Parkes Weber Syndrome, Sturge-Weber Syndrome, Hemangioma, Familial Multiple Nevi Flammei, and Trabeculectomy.
C H Neurology Foundation Inc
Anna Pinto is a Pediatrics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Pinto is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Seizures, and Epilepsy in Children.
Hajime Arai practices in Tokyo, Japan. Mr. Arai is rated as an Elite expert by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Hydrocephalus, Normal Pressure Hydrocephalus, Thrombectomy, and Deep Brain Stimulation.
Bassett Health Center Cobleskill
. Dr. Novak is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Enlarged Prostate (BPH), Type 2 Diabetes (T2D), and Lymphangitis.
Bassett Medical Center
. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Mantle Cell Lymphoma (MCL), Lung Nodules, Vertigo, and CAPOS Syndrome.
Duke Cancer Center Brain Tumor Clinic
Allan Friedman is a Neurosurgery provider in Durham, North Carolina. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy. Dr. Friedman is currently accepting new patients.
Johns Hopkins Outpatient Center
Dr. Eric Kossoff focuses on the diagnosis and treatment of childhood seizures and epilepsy, particularly treatments other than medications such as diet and neurostimulation. He is one of the world experts on dietary treatment for epilepsy (ketogenic diet) and lectures around the world about this therapy. His specific interests include the ketogenic diet, the modified Atkins diet for children and adults, infantile spasms, benign rolandic epilepsy, the interaction of migraine headaches with epilepsy, and Sturge-Weber syndrome. Dr. Eric Kossoff is also very involved in teaching and is the Director of the Pediatric Neurology Residency Program. He is a professor of neurology and pediatrics at the Johns Hopkins University School of Medicine. He is a co-author of Treatment of Pediatric Neurologic Disorders and the 7th edition of Ketogenic Diet Therapies. Dr. Kossoff sees patients in the Johns Hopkins Outpatient Center (5th floor) in Baltimore on Tuesday afternoons and Thursday mornings. He sees patients at Green Spring Station on Wednesday afternoons. He also participates in telemedicine. Dr. Kossoff received his medical degree from SUNY at Buffalo School of Medicine in New York. He went on to complete a residency in pediatrics at Eastern Virginia Medical School in Norfolk, Virginia. He completed a second residency in child neurology and a fellowship in pediatric epilepsy and clinical neurophysiology at The Johns Hopkins Hospital in Baltimore. Dr. Kossoff is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Epilepsy, Epilepsy in Children, Seizures, Endovascular Embolization, and Gastrostomy.
Northwell Health Physician Partners Medicine Specialties At East 85th Street
Aditya Sreenivasan is a Gastroenterologist in New York, New York. Dr. Sreenivasan has been practicing medicine for over 10 years and is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Gastrointestinal Bleeding, Gastroesophageal Reflux Disease (GERD), Bacterial Gastroenteritis, and Colonoscopy.
The Johns Hopkins Hospital
Dr. Doris Da May Lin is an Associate Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. She specializes in neuroradiology. Dr. Lin received her B.A. in chemistry from the University of Pennsylvania, and then pursued a joint M.D./Ph.D. degree at the Yale University School of Medicine, with graduate training in the neurosciences. She completed a medical internship at the University of Pennsylvania Hospital and a diagnostic radiology residency at New York Presbyterian Hospital-Cornell. After a two-year neuroradiology fellowship, she joined the faculty at Johns Hopkins. Dr. Lin is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Parkes Weber Syndrome, Sturge-Weber Syndrome, Subdural Effusion, CACH Syndrome, and Endovascular Embolization.
Ann & Robert H. Lurie Children's Hospital Of Chicago
Joshua Ewen is a Neurologist in Chicago, Illinois. Dr. Ewen is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Smith-Lemli-Opitz Syndrome, Parkes Weber Syndrome, and Epilepsy in Children.
Last Updated: 01/09/2026








