Dr. Comi graduated from SUNY Buffalo School of Medicine and received her training in pediatrics at the Children's Hospital of Buffalo and her child neurology training at Johns Hopkins Medicine. Her clinical specialization is in the treatment of the neurological aspects of Sturge-Weber syndrome and other disorders related to capillary malformation. Dr. Comi's clinical research interests focus on improving the early diagnosis and treatment of brain involvement in Sturge-Weber syndrome in order to prevent ischemic brain injury in affected infants and young children, and on studies to understand what causes Sturge-Weber syndrome. Her laboratory research work deals with the pathogenesis of Sturge-Weber syndrome, recently shown to be caused by a somatic mutation, and on developing new drug targets, screening assays, models and therapeutic strategies for Sturge-Weber syndrome. Her lab group also works on developing better neuroprotective and neuroregenerative responses to brain injury resulting from impaired blood flow to the brain. Dr. Comi is rated as an Elite provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Stork Bite, Epilepsy in Children, and Endovascular Embolization.

Dr. Eric Kossoff focuses on the diagnosis and treatment of childhood seizures and epilepsy, particularly treatments other than medications such as diet and neurostimulation. He is one of the world experts on dietary treatment for epilepsy (ketogenic diet) and lectures around the world about this therapy. His specific interests include the ketogenic diet, the modified Atkins diet for children and adults, infantile spasms, benign rolandic epilepsy, the interaction of migraine headaches with epilepsy, and Sturge-Weber syndrome. Dr. Eric Kossoff is also very involved in teaching and is the Director of the Pediatric Neurology Residency Program. He is a professor of neurology and pediatrics at the Johns Hopkins University School of Medicine. He is a co-author of Treatment of Pediatric Neurologic Disorders and the 7th edition of Ketogenic Diet Therapies. Dr. Kossoff sees patients in the Johns Hopkins Outpatient Center (5th floor) in Baltimore on Tuesday afternoons and Thursday mornings. He sees patients at Green Spring Station on Wednesday afternoons. He also participates in telemedicine. Dr. Kossoff received his medical degree from SUNY at Buffalo School of Medicine in New York. He went on to complete a residency in pediatrics at Eastern Virginia Medical School in Norfolk, Virginia. He completed a second residency in child neurology and a fellowship in pediatric epilepsy and clinical neurophysiology at The Johns Hopkins Hospital in Baltimore. Dr. Kossoff is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Epilepsy, Epilepsy in Children, Seizures, Endovascular Embolization, and Gastrostomy.

Dr. Doris Da May Lin is an Associate Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science. She specializes in neuroradiology. Dr. Lin received her B.A. in chemistry from the University of Pennsylvania, and then pursued a joint M.D./Ph.D. degree at the Yale University School of Medicine, with graduate training in the neurosciences. She completed a medical internship at the University of Pennsylvania Hospital and a diagnostic radiology residency at New York Presbyterian Hospital-Cornell. After a two-year neuroradiology fellowship, she joined the faculty at Johns Hopkins. Dr. Lin is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Parkes Weber Syndrome, Sturge-Weber Syndrome, Subdural Effusion, CACH Syndrome, and Endovascular Embolization.

Henry D. Jampel, M.D., M.H.S., is the Odd Fellows Professor of Ophthalmology at the Wilmer Eye Institute. He specializes in glaucoma and serves as the medical director of Wilmer's Green Spring Station location. His research interests include evaluation of medical vs. surgical treatment of glaucoma in newly diagnosed patients and on imaging devices for the detection of glaucoma and its progression. Dr. Jampel received his M.D. degree from Yale University and his M.H.S. in health finance and management from the Johns Hopkins Bloomberg School of Public Health. He completed an internship in internal medicine at Sinai Hospital and his residency in ophthalmology at the Wilmer Eye Institute. After completing a glaucoma fellowship in glaucoma at Wilmer, Dr. Jampel joined the faculty in 1988. Dr. Jampel is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Sturge-Weber Syndrome, Trabeculectomy, and Cataract Removal.

Dr. Nathan Crone focuses on the diagnosis and treatment of seizures and epilepsy, including the surgical treatment of epilepsy. He is also one of the attending physicians in the Epilepsy monitoring unit. Dr. Crone''s research interests include the real-time mapping of brain function to reduce the possibility of impacting brain function during surgery for epilepsy. He received his medical degree from Louisiana State University School of Medicine. He then completed his residency in neurology at the University of Chicago and fellowships in epilepsy and cognitive neurology at Johns Hopkins. Dr. Crone is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Deep Brain Stimulation.

Clifford Andrew is a Neurologist in Severna Park, Maryland. Dr. Andrew is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Peutz-Jeghers Syndrome, Tieche-Jadassohn Nevus, Hypothalamic Hamartomas, and Von Hippel-Lindau (VHL) Syndrome.

Dr. Gill cares for children with epilepsy and developmental, behavioral or psychiatric challenges. Her research and clinical interests include tuberous sclerosis complex, EEG biomarker development, and the intersection of epilepsy, genetics, and neurodevelopment. Dr. Gill is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Sturge-Weber Syndrome, and West Syndrome.

Dr. Harry A. Quigley is the A. Edward Maumenee Professor of Ophthalmology and developed the Glaucoma Division at the Johns Hopkins Wilmer Eye Institute. He was a founding member of the American Glaucoma Society, serving for 8 years as its Secretary and was elected to 5 year terms as chief executive officer of the Association for Research in Vision and Ophthalmology (ARVO) and editor-in-chief of Investigative Ophthalmology and Visual Science. He has published over 350 peer-reviewed articles, and his reports are the most cited in the ophthalmic literature over the last 30 years (Archives of Ophthalmology, 2007). His research has improved the early diagnosis of glaucoma and has developed instruments and techniques to identify glaucoma damage better. He has participated in pioneering studies of the epidemiology, morbidity and progression rate of glaucoma and other eye disease in American, African, Asian and Hispanic populations, serving as a consultant to the World Health Organization. In the laboratory, he has demonstrated successful gene therapy to protect retinal ganglion cells from experimental glaucoma and developed glaucoma models in monkeys, rats and mice. Dr. Quigley is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Trabeculectomy, and Iridectomy.

Norman Dy is a primary care provider, practicing in Internal Medicine in Columbia, Maryland. Dr. Dy is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Phacomatosis Pigmentovascularis, Hypothalamic Hamartomas, Phacomatosis Pigmentokeratotica, and Von Hippel-Lindau (VHL) Syndrome.

Carl E. Stafstrom is a pediatric neurologist, caring for children with epilepsy. Dr. Stafstrom received his medical degree from the University of Washington School of Medicine in Seattle, with residencies at the University of Washington Medical Center and Tufts New England Medical Center, as well as fellowships at Harvard for neurology research and Boston Children’s Hospital in clinical neurophysiology, electroencephalography, and epilepsy. Dr. Stafstrom previously served as Professor of Neurology and Pediatrics at the University of Wisconsin-Madison School of Medicine and Public Health and Chief of Pediatric Neurology at American Family Children’s Hospital at UW Madison. Dr. Stafstrom is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Epilepsy, Seizures, West Syndrome, Endovascular Embolization, and Deep Brain Stimulation.

I am a pediatric neurologist with expertise in epilepsy and electroencephalography (EEG). My clinical and research interests include genetics of epilepsy, medical management of patients with intractable epilepsy and presurgical evaluation of patients who are candidates for epilepsy surgery. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Seizures, Benign Rolandic Epilepsy, Rett Syndrome, Lennox-Gastaut Syndrome (LGS), and Thrombectomy.

Dr. Douglas Ball is an associate professor of medicine at the Johns Hopkins University School of Medicine. He holds a joint appointment in oncology. His areas of clinical expertise include diagnostic radiology, endocrine oncology, thyroid cancer and thyroid diseases. Dr. Ball earned his M.D. from the George Washington University School of Medicine. He completed his residency at the University of Pittsburgh-Presbyterian University Hospital and performed a fellowship in endocrinology and metabolism at Johns Hopkins. His research interests include medullary thyroid cancer, differentiated thyroid cancer and anaplastic thyroid cancer. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Medullary Thyroid Carcinoma, Thyroid Cancer, Anaplastic Thyroid Cancer, Papillary Thyroid Cancer, and Thyroidectomy.

Dr. Clifford Weiss is a Professor of Radiology and Radiological Science. He also holds appointments in Surgery and Biomedical Engineering. Additionally, he serves as Medical Director of the Johns Hopkins Center for Bioengineering Innovation and Design (CBID), the Director of the Johns Hopkins HHT Center of Excellence as well as Director of the Johns Hopkins Vascular Anomalies Center. Dr. Weiss' clinical focus lies in vascular and interventional radiology with a particular focus on the diagnosis and treatment of vascular malformations. This includes venous and lymphatic malformations, arteriovenous malformations, pulmonary arteriovenous malformations and Hereditary Hemorrhagic Telangiectasia (HHT) and varicoceles. Dr. Weiss also is a pioneer in the use of MRI for interventional guidance (iMRI), especially for the treatment of vascular malformations. Dr. Weiss' research focuses primarily on the preclinical and clinical development of Bariatric Embolization, a new endovascular procedure designed to help fight obesity, and on the development of new embolic therapies and devices. Dr. Weiss is the Deputy Editor of Interventional Content for the journal Radiology. Dr. Weiss received his B.A. from Dartmouth College in 1995, his M.D. from the Johns Hopkins University School of Medicine in 2001. He completed an internship in internal medicine on the Osler Service in 2002, his residency in Diagnostic Radiology in 2007, and a Fellowship in Vascular and Interventional radiology in 2008, all at The Johns Hopkins Hospital. He is a Fellow both of the Society of Interventional Radiology (SIR) and of Cardiovascular and Interventional Radiological Society of Europe (CIRSE). Dr. Weiss is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Pulmonary Arteriovenous Malformation (PAVM), Pulmonary Arteriovenous Fistula, Arteriovenous Malformation, Liver Embolization, and Embolectomy.

Yannis M. Paulus, M.D., F.A.C.S., is the Jonas Fridenwald Professor in Ophthalmology, an associate professor in the Johns Hopkins University Department of Ophthalmology and Department of Biomedical Engineering, and a vitreoretinal surgeon at the Wilmer Eye Institute, Johns Hopkins Medicine’s East Baltimore and Columbia locations. Dr. Paulus served as a surgical retina specialist and director of a research laboratory at the University of Michigan Kellogg Eye Center for almost 10 years, where he developed novel imaging systems, lasers and long-lasting therapies and nanotechnologies to allow physicians to determine cellular markers of disease, enabling early diagnosis, improved treatment monitoring and more individualized, personalized precision medicine tailored to each patient’s needs. After earning his bachelor’s degree in chemistry and physics from Harvard University and his medical degree at Stanford University School of Medicine, Dr. Paulus completed an internship at the Sloan-Kettering Cancer Center, a residency in ophthalmology at the Stanford University School of Medicine Byers Eye Institute, and a surgical and medical retina fellowship at Wilmer Eye Institute, Johns Hopkins Medicine. CVhttps://www.hopkinsmedicine.org/-/media/wilmer/documents/cvs/Paulus_CV%2021225.pdf. Dr. Paulus is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Diabetic Retinopathy, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Cataract Removal.

Dr. Barañano earned her M.D. and Ph.D. degrees from the Johns Hopkins University School of Medicine, where she also completed residencies in pediatrics and neurology, along with a fellowship in neurogenetics at the Kennedy Krieger Institute. Dr. Barañano is an Associate Professor of Clinical Neurology. She specializes in the diagnosis and management of rare neurogenetic disorders. She has a particular interest in the genetic control and function of the cerebellum and expertise in childhood-onset and inherited ataxias. She is a member of the multidisciplinary Fetal Management group and is available for prenatal consultations. Dr. Barañano's research includes collaborative efforts with the Johns Hopkins Department of Genetic Medicine and the Division of Neurogenetics at the Kennedy Krieger Institute. Dr. Baranano is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Hypotonia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Focal or Multifocal Malformations in Neuronal Migration, and Hereditary Ataxia.

Dr. Mark Luciano is the director of the Johns Hopkins Hydrocephalus and Cerebral Fluid Center. A renowned leader in treating hydrocephalus, Dr. Luciano is distinguished both nationally and internationally for his research and educational and clinical work in neuroendoscopy. Dr. Luciano treats adults with hydrocephalus, pseudotumor cerebri, intracranial hypotension, Chiari malformations, and cerebral and spinal cysts. He has significant expertise treating children and adults with cerebrospinal fluid leaks and congenital disorders. Among his accomplishments in neuroscience research and biomedical engineering are his investigation of the cerebrovascular response to hydrocephalus and the invention of a unique device for control of intracranial pressure (ICP) pulsatility to increase blood flow. His National Institutes of Health-funded studies have explored prolonged compression and hypoxia in the brain as a result of hydrocephalus, as well as the interaction between cerebrospinal fluid and vascular systems. Dr. Luciano is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Increased Intracranial Pressure, Posterior Fossa Decompression, and Gastrostomy.

Chetan Bettegowda is the director of the Johns Hopkins Department of Neurosurgery. He offers comprehensive treatments for adult patients with benign and malignant brain tumors, specializing in the treatment of patients with primary brain tumors such as gliomas, meningiomas and pituitary tumors. He performs both open surgery and stereotactic radiosurgery for patients with metastatic tumors to the brain, and also provides stereotactic radiosurgery for other neurological disorders, including spinal tumors, trigeminal neuralgia and skull-base tumors. Dr. Bettegowda is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Trigeminal Neuralgia, Astrocytoma, Glioblastoma, Rhizotomy, and Microvascular Decompression.

Dr. Stacy Suskauer is a professor of Physical Medicine and Rehabilitation and Pediatrics at the Johns Hopkins University School of Medicine. She serves as the director of the Division of Pediatric Rehabilitation in the Department of Physical Medicine and Rehabilitation. Dr. Suskauer attended Duke University in Durham, North Carolina for her undergraduate and medical education. She completed a combined residency program in pediatrics and physical medicine and rehabilitation at Cincinnati Children's Hospital Medical Center and the University of Cincinnati. She came to Kennedy Krieger Institute and Johns Hopkins for a pediatric rehabilitation research fellowship and subsequently joined the faculty of these institutions in 2007. Dr. Suskauer is also the Vice President for Rehabilitation at Kennedy Krieger Institute where she also serves as co-director of the Center for Brain Injury Recovery and the Brain Injury Clinical Research Center. Her research interests include understanding and optimizing outcomes after childhood brain injury and evaluating functional outcomes in individuals with Sturge-Weber Syndrome. As Division Director for Pediatric Rehabilitation, she brings together providers and programs across the four sites of the Johns Hopkins Pediatric Rehabilitation Network: Johns Hopkins Children's Center, Johns Hopkins All Children's Hospital, Mount Washington Pediatric Hospital, and Kennedy Krieger Institute. Videos Dr. Stacy SuskauerPediatric Rehabilitation Recent News Articles and Media Coverage CDC Updates Child Concussion GuidelinesCBS Baltimore (September 2018) On a Search for Markers to Assess the Subtle Signs of Brain InjuryRestore (February 2017) Stimulating Brain Can Speed up Concussion RecoveryWBALTV (February 2017) 4 Myths About Kids and ConcussionsThe Huffington Post (March 2016). Dr. Suskauer is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Traumatic Brain Injury, Concussion, Hemiplegia, and Subdural Hematoma.

After completing her bachelors of science degree in biochemistry from the City College of New York (CUNY), Dr. Smith-Hicks entered the Medical Scientist Training Program at Columbia University College of Physicians and Surgeons, where she obtained her M.D., Ph.D. in 2000. She trained in Pediatrics at the Albert Einstein College of Medicine and completed her Neurology and Pediatric Neurology training at the Johns Hopkins University School of Medicine in 2005. Dr. Smith-Hicks trained as a post-doctoral fellow in the Department of Neuroscience at Johns Hopkins University School of Medicine under the guidance of Dr. Paul Worley. She joined the faculty at Kennedy Krieger Institute in 2010 where she now sees patients with Autism Spectrum Disorder and Rett Syndrome, while conducting basic science research exploring disorders of learning and memory. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Rett Syndrome, Ruvalcaba Syndrome, Autism Spectrum Disorder, and Early Infantile Epileptic Encephalopathy.

Dr. Joanna Burton is a neurodevelopmental pediatrician at the Kennedy Krieger Institute and an assistant professor in the Department of Neurology at the Johns Hopkins School of Medicine. Dr. Burton graduated with honors with a bachelor’s degree in Linguistics from the University of Chicago in 1994. She then taught bilingual special education in Washington, DC for 5 years. She received an MD/PhD in 2008 from the University of Illinois, with the PhD in speech and hearing science, focusing on language acquisition. She then trained in general pediatrics at the University of Maryland Medical Center before receiving specialized training in neurodevelopmental disabilities at the Kennedy Krieger Institute. She currently sees patient with attentional and language based learning difficulties in the Center for Developmental and Learning, focusing on the development concerns of children with complex medical needs and those with a history of perinatal brain injury. She also sees patient in the Neurorehabilitation Concussion Clinic and provides inpatient consultations for high risk infants at Johns Hopkins Hospital. Contact for Research Inquiries 801 N. Broadway Baltimore, MD 21205 Research Summary Dr. Burton's dissertation focused on the effects of environment on assessment of word learning. She is a member of the Neurosciences Intensive Care Nursery (NICN) at the Charlotte Bloomberg Children’s Hospital at the Johns Hopkins Hospital and co-director of the Study on perinatal brain injury recovery and outcome (SPROUT) research collaborative at Kennedy Krieger. She currently investigates the neurodevelopmental outcomes of premature infants and term infants with a history of hypoxic-ischemic encephalopathy. She is working to identify which factors best predict short and long-term neurodevelopment and behavior associated with difficulties in daily living and academic success, specifically in the areas of attention and language. She also works with multi-disciplinary teams to examine potential interventions to mitigate early brain injury in these infants. Dr. Burton is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Intraventricular Hemorrhage of the Newborn, Alternating Hemiplegia of Childhood, Premature Infant, and Multiple Epiphyseal Dysplasia.