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    Last Updated: 01/09/2026

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    MediFind found 7 doctor with experience in Sturge-Weber Syndrome near Columbia, MD. Of these, 5 are Experienced, 1 are Advanced and 1 are Distinguished.

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    7 providers found
      Norman M. Dy
      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      Experienced in Sturge-Weber Syndrome
      Internal Medicine

      Medical Arts Building - Columbia

      11085 Little Patuxent Parkway, Suite 103, Suite 103, 
      Columbia, MD 
       (1.0 miles away)
      Languages Spoken:
      English

      Norman Dy is a primary care provider, practicing in Internal Medicine in Columbia, Maryland. Dr. Dy is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Phacomatosis Pigmentovascularis, Hypothalamic Hamartomas, Phacomatosis Pigmentokeratotica, and Von Hippel-Lindau (VHL) Syndrome.

      Eric H. Kossoff
      Distinguished in Sturge-Weber Syndrome
      Pediatrics | Neurology | Pediatric Neurology
      Distinguished in Sturge-Weber Syndrome
      Pediatrics | Neurology | Pediatric Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
       (14.6 miles away)
      Languages Spoken:
      English

      Dr. Eric Kossoff focuses on the diagnosis and treatment of childhood seizures and epilepsy, particularly treatments other than medications such as diet and neurostimulation. He is one of the world experts on dietary treatment for epilepsy (ketogenic diet) and lectures around the world about this therapy. His specific interests include the ketogenic diet, the modified Atkins diet for children and adults, infantile spasms, benign rolandic epilepsy, the interaction of migraine headaches with epilepsy, and Sturge-Weber syndrome. Dr. Eric Kossoff is also very involved in teaching and is the Director of the Pediatric Neurology Residency Program. He is a professor of neurology and pediatrics at the Johns Hopkins University School of Medicine. He is a co-author of Treatment of Pediatric Neurologic Disorders and the 7th edition of Ketogenic Diet Therapies. Dr. Kossoff sees patients in the Johns Hopkins Outpatient Center (5th floor) in Baltimore on Tuesday afternoons and Thursday mornings. He sees patients at Green Spring Station on Wednesday afternoons. He also participates in telemedicine. Dr. Kossoff received his medical degree from SUNY at Buffalo School of Medicine in New York. He went on to complete a residency in pediatrics at Eastern Virginia Medical School in Norfolk, Virginia. He completed a second residency in child neurology and a fellowship in pediatric epilepsy and clinical neurophysiology at The Johns Hopkins Hospital in Baltimore. Dr. Kossoff is rated as a Distinguished provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Epilepsy, Epilepsy in Children, Seizures, Endovascular Embolization, and Gastrostomy.

      Nathan E. Crone
      Advanced in Sturge-Weber Syndrome
      Advanced in Sturge-Weber Syndrome

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
       (14.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Nathan Crone focuses on the diagnosis and treatment of seizures and epilepsy, including the surgical treatment of epilepsy. He is also one of the attending physicians in the Epilepsy monitoring unit. Dr. Crone''s research interests include the real-time mapping of brain function to reduce the possibility of impacting brain function during surgery for epilepsy. He received his medical degree from Louisiana State University School of Medicine. He then completed his residency in neurology at the University of Chicago and fellowships in epilepsy and cognitive neurology at Johns Hopkins. Dr. Crone is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Deep Brain Stimulation.

      Learn about our expert tiers
      Carl E. Stafstrom
      Experienced in Sturge-Weber Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in Sturge-Weber Syndrome
      Pediatrics | Pediatric Neurology

      Johns Hopkins Outpatient Center

      Baltimore, MD 
       (14.6 miles away)
      Languages Spoken:
      English

      Carl E. Stafstrom is a pediatric neurologist, caring for children with epilepsy. Dr. Stafstrom received his medical degree from the University of Washington School of Medicine in Seattle, with residencies at the University of Washington Medical Center and Tufts New England Medical Center, as well as fellowships at Harvard for neurology research and Boston Children’s Hospital in clinical neurophysiology, electroencephalography, and epilepsy. Dr. Stafstrom previously served as Professor of Neurology and Pediatrics at the University of Wisconsin-Madison School of Medicine and Public Health and Chief of Pediatric Neurology at American Family Children’s Hospital at UW Madison. Dr. Stafstrom is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Epilepsy, Seizures, West Syndrome, Endovascular Embolization, and Deep Brain Stimulation.

      Douglas W. Ball
      Experienced in Sturge-Weber Syndrome
      Endocrinology | Radiology
      Experienced in Sturge-Weber Syndrome
      Endocrinology | Radiology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 7, Floor 7, 
      Baltimore, MD 
       (14.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Douglas Ball is an associate professor of medicine at the Johns Hopkins University School of Medicine. He holds a joint appointment in oncology. His areas of clinical expertise include diagnostic radiology, endocrine oncology, thyroid cancer and thyroid diseases. Dr. Ball earned his M.D. from the George Washington University School of Medicine. He completed his residency at the University of Pittsburgh-Presbyterian University Hospital and performed a fellowship in endocrinology and metabolism at Johns Hopkins. His research interests include medullary thyroid cancer, differentiated thyroid cancer and anaplastic thyroid cancer. Dr. Ball is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Medullary Thyroid Carcinoma, Thyroid Cancer, Anaplastic Thyroid Cancer, Papillary Thyroid Cancer, and Thyroidectomy.

      Kristin Baranano
      Experienced in Sturge-Weber Syndrome
      Pediatric Neurology | Neurology
      Experienced in Sturge-Weber Syndrome
      Pediatric Neurology | Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
       (14.6 miles away)
      Languages Spoken:
      English

      Dr. Barañano earned her M.D. and Ph.D. degrees from the Johns Hopkins University School of Medicine, where she also completed residencies in pediatrics and neurology, along with a fellowship in neurogenetics at the Kennedy Krieger Institute. Dr. Barañano is an Associate Professor of Clinical Neurology. She specializes in the diagnosis and management of rare neurogenetic disorders. She has a particular interest in the genetic control and function of the cerebellum and expertise in childhood-onset and inherited ataxias. She is a member of the multidisciplinary Fetal Management group and is available for prenatal consultations. Dr. Barañano's research includes collaborative efforts with the Johns Hopkins Department of Genetic Medicine and the Division of Neurogenetics at the Kennedy Krieger Institute. Dr. Baranano is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Hypotonia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Focal or Multifocal Malformations in Neuronal Migration, and Hereditary Ataxia.

      Mark G. Luciano
      Experienced in Sturge-Weber Syndrome
      Neurosurgery
      Experienced in Sturge-Weber Syndrome
      Neurosurgery

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
       (14.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Mark Luciano is the director of the Johns Hopkins Hydrocephalus and Cerebral Fluid Center. A renowned leader in treating hydrocephalus, Dr. Luciano is distinguished both nationally and internationally for his research and educational and clinical work in neuroendoscopy. Dr. Luciano treats adults with hydrocephalus, pseudotumor cerebri, intracranial hypotension, Chiari malformations, and cerebral and spinal cysts. He has significant expertise treating children and adults with cerebrospinal fluid leaks and congenital disorders. Among his accomplishments in neuroscience research and biomedical engineering are his investigation of the cerebrovascular response to hydrocephalus and the invention of a unique device for control of intracranial pressure (ICP) pulsatility to increase blood flow. His National Institutes of Health-funded studies have explored prolonged compression and hypoxia in the brain as a result of hydrocephalus, as well as the interaction between cerebrospinal fluid and vascular systems. Dr. Luciano is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Increased Intracranial Pressure, Posterior Fossa Decompression, and Gastrostomy.

      Showing 1-7 of 7

      Last Updated: 01/09/2026

      What is the definition of Sturge-Weber Syndrome?

      Sturge-Weber syndrome (SWS) is a rare disorder that is present at birth. A child with this condition will have a port-wine stain birthmark (usually on the face) and may have nervous system problems.

      When should I see a Sturge-Weber Syndrome doctor near Columbia, MD?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sturge-Weber Syndrome doctor near Columbia, MD?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Sturge-Weber Syndrome doctors near Columbia, MD?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sturge-Weber Syndrome doctors near Columbia, MD?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sturge-Weber Syndrome doctor near Columbia, MD?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sturge-Weber Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sturge-Weber Syndrome doctor near Columbia, MD?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sturge-Weber Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sturge-Weber Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sturge-Weber Syndrome doctors near Columbia, MD?

      Look for the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sturge-Weber Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sturge-Weber Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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