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    Last Updated: 01/09/2026

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    MediFind found 24 doctor with experience in Sturge-Weber Syndrome near Missouri, US. Of these, 21 are Experienced and 3 are Advanced.

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    LocationClose
    24 providers found
      Experienced in Sturge-Weber Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in Sturge-Weber Syndrome
      Hematology Oncology | Hematology | Oncology

      Western Missouri Medical Center

      403 Burkarth Rd, 
      Warrensburg, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Jaswinder Singh is a Hematologist Oncology specialist and a Hematologist in Warrensburg, Missouri. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Pancreatic Cancer, Colorectal Cancer, Familial Colorectal Cancer, Osteotomy, and Vitrectomy. Dr. Singh is currently accepting new patients.

      Advanced in Sturge-Weber Syndrome
      Advanced in Sturge-Weber Syndrome

      The Curators Of The University Of Missouri

      1 Hospital Dr, 
      Columbia, MO 
      Languages Spoken:
      English
      Offers Telehealth

      Michael Chicoine is a Neurosurgery provider in Columbia, Missouri. Dr. Chicoine is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Meningioma, Pituitary Tumor, Brain Tumor, Endoscopic Transnasal Transsphenoidal Surgery, and Endovascular Embolization.

      Advanced in Sturge-Weber Syndrome
      Internal Medicine
      Advanced in Sturge-Weber Syndrome
      Internal Medicine

      Arnold Physical Therapy And Sports Medicine LLC

      9594 Manchester Rd, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Scott Groesch is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Groesch is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Cowden Syndrome, Tieche-Jadassohn Nevus, Linear Nevus Sebaceous Syndrome, and Hypothalamic Hamartomas. Dr. Groesch is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Sturge-Weber Syndrome
      Radiology
      Advanced in Sturge-Weber Syndrome
      Radiology
      1102 W 32nd St, 
      Joplin, MO 
      Languages Spoken:
      English

      Yara Touma is a Radiologist in Joplin, Missouri. Dr. Touma is rated as an Advanced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Peutz-Jeghers Syndrome, Linear Nevus Sebaceous Syndrome, and Cowden Syndrome.

      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      Washington University

      4921 Parkview Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Figenshau is an Urologist in Saint Louis, Missouri. Dr. Figenshau is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Ureterocele, Prostate Cancer, Nephrectomy, and Lithotripsy. Dr. Figenshau is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      Experienced in Sturge-Weber Syndrome
      Internal Medicine

      Phelps County Regional Medical Center

      1050 W 10th St, 
      Rolla, MO 
      Languages Spoken:
      English

      Bohdan Lebedowicz is a primary care provider, practicing in Internal Medicine in Rolla, Missouri. Dr. Lebedowicz is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Type 2 Diabetes (T2D), Lung Metastases, Familial Hypertension, and Hypertension.

      Experienced in Sturge-Weber Syndrome
      Neurosurgery
      Experienced in Sturge-Weber Syndrome
      Neurosurgery

      The Curators Of The University Of Missouri

      1 Hospital Dr, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Paul Santiago is a Neurosurgery provider in Columbia, Missouri. Dr. Santiago is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Scoliosis, Cervical Spondylosis, Sciatica, Laminectomy, and Microdiscectomy. Dr. Santiago is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Gastroenterology
      Experienced in Sturge-Weber Syndrome
      Gastroenterology

      Washington University

      3015 N Ballas Rd, 550 Digestive Disease Ctr, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Dayna Early is a Gastroenterologist in Saint Louis, Missouri. Dr. Early is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Barrett Esophagus, Pancreatic Cancer, Choledocholithiasis, Endoscopy, and Colonoscopy. Dr. Early is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      1035 Bellevue Ave, Suite 400, 
      Saint Louis, MO 
      Languages Spoken:
      English

      Richard Ihnat is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Ihnat is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Type 2 Diabetes (T2D).

      Experienced in Sturge-Weber Syndrome
      Family Medicine
      Experienced in Sturge-Weber Syndrome
      Family Medicine

      Hannibal Regional Healthcare System Inc

      6500 Hospital Dr, 
      Hannibal, MO 
      Languages Spoken:
      English

      Jan Onik is a primary care provider, practicing in Family Medicine in Hannibal, Missouri. Dr. Onik is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Maturity Onset Diabetes of the Young, Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      Experienced in Sturge-Weber Syndrome
      Internal Medicine
      19515 Brune Pkwy, 
      Warrenton, MO 
      Languages Spoken:
      English

      Richard Buckles is a primary care provider, practicing in Internal Medicine in Warrenton, Missouri. Dr. Buckles is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Hypothyroidism, Phacomatosis Pigmentokeratotica, Cowden Syndrome, and Hypothalamic Hamartomas.

      Experienced in Sturge-Weber Syndrome
      Gastroenterology
      Experienced in Sturge-Weber Syndrome
      Gastroenterology
      One Hospital Dr, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Scott Grisolano is a Gastroenterologist in Columbia, Missouri. Dr. Grisolano is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Crohn's Disease, Small Bowel Bacterial Overgrowth, Diarrhea, Endoscopy, and Colonoscopy. Dr. Grisolano is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Family Medicine
      Experienced in Sturge-Weber Syndrome
      Family Medicine

      Western Missouri Medical Center

      1200 W 22nd St, 
      Higginsville, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Jayne Brockhaus is a primary care provider, practicing in Family Medicine in Higginsville, Missouri. Dr. Brockhaus is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Type 2 Diabetes (T2D). Dr. Brockhaus is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Ophthalmology
      Experienced in Sturge-Weber Syndrome
      Ophthalmology
      1 Childrens Pl, Ste 3110, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Gregg Lueder is an Ophthalmologist in Saint Louis, Missouri. Dr. Lueder is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Strabismus, Brown Syndrome, Esotropia, Retinoblastoma, and Endoscopy. Dr. Lueder is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Pediatric Radiology | Neuroradiology | Radiology
      Experienced in Sturge-Weber Syndrome
      Pediatric Radiology | Neuroradiology | Radiology

      The Curators Of The University Of Missouri

      1 Hospital Dr, 
      Columbia, MO 
      Languages Spoken:
      English

      Mai Ho is a Pediatric Radiologist and a Neuroradiologist in Columbia, Missouri. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Rathke Cleft Cyst, Parkes Weber Syndrome, Optic Glioma, and Sturge-Weber Syndrome.

      Experienced in Sturge-Weber Syndrome
      Ophthalmology
      Experienced in Sturge-Weber Syndrome
      Ophthalmology

      Washington University

      4901 Forest Park Ave, Fl 6, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Kisha Piggott is an Ophthalmologist in Saint Louis, Missouri. Dr. Piggott is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Melanoma of the Eye, Metastatic Uveal Melanoma, Choroid Plexus Carcinoma, Retinal Detachment, and Vitrectomy. Dr. Piggott is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Neurology | Pediatrics
      Experienced in Sturge-Weber Syndrome
      Neurology | Pediatrics
      1 Childrens Pl # 3S34, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Wright-Jin is a Neurologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Wright-Jin is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. Her top areas of expertise are Corpus Callosum Agenesis, Aicardi Syndrome, Acrocallosal Syndrome, and Bone Dysplasia Corpus Callosum Agenesis. Dr. Wright-Jin is currently accepting new patients.

      Experienced in Sturge-Weber Syndrome
      Family Medicine
      Experienced in Sturge-Weber Syndrome
      Family Medicine
      Butler, MO 
      Languages Spoken:
      English

      William Haynie is a primary care provider, practicing in Family Medicine in Butler, Missouri. Dr. Haynie is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Chronic Obstructive Pulmonary Disease (COPD), Lung Metastases, Hypothyroidism, and Glucocorticoid-Remediable Aldosteronism.

      Experienced in Sturge-Weber Syndrome
      Endocrinology
      Experienced in Sturge-Weber Syndrome
      Endocrinology

      Washington University

      12634 Olive Blvd, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Offers Telehealth

      Kim Carmichael is an Endocrinologist in Saint Louis, Missouri. Dr. Carmichael is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are Type 2 Diabetes (T2D), Hypoaldosteronism, Familial Glucocorticoid Deficiency, and Glucocorticoid Resistance.

      Experienced in Sturge-Weber Syndrome
      Experienced in Sturge-Weber Syndrome

      The Curators Of The University Of Missouri

      1 Hospital Dr, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Naveen Pokala is an Urologist in Columbia, Missouri. Dr. Pokala is rated as an Experienced provider by MediFind in the treatment of Sturge-Weber Syndrome. His top areas of expertise are WT1-Related Wilms Tumor Syndromes, Clear Cell Sarcoma, Chromophobe Renal Cell Carcinoma, Reconstructive Urology Surgery, and Nephrectomy. Dr. Pokala is currently accepting new patients.

      Showing 1-20 of 24

      Last Updated: 01/09/2026

      What is the definition of Sturge-Weber Syndrome?

      Sturge-Weber syndrome (SWS) is a rare disorder that is present at birth. A child with this condition will have a port-wine stain birthmark (usually on the face) and may have nervous system problems.

      When should I see a Sturge-Weber Syndrome doctor in Missouri, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Sturge-Weber Syndrome doctor in Missouri, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Sturge-Weber Syndrome doctors in Missouri, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Sturge-Weber Syndrome doctors in Missouri, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Sturge-Weber Syndrome doctor in Missouri, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Sturge-Weber Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Sturge-Weber Syndrome doctor in Missouri, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Sturge-Weber Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Sturge-Weber Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Sturge-Weber Syndrome doctors in Missouri, US?

      Look for the filter feature on the left side of the Sturge-Weber Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Sturge-Weber Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Sturge-Weber Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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