Susac Syndrome
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Learn About Susac Syndrome

What is the definition of Susac Syndrome?
Susac syndrome is an autoimmune condition that affects the very small blood vessels in the brain, retina, and inner ear (cochlea). The condition is characterized by three main symptoms: brain disease (encephalopathy), hearing loss, and vision loss. Some people may not have all signs of Susac syndrome, but instead develop only specific combinations of the symptoms. Susac syndrome affects women more than men. The cause of Susac syndrome is still unknown. Diagnosis is based on a clinical exam and imaging tests to look for the specific signs of Susac syndrome.
What are the alternative names for Susac Syndrome?
  • Susac syndrome
  • Retinocochleocerebral vasculopathy
  • SICRET (small infarction of cochlear, retinal, and encephalic tissue) syndrome
Who are the top Susac Syndrome Local Doctors?
Elite in Susac Syndrome
Elite in Susac Syndrome
Referral may be required
Albert Schweitzer Str. 33, 
Muenster, NW, DE 

Ilka Kleffner practices practicing medicine in Muenster, Germany. Ms. Kleffner is rated as an Elite expert by MediFind in the treatment of Susac Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Susac Syndrome, Retinal Artery Occlusion, Multiple Sclerosis (MS), Thrombectomy, and Stent Placement.

Elite in Susac Syndrome
Elite in Susac Syndrome
Referral may be required
Fleni, B, AR 

Mariano Marrodan practices practicing medicine in Fleni, Argentina. Mr. Marrodan is rated as an Elite expert by MediFind in the treatment of Susac Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Susac Syndrome, Retinal Artery Occlusion, Multiple Sclerosis (MS), and Transverse Myelitis.

 
 
 
 
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Elite in Susac Syndrome
Elite in Susac Syndrome
Referral may be required
Fleni, B, AR 

Marcela Fiol practices practicing medicine in Fleni, Argentina. Ms. Fiol is rated as an Elite expert by MediFind in the treatment of Susac Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Susac Syndrome, Retinal Artery Occlusion, Multiple Sclerosis (MS), and Relapsing Multiple Sclerosis (RMS).

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What are the latest Susac Syndrome Clinical Trials?
Phenotypic and Etiological Characterization of Susac Syndrome
Phenotypic and Etiological Characterization of Susac Syndrome
Enrollment Status: Recruiting
Publish Date: May 07, 2026

Summary: SUSAC's Syndrome (SS) is characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with SS, mostly young women, have been reported. However, comprehensive epidemiological, clinical and etiological features of SS have never been specifically addressed so far.

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Study of Pathogenic Mechanisms and Identification of Novel Autoantibodies in Autoimmune Encephalitis Through the Integration of Conventional Methodologies and Advanced Single-cell Technologies
Study of Pathogenic Mechanisms and Identification of Novel Autoantibodies in Autoimmune Encephalitis Through the Integration of Conventional Methodologies and Advanced Single-cell Technologies
Enrollment Status: Recruiting
Publish Date: March 17, 2026

Summary: Autoimmune encephalitis is a debilitating neurological disorder that usually appears as a rapidly progressive form of brain dysfunction, typically developing in less than six weeks, caused by inflammation in the brain. These conditions show a wide range of clinical and immunological presentations and are generally divided into two main types. The first type includes what are called paraneoplastic ...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center