Dr. Albayda is an Associate Professor of Medicine in the Division of Rheumatology. She is the Director of the Rheumatology Fellowship Program, as well as Director of the Musculoskeletal Ultrasound and Injection Clinic. Nationally, she is involved in MSK Ultrasound education and has expertise in arthritis and inflammatory myopathies. Her research focuses on imaging biomarkers in rheumatic diseases, developing muscle ultrasound, clinical phenotypes in myositis, as well as longitudinal care and therapeutics in inclusion body myositis. Dr. Albayda is rated as an Advanced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Dermatomyositis, Pallister-Killian Mosaic Syndrome, Temple Syndrome, and Inclusion Body Myositis.

I am a pediatric neurologist with expertise in epilepsy and electroencephalography (EEG). My clinical and research interests include genetics of epilepsy, medical management of patients with intractable epilepsy and presurgical evaluation of patients who are candidates for epilepsy surgery. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. His top areas of expertise are Seizures, Benign Rolandic Epilepsy, Rett Syndrome, Lennox-Gastaut Syndrome (LGS), and Thrombectomy.

Dr. Julie Hoover-Fong is a Professor of Genetic Medicine and Pediatrics and Director of the Greenberg Center for Skeletal Dysplasias at Johns Hopkins University. Dr. Hoover-Fong holds a bachelor’s degree in Human Nutrition from The Ohio State University, where she also completed her medical degree. She received her Ph.D. in the Graduate Training Program in Clinical Investigation at the Johns Hopkins University School of Medicine and Bloomberg School of Public Health. Dr. Hoover-Fong completed a pediatric internship and residency at Washington University in St. Louis and a fellowship in medical genetics at Johns Hopkins University in Baltimore. She joined the Johns Hopkins University faculty in 2002 and progressed to Professor of Genetic Medicine and Pediatrics in 2019. She practices and oversees the clinical operations, research and educational ventures for the patients, families and healthcare providers served by the Greenberg Center. Her clinical team develops and improves diagnostic and treatment guidelines for comprehensive care of patients with all types of bone conditions including dwarfism, orofacial clefting, craniosynostosis and more. Dr. Hoover-Fong also mentors and teaches medical students, residents and genetic medicine trainees. As an active clinical researcher, Dr. Hoover-Fong is the Principal Investigator of multiple global clinical trials for achondroplasia, the first multi-center, investigator-initiated natural history study for achondroplasia, and multiple clinical studies for patients with orofacial clefting, hypophosphatasia and other conditions. She is also a co-investigator on the ELSI and Phenotype Review Committees for the Mendel Project, a whole exome sequencing venture to identify the genetic cause of Mendelian conditions. From an institutional service perspective, Dr. Hoover-Fong serves on the Johns Hopkins Associate Professor Promotions Committee and the Advisory Committee for the Graduate Training Program in Clinical Investigation. She serves on the Medical Advisory Board of the Little People of America, is a member of the Miller-Coulson Academy of Clinical Excellence at Johns Hopkins University and is a charter member of the International Skeletal Dysplasia Management Consortium, publishing best practice guidelines for patients with skeletal dysplasias. Dr. Hoover is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Achondroplasia, Rhizomelic Syndrome, Spondyloepimetaphyseal Dysplasia Strudwick Type, Adenoidectomy, and Myringotomy.

Dr. Barañano earned her M.D. and Ph.D. degrees from the Johns Hopkins University School of Medicine, where she also completed residencies in pediatrics and neurology, along with a fellowship in neurogenetics at the Kennedy Krieger Institute. Dr. Barañano is an Associate Professor of Clinical Neurology. She specializes in the diagnosis and management of rare neurogenetic disorders. She has a particular interest in the genetic control and function of the cerebellum and expertise in childhood-onset and inherited ataxias. She is a member of the multidisciplinary Fetal Management group and is available for prenatal consultations. Dr. Barañano's research includes collaborative efforts with the Johns Hopkins Department of Genetic Medicine and the Division of Neurogenetics at the Kennedy Krieger Institute. Dr. Baranano is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Hypotonia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Focal or Multifocal Malformations in Neuronal Migration, and Hereditary Ataxia.

Tara Saggar is a primary care provider, practicing in Internal Medicine in Waldorf, Maryland. Dr. Saggar is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Mosaic Variegated Aneuploidy Syndrome, Chromosome 2 Uniparental Disomy, Chromosome 6 Uniparental Disomy, and Chromosome 11 Uniparental Disomy.

Sofia Saenz-Ayala is a Medical Genetics specialist and a Pediatrics provider in Baltimore, Maryland. Dr. Saenz-Ayala is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Carnitine Palmitoyltransferase 1 Deficiency, and Carnitine Palmitoyltransferase 2 Deficiency. Dr. Saenz-Ayala is currently accepting new patients.

After completing her bachelors of science degree in biochemistry from the City College of New York (CUNY), Dr. Smith-Hicks entered the Medical Scientist Training Program at Columbia University College of Physicians and Surgeons, where she obtained her M.D., Ph.D. in 2000. She trained in Pediatrics at the Albert Einstein College of Medicine and completed her Neurology and Pediatric Neurology training at the Johns Hopkins University School of Medicine in 2005. Dr. Smith-Hicks trained as a post-doctoral fellow in the Department of Neuroscience at Johns Hopkins University School of Medicine under the guidance of Dr. Paul Worley. She joined the faculty at Kennedy Krieger Institute in 2010 where she now sees patients with Autism Spectrum Disorder and Rett Syndrome, while conducting basic science research exploring disorders of learning and memory. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Rett Syndrome, Ruvalcaba Syndrome, Autism Spectrum Disorder, and Early Infantile Epileptic Encephalopathy.

Amena Fine is a Pediatrics provider in Baltimore, Maryland. Dr. Fine is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, HNRNPH2-Related Disorder, and Leukodystrophy.

Neil Porter is a Neurologist in Baltimore, Maryland. Dr. Porter is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. His top areas of expertise are Myasthenia Gravis, Mononeuritis Multiplex, Multiple Mononeuropathy, Riboflavin Transporter Deficiency Neuronopathy, and Gastrostomy.

Dr. Gill cares for children with epilepsy and developmental, behavioral or psychiatric challenges. Her research and clinical interests include tuberous sclerosis complex, EEG biomarker development, and the intersection of epilepsy, genetics, and neurodevelopment. Dr. Gill is rated as an Experienced provider by MediFind in the treatment of Temple Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Sturge-Weber Syndrome, and West Syndrome.