Tethered Cord Syndrome
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Tethered Cord Syndrome Overview

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Learn About Tethered Cord Syndrome

What is the definition of Tethered Cord Syndrome?
Tethered cord syndrome is a rare neurological condition. The severity of the condition and the associated signs and symptoms vary from person to person. Features of the condition may include foot and spinal abnormalities; weakness in the legs; loss of sensation (feeling) in the lower limbs; lower back pain; scoliosis; and urinary incontinence. Infants and children with congenital Tethered cord syndrome may also have tufts of hair, dimples, skin discoloration, or benign fatty tumors on the lower back. Tethered cord syndrome occurs when tissue attachments limit the movement of the spinal cord within the spinal column. In some cases, it may be the result of improper growth of the neural tube during fetal development, which is closely linked to spina bifida. Other potential causes include narrowing of the spinal column (with age), spinal cord injury, tumors, and infection.
What are the alternative names for Tethered Cord Syndrome?
  • Tethered cord syndrome
  • Occult spinal dysraphism
  • Occult spinal dysraphism sequence
  • Segmental vertebral anomalies
  • Tethered spinal cord syndrome
Who are the top Tethered Cord Syndrome Local Doctors?
Elite in Tethered Cord Syndrome
Dr. Petra Klinge
Neurosurgery
Elite in Tethered Cord Syndrome
Dr. Petra Klinge
Neurosurgery

Rhode Island Hospital

593 Eddy St, 
Providence, RI 
401-793-9123
Languages Spoken:
English
See accepted insurances

Petra Klinge is a Neurosurgery provider practicing medicine in Providence, Rhode Island. Dr. Klinge is rated as an Elite provider by MediFind in the treatment of Tethered Cord Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Tethered Cord Syndrome, Hydrocephalus, Normal Pressure Hydrocephalus, Laminectomy, and Posterior Fossa Decompression.

Elite in Tethered Cord Syndrome
Dr. Ziya Gokaslan
Neurosurgery
Elite in Tethered Cord Syndrome
Dr. Ziya Gokaslan
Neurosurgery

Rhode Island Hospital

593 Eddy St, 
Providence, RI 
401-793-9132
Languages Spoken:
English
See accepted insurances
Offers Telehealth

Ziya Gokaslan is a Neurosurgery provider practicing medicine in Providence, Rhode Island. Dr. Gokaslan is rated as an Elite provider by MediFind in the treatment of Tethered Cord Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Chordoma, Tethered Cord Syndrome, Bone Tumor, Laminectomy, and Spinal Fusion.

 
 
 
 
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Elite in Tethered Cord Syndrome
Dr. Laurie Ackerman
General Surgery
Elite in Tethered Cord Syndrome
Dr. Laurie Ackerman
General Surgery

Office

702 Barnhill Dr Rm 1134, 
Indianapolis, IN 
317-274-8852
Languages Spoken:
English
See accepted insurances

Laurie Ackerman is a General Surgeon practicing medicine in Indianapolis, Indiana. Dr. Ackerman is rated as an Elite provider by MediFind in the treatment of Tethered Cord Syndrome. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Tethered Cord Syndrome, Chiari Malformation, Chiari Malformation Type 2, Posterior Fossa Decompression, and Laminectomy.

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What are the latest Tethered Cord Syndrome Clinical Trials?
Phase II Pilot Randomized-Controlled Trial for the Investigation of the Preliminary Efficacy of Surgical Sectioning of the Filum Terminale in Treating Occult Tethered Cord Syndrome Patients
Phase II Pilot Randomized-Controlled Trial for the Investigation of the Preliminary Efficacy of Surgical Sectioning of the Filum Terminale in Treating Occult Tethered Cord Syndrome Patients
Who is this study for: Patients with Tethered Cord Syndrome, Occult Spina Bifida
Enrollment Status: Recruiting
Publish Date: May 23, 2025
Intervention Type: Procedure
Study Phase: Phase 2

Summary: The investigators hypothesize that surgical release of the filum terminale (strand of fibrous tissue at the end of the spinal cord) is a more efficacious treatment option for symptomatic relief than medical management in subjects with Occult Tethered Cord Syndrome (OTCS) and that the risks do not outweigh the benefit profile.

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center