Tethered Cord Syndrome Overview

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Learn About Tethered Cord Syndrome

What is the definition of Tethered Cord Syndrome?
Tethered cord syndrome is a rare neurological condition. The severity of the condition and the associated signs and symptoms vary from person to person. Features of the condition may include foot and spinal abnormalities; weakness in the legs; loss of sensation (feeling) in the lower limbs; lower back pain; scoliosis; and urinary incontinence. Infants and children with congenital Tethered cord syndrome may also have tufts of hair, dimples, skin discoloration, or benign fatty tumors on the lower back. Tethered cord syndrome occurs when tissue attachments limit the movement of the spinal cord within the spinal column. In some cases, it may be the result of improper growth of the neural tube during fetal development, which is closely linked to spina bifida. Other potential causes include narrowing of the spinal column (with age), spinal cord injury, tumors, and infection.
What are the alternative names for Tethered Cord Syndrome?
  • Tethered cord syndrome
  • Occult spinal dysraphism
  • Occult spinal dysraphism sequence
  • Segmental vertebral anomalies
  • Tethered spinal cord syndrome
Who are the top Tethered Cord Syndrome Local Doctors?
Elite in Tethered Cord Syndrome
Dr. Petra M. Klinge
Neurosurgery
Elite in Tethered Cord Syndrome
Dr. Petra M. Klinge
Neurosurgery

Lifespan Physician Group Inc

185 High Service Ave, 
North Providence, RI 
401-354-6050
Languages Spoken:
English
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Petra Klinge is a Neurosurgery provider in North Providence, Rhode Island. Dr. Klinge is rated as an Elite provider by MediFind in the treatment of Tethered Cord Syndrome. Her top areas of expertise are Tethered Cord Syndrome, Hydrocephalus, Normal Pressure Hydrocephalus, Posterior Fossa Decompression, and Laminectomy.

Elite in Tethered Cord Syndrome
Dr. Ziya L. Gokaslan
Neurosurgery
Elite in Tethered Cord Syndrome
Dr. Ziya L. Gokaslan
Neurosurgery

Lifespan Physician Group Inc

593 Eddy St Apc, Suite 6, 
Providence, RI 
401-793-9172
Languages Spoken:
English
See accepted insurances
Offers Telehealth

Ziya Gokaslan is a Neurosurgery provider in Providence, Rhode Island. Dr. Gokaslan is rated as an Elite provider by MediFind in the treatment of Tethered Cord Syndrome. His top areas of expertise are Tethered Cord Syndrome, Chordoma, Bone Tumor, Laminectomy, and Spinal Fusion.

 
 
 
 
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Elite in Tethered Cord Syndrome
Dr. Laurie L. Ackerman
Neurosurgery | Pediatric Surgery
Elite in Tethered Cord Syndrome
Dr. Laurie L. Ackerman
Neurosurgery | Pediatric Surgery
1701 N Senate Blvd, 
Indianapolis, IN 
888-484-3258
Languages Spoken:
English
See accepted insurances
Accepting New Patients

Laurie Ackerman is a Neurosurgery specialist and a Pediatric Surgeon in Indianapolis, Indiana. Dr. Ackerman is rated as an Elite provider by MediFind in the treatment of Tethered Cord Syndrome. Her top areas of expertise are Tethered Cord Syndrome, Chiari Malformation, Chiari Malformation Type 2, Posterior Fossa Decompression, and Laminectomy. Dr. Ackerman is currently accepting new patients.

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What are the latest Tethered Cord Syndrome Clinical Trials?
Phase II Pilot Randomized-Controlled Trial for the Investigation of the Preliminary Efficacy of Surgical Sectioning of the Filum Terminale in Treating Occult Tethered Cord Syndrome Patients
Phase II Pilot Randomized-Controlled Trial for the Investigation of the Preliminary Efficacy of Surgical Sectioning of the Filum Terminale in Treating Occult Tethered Cord Syndrome Patients
Who is this study for: Patients with Tethered Cord Syndrome, Occult Spina Bifida
Enrollment Status: Recruiting
Publish Date: May 23, 2025
Intervention Type: Procedure
Study Phase: Phase 2

Summary: The investigators hypothesize that surgical release of the filum terminale (strand of fibrous tissue at the end of the spinal cord) is a more efficacious treatment option for symptomatic relief than medical management in subjects with Occult Tethered Cord Syndrome (OTCS) and that the risks do not outweigh the benefit profile.

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center