TSC Alliance Tuberous Sclerosis Complex (TSC) Biosample Repository and Natural History Database
Status: Recruiting
Location: See all (24) locations...
Intervention Type: Procedure, Genetic, Other
Study Type: Observational
SUMMARY
The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).
Locations
United States
Alabama
University of Alabama Birmingham
RECRUITING
Birmingham
California
Loma Linda University Children's Hospital
ACTIVE_NOT_RECRUITING
Loma Linda
University of California Los Angeles
RECRUITING
Los Angeles
Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center
SUSPENDED
Oakland
Colorado
The Children's Hospital
ACTIVE_NOT_RECRUITING
Denver
Florida
Nicklaus Children's Hospital
RECRUITING
Miami
Iowa
University of Iowa Hospitals and Clinics
RECRUITING
Iowa City
Illinois
Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago
ACTIVE_NOT_RECRUITING
Chicago
Massachusetts
Boston Children's Hospital
RECRUITING
Boston
Massachusetts General Hospital
RECRUITING
Boston
Maryland
TSC Alliance
RECRUITING
Silver Spring
Minnesota
Minnesota Epilepsy Group
RECRUITING
Roseville
Missouri
Washington University in St. Louis
RECRUITING
St Louis
New York
New York University Medical Center
RECRUITING
New York
Ohio
Cincinnati Children's Hospital Medical Center
RECRUITING
Cincinnati
Cleveland Clinic Foundation
RECRUITING
Cleveland
Pennsylvania
University of Pennsylvania Medical Center
ACTIVE_NOT_RECRUITING
Philadelphia
Tennessee
Le Bonheur Children's Hospital
RECRUITING
Memphis
Texas
Scottish Rite Hospital for Children
RECRUITING
Dallas
Memorial Hermann-Texas Medical Center (University of Texas Houston)
RECRUITING
Houston
Texas Childrens Hospital Baylor College of Medicine
RECRUITING
Houston
Virginia
Children's National Medical Center
RECRUITING
Fairfax
Other Locations
Canada
Centre Hospitalier de L'Université de Montréal (Chum)
RECRUITING
Montreal
Sainte-Justine Université de Montréal
RECRUITING
Montreal
Contact Information
Primary
Elizabeth Cassidy, MPH
ecassidy@tscalliance.org
301-562-9890
Backup
Ayat Abi
aabi@tscalliance.org
Time Frame
Start Date: 2016-01
Estimated Completion Date: 2050-12
Participants
Target number of participants: 5000
Related Therapeutic Areas
Sponsors
Leads: National Tuberous Sclerosis Association