The 20 Best Tuberous Sclerosis Doctors Near Me in North Rhine-Westphalia, DE

Find the Top Tuberous Sclerosis Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 28 doctor with experience in Tuberous Sclerosis near North Rhine-Westphalia, DE. Of these, 21 are Experienced, 4 are Distinguished and 3 are Advanced.

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28 providers found
    Distinguished in Tuberous Sclerosis
    Distinguished in Tuberous Sclerosis
    Referral may be required
    Oestrich, NW, DE 

    Carla Fladrowski practices practicing medicine in Oestrich, Germany. Ms. Fladrowski is rated as a Distinguished expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and West Syndrome.

    Distinguished in Tuberous Sclerosis
    Distinguished in Tuberous Sclerosis
    Referral may be required
    Essen, NW, DE 

    Susanne Brakemeier practices practicing medicine in Essen, Germany. Ms. Brakemeier is rated as a Distinguished expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis Complex, Tuberous Sclerosis, Lymphangioleiomyomatosis, Kidney Transplant, and Pancreas Transplant.

    Distinguished in Tuberous Sclerosis
    Distinguished in Tuberous Sclerosis
    Referral may be required
    Muenster, NW, DE 

    Daniel Fakhari-Ebrahimi practices practicing medicine in Muenster, Germany. Mr. Fakhari-Ebrahimi is rated as a Distinguished expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Infantile Neutropenia.

    Learn about our expert tiers
    Distinguished in Tuberous Sclerosis
    Distinguished in Tuberous Sclerosis
    Referral may be required
    Bielefeld, NW, DE 

    Tilman Polster practices practicing medicine in Bielefeld, Germany. Mr. Polster is rated as a Distinguished expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Dravet Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and Cortical Dysplasia.

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis
    Referral may be required
    Bonn, NW, DE 

    Kerstin Klotz practices practicing medicine in Bonn, Germany. Ms. Klotz is rated as an Advanced expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Hypothalamic Hamartomas, Epilepsy, Myoclonic Epilepsy, and Lennox-Gastaut Syndrome (LGS).

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis
    Referral may be required
    St. Josef Hospital, 
    Bochum, NW, DE 

    Charlotte Thiels practices practicing medicine in Bochum, Germany. Ms. Thiels is rated as an Advanced expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Myelitis.

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis
    Referral may be required
    AMEOS Klinikum St. Clemens, 
    Oberhausen, NW, DE 

    Jan-ulrich Schlump practices practicing medicine in Oberhausen, Germany. Schlump is rated as an Advanced expert by MediFind in the treatment of Tuberous Sclerosis. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, West Syndrome, Cortical Dysplasia, and Thrombectomy.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Koeln, NW, DE 

    Constantinos Demetriades practices practicing medicine in Koeln, Germany. Mr. Demetriades is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. His clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, and Cortical Dysplasia.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Bonn, NW, DE 

    Annabelle Arlt practices practicing medicine in Bonn, Germany. Ms. Arlt is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Supernumerary Nipples, Focal Dermal Hypoplasia, Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), and Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1).

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Johann Strauß Str. 11a, 
    Bielefeld, NW, DE 

    Theodor May practices practicing medicine in Bielefeld, Germany. Mr. May is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Generalized Tonic-Clonic Seizure, Seizures, and Myoclonic Epilepsy.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Muenster, NW, DE 

    Barbara Fiedler practices practicing medicine in Muenster, Germany. Ms. Fiedler is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Syringomyelia, Chiari Malformation Type 2, Oculomotor Apraxia Cogan Type, and Tuberous Sclerosis.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Ludwig Erhard Allee 2, 
    Bonn, NW, DE 

    Dan Ehninger practices practicing medicine in Bonn, Germany. Mr. Ehninger is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. His clinical expertise encompasses Alzheimer's Disease, Noonan Syndrome, Dementia, and RASopathies.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Bonn, NW, DE 

    Barbara Robens practices practicing medicine in Bonn, Germany. Ms. Robens is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. Her clinical expertise encompasses Epilepsy, Mosaicism, Seizures, and Tuberous Sclerosis Complex.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Bielefeld, NW, DE 

    Christian Brandt practices practicing medicine in Bielefeld, Germany. Mr. Brandt is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Seizures, Absence Seizure, and Generalized Tonic-Clonic Seizure.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Karin Mayer practices practicing medicine in Bonn, Germany. Ms. Mayer is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Leukemia, Thrombectomy, and Bone Marrow Transplant.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Muenster, NW, DE 

    Heymut Omran practices practicing medicine in Muenster, Germany. Omran is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. They are also highly rated in 14 other conditions, according to our data. Their clinical expertise encompasses Situs Inversus, Ciliary Dyskinesia-Bronchiectasis, Kartagener Syndrome, and Drug Induced Dyskinesia.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Essen, NW, DE 

    Kathrin Thedieck practices practicing medicine in Essen, Germany. Ms. Thedieck is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. Her clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Lymphangioleiomyomatosis.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Aachen, NW, DE 

    Yvonne Weber practices practicing medicine in Aachen, Germany. Ms. Weber is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Seizures, Epilepsy in Children, Absence Seizure, and Deep Brain Stimulation.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Wilhelm Klemm Str. 2, 
    Muenster, NW, DE 

    Andrea Oeckinghaus practices practicing medicine in Muenster, Germany. Ms. Oeckinghaus is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. Her clinical expertise encompasses Pancreatic Cancer, Tuberous Sclerosis, Tuberous Sclerosis Complex, and Cortical Dysplasia.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis
    Referral may be required
    Von Esmarch Str. 56, 
    Muenster, NW, DE 

    Daniel Kummel practices practicing medicine in Muenster, Germany. Mr. Kummel is rated as an Experienced expert by MediFind in the treatment of Tuberous Sclerosis. His clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, and Cortical Dysplasia.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 28

    Last Updated: 11/08/2026

    What is the definition of Tuberous Sclerosis?

    Tuberous sclerosis is a genetic disorder that affects the skin, brain and nervous system, kidneys, heart, and lungs. The condition can also cause tumors to grow in the brain. These tumors have a tuber or root-shaped appearance.

    When should I see a Tuberous Sclerosis doctor in North Rhine-Westphalia, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tuberous Sclerosis doctor in North Rhine-Westphalia, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Tuberous Sclerosis doctor in North Rhine-Westphalia, DE?

    You can find a Tuberous Sclerosis doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Tuberous Sclerosis doctors in North Rhine-Westphalia, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tuberous Sclerosis doctors in North Rhine-Westphalia, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tuberous Sclerosis doctor in North Rhine-Westphalia, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tuberous Sclerosis doctor search results page. 

    Why is it important to get a second opinion from a different Tuberous Sclerosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tuberous Sclerosis doctor in North Rhine-Westphalia, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tuberous Sclerosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tuberous Sclerosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tuberous Sclerosis doctors in North Rhine-Westphalia, DE?

    Look for the filter feature on the left side of the Tuberous Sclerosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tuberous Sclerosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Tuberous Sclerosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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