The 20 Best Tuberous Sclerosis Doctors Near Me in Illinois, US

Find the Top Tuberous Sclerosis Experts and Specialists

The 20 Best Tuberous Sclerosis Doctors in Illinois, US

Last Updated: 02/22/2026

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MediFind found 50 doctor with experience in Tuberous Sclerosis near Illinois, US. Of these, 39 are Experienced, 10 are Advanced and 1 are Distinguished.

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50 providers found
    Distinguished in Tuberous Sclerosis
    Distinguished in Tuberous Sclerosis

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    James Tonsgard is a Pediatrics provider in Chicago, Illinois. Dr. Tonsgard is rated as a Distinguished provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies.

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Sunila O'connor is a Neurologist in Chicago, Illinois. Dr. O'connor is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Status Epilepticus, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, and Epilepsy Juvenile Absence.

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    David Bieber is a Neurologist in Chicago, Illinois. Dr. Bieber is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Memory Loss, Partial Seizure, Athetosis, and Seizures.

    Learn about our expert tiers
    Amitabha Mitra
    Experienced in Tuberous Sclerosis
    Nephrology | Internal Medicine
    Experienced in Tuberous Sclerosis
    Nephrology | Internal Medicine

    Associates In Nephrology, SC

    121 S. Wilke Rd., Suite 111, 
    Arlington Heights, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Amitabha Mitra is an Internal Medicine specialist and a Nephrologist in Arlington Heights, Illinois. Dr. Mitra is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Acute Kidney Failure, Necrosis, Chronic Kidney Disease, and End-Stage Renal Disease (ESRD).

    Leslie Finkel
    Experienced in Tuberous Sclerosis
    Pediatric Neurology
    Experienced in Tuberous Sclerosis
    Pediatric Neurology

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
    Languages Spoken:
    English

    Leslie S. Finkel, MD, a pediatric neurologist at Endeavor Health, has over a decade of experience diagnosing and treating neurological conditions in children. She provides care for a range of concerns, including seizures, developmental delays and neuromuscular disorders, working with families to support each child’s neurological health. Dr. Finkel is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Migraine, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Migraine with Brainstem Aura, and Seizures.

    Asadullah Khan
    Experienced in Tuberous Sclerosis
    Hematology | Oncology
    Experienced in Tuberous Sclerosis
    Hematology | Oncology

    Endeavor Health Medical Group

    880 W. Central Rd., Suite 7200, 
    Arlington Heights, IL 
    Languages Spoken:
    English

    Asadullah Khan is a Hematologist and an Oncologist in Arlington Heights, Illinois. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Spinal Muscular Atrophy Type 1, Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, and Embryonal Tumor with Multilayered Rosettes.

    Shen Song
    Experienced in Tuberous Sclerosis
    Nephrology | Internal Medicine
    Experienced in Tuberous Sclerosis
    Nephrology | Internal Medicine

    Nephrology Associates Of Northern Illinois, Ltd.

    601 W. Golf Rd., Suite 105, 
    Mount Prospect, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Shen Song is an Internal Medicine specialist and a Nephrologist in Mount Prospect, Illinois. Dr. Song is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Acute Kidney Failure, Acute Tubular Necrosis, Nephrosclerosis, and Renovascular Hypertension.

    Karan S. Dixit
    Experienced in Tuberous Sclerosis
    Hematology Oncology | Neurology | Hematology
    Experienced in Tuberous Sclerosis
    Hematology Oncology | Neurology | Hematology
    675 N St Clair St Ste 20-100, Galter Pavilion, 
    Chicago, IL 
    Experience:
    15+ years
    Languages Spoken:
    English
    Offers Telehealth

    Karan Dixit is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. Dr. Dixit has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Astrocytoma, Glioma, Brain Tumor, Glioblastoma, and Gastrostomy.

    Christopher Mcgraw
    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    12+ years
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Mcgraw is a Neurologist in Chicago, Illinois. Dr. Mcgraw has been practicing medicine for over 12 years and is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Rett Syndrome, Seizures, Epilepsy, and Generalized Tonic-Clonic Seizure.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joshua Goldstein is a Neurologist in Chicago, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Landau-Kleffner Syndrome, Athetosis, Photosensitive Epilepsy, and Seizures.

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joanna Garcia is a Neurologist in Chicago, Illinois. Dr. Garcia is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Seizures, Partial Seizure, Absence Seizure, and Epilepsy in Children.

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Arlene Chapman is a Nephrologist in Chicago, Illinois. Dr. Chapman is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, Chronic Kidney Disease, Tuberous Sclerosis, and Kidney Transplant.

    Advanced in Tuberous Sclerosis
    Neurology
    Advanced in Tuberous Sclerosis
    Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Anna Jeong is a Neurologist in Chicago, Illinois. Dr. Jeong is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and West Syndrome.

    Advanced in Tuberous Sclerosis
    Pediatric Nephrology
    Advanced in Tuberous Sclerosis
    Pediatric Nephrology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Jill Krissberg is a Pediatric Nephrologist in Chicago, Illinois. Dr. Krissberg is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Nephrotic Syndrome, Feingold Syndrome, Congenital Nephrotic Syndrome, Meckel Syndrome, and Kidney Transplant.

    Advanced in Tuberous Sclerosis
    Neurology
    Advanced in Tuberous Sclerosis
    Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Divya Desai is a Neurologist in Chicago, Illinois. Dr. Desai is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Athetosis, Photosensitive Epilepsy, Landau-Kleffner Syndrome, and Partial Seizure.

    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Rebecca Garcia is a Neurologist in Chicago, Illinois. Dr. Garcia is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Myoclonic Epilepsy, Partial Seizure, Photosensitive Epilepsy, and Partial Familial Epilepsy.

    Advanced in Tuberous Sclerosis
    Family Medicine
    Advanced in Tuberous Sclerosis
    Family Medicine

    Morris Hospital & Healthcare Centers

    150 W High St, 
    Morris, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Colin Kao is a primary care provider, practicing in Family Medicine in Morris, Illinois. Dr. Kao is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Maturity Onset Diabetes of the Young, and Hypertension.

    Mohamed A. Katerji
    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis

    Katerji Pediatric Neurology & Associates, SC

    1220 Iroquois Ave, 
    Naperville, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Mohamed Katerji is a Neurologist in Naperville, Illinois. Dr. Katerji is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Athetosis, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Douglas Nordli
    Experienced in Tuberous Sclerosis
    Pediatric Neurology
    Experienced in Tuberous Sclerosis
    Pediatric Neurology

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Douglas Nordli is a Pediatric Neurologist in Chicago, Illinois. Dr. Nordli is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Epilepsy, Seizures, and Epilepsy in Children.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Dina Soloveychik is a Neurologist in Chicago, Illinois. Dr. Soloveychik is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Partial Seizure, Seizures, Absence Seizure, and Epilepsy Juvenile Absence.

    Showing 1-20 of 50

    Last Updated: 02/22/2026

    What is the definition of Tuberous Sclerosis?

    Tuberous sclerosis is a genetic disorder that affects the skin, brain/nervous system, kidneys, heart, and lungs. The condition can also cause tumors to grow in the brain. These tumors have a tuber or root-shaped appearance.

    When should I see a Tuberous Sclerosis doctor in Illinois, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tuberous Sclerosis doctor in Illinois, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tuberous Sclerosis doctors in Illinois, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tuberous Sclerosis doctors in Illinois, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tuberous Sclerosis doctor in Illinois, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tuberous Sclerosis doctor search results page. 

    Why is it important to get a second opinion from a different Tuberous Sclerosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tuberous Sclerosis doctor in Illinois, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tuberous Sclerosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tuberous Sclerosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tuberous Sclerosis doctors in Illinois, US?

    Look for the filter feature on the left side of the Tuberous Sclerosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tuberous Sclerosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Tuberous Sclerosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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