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    Last Updated: 10/30/2025

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    MediFind found 99 doctor with experience in Tuberous Sclerosis near New York, US. Of these, 91 are Experienced, 5 are Advanced and 2 are Elite.

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    99 providers found
      Elite in Tuberous Sclerosis
      Neurology | General Surgery
      Elite in Tuberous Sclerosis
      Neurology | General Surgery

      New York University

      223 E 34th St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Orrin Devinsky is a Neurologist and a General Surgeon in New York, New York. Dr. Devinsky is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Myoclonic Epilepsy, Dravet Syndrome, Seizures, Epilepsy, and Deep Brain Stimulation.

      Elite in Tuberous Sclerosis
      Pediatric Neurology | Neurology
      Elite in Tuberous Sclerosis
      Pediatric Neurology | Neurology

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Jamie Capal is a Pediatric Neurologist and a Neurologist in Rochester, New York. Dr. Capal is rated as an Elite provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Autism Spectrum Disorder.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Tuberous Sclerosis
      Advanced in Tuberous Sclerosis

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Derek Bauer is a Neurologist in Rochester, New York. Dr. Bauer is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Seizures, Memory Loss, Partial Seizure, and Partial Familial Epilepsy.

      Learn about our expert tiers
      Experienced in Tuberous Sclerosis
      Experienced in Tuberous Sclerosis

      Icahn School Of Medicine At Mount Sinai

      2510 30th Ave, 
      Long Island City, NY 
      Languages Spoken:
      English
      Accepting New Patients

      Gena Ghearing is a Neurologist in Long Island City, New York. Dr. Ghearing is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Seizures, Epilepsy, Memory Loss, and Partial Seizure. Dr. Ghearing is currently accepting new patients.

      Advanced in Tuberous Sclerosis
      Pediatric Neurology | Pediatrics
      Advanced in Tuberous Sclerosis
      Pediatric Neurology | Pediatrics
      1275 York Ave, 
      New York, NY 
      Languages Spoken:
      English

      Zachary Grinspan is a Pediatric Neurologist and a Pediatrics provider in New York, New York. Dr. Grinspan is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Epilepsy in Children, West Syndrome, Epilepsy, and Spasmus Nutans.

      Advanced in Tuberous Sclerosis
      Pediatric Neurology
      Advanced in Tuberous Sclerosis
      Pediatric Neurology

      Saw Mill Specialty Office

      40 Saw Mill River Road, Suite FB-1, 
      Hawthorne, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Steven Wolf is a Pediatric Neurologist in Hawthorne, New York. Dr. Wolf is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Epilepsy, Lennox-Gastaut Syndrome (LGS), Seizures, Thrombectomy, and Deep Brain Stimulation.

      Advanced in Tuberous Sclerosis
      Neurology
      Advanced in Tuberous Sclerosis
      Neurology

      Dent Neurologic Group Llp

      3980 Sheridan Dr, 
      Amherst, NY 
      Languages Spoken:
      English

      Marc Frost is a Neurologist in Amherst, New York. Dr. Frost is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Memory Loss, Seizures, Epilepsy, and Photosensitive Epilepsy.

      Advanced in Tuberous Sclerosis
      Pediatric Neurology | Neurology
      Advanced in Tuberous Sclerosis
      Pediatric Neurology | Neurology

      Albany Medical College

      391 Myrtle Ave, 
      Albany, NY 
      Languages Spoken:
      English

      John Pugh is a Pediatric Neurologist and a Neurologist in Albany, New York. Dr. Pugh is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are HNRNPH2-Related Disorder, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Photosensitive Epilepsy, and Landau-Kleffner Syndrome.

      Sanjeev V. Kothare
      Experienced in Tuberous Sclerosis
      Pediatric Neurology
      Experienced in Tuberous Sclerosis
      Pediatric Neurology

      Cohen Children's Northwell Health Physician Partners Pediatric Neurology

      2001 Marcus Avenue, Suite W290, 
      Lake Success, NY 
      Languages Spoken:
      English, Gujarati , Hindi, Marathi

      Sanjeev Kothare is a Pediatric Neurologist in Lake Success, New York. Dr. Kothare is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Lennox-Gastaut Syndrome (LGS).

      Zipora Fefer
      Experienced in Tuberous Sclerosis
      Pediatric Neurology
      Experienced in Tuberous Sclerosis
      Pediatric Neurology

      Cohen Children's Northwell Health Physician Partners Pediatric Neurology

      2001 Marcus Avenue, Suite W290, 
      Lake Success, NY 
      Languages Spoken:
      English, Hebrew, Romanian

      Zipora Fefer is a Pediatric Neurologist in Lake Success, New York. Dr. Fefer is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Optic Glioma, and Craniopharyngioma.

      Shaun D. Rodgers
      Experienced in Tuberous Sclerosis
      Neurosurgery | General Surgery
      Experienced in Tuberous Sclerosis
      Neurosurgery | General Surgery
      410 Lakeville Road, Suite 204, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Shaun Rodgers is a General Surgeon and a Neurosurgery provider in New Hyde Park, New York. Dr. Rodgers is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Cerebellum Agenesis Hydrocephaly, Plagiocephaly, Hydrocephalus, Posterior Fossa Decompression, and Endoscopic Transnasal Transsphenoidal Surgery.

      Annie H. Roliz
      Experienced in Tuberous Sclerosis
      Pediatric Neurology
      Experienced in Tuberous Sclerosis
      Pediatric Neurology

      Cohen Children's Northwell Health Physician Partners Pediatric Specialty Care Center At Bay Shore

      376 East Main Street, Suite 101, 
      Bay Shore, NY 
      Languages Spoken:
      English

      Annie Roliz is a Pediatric Neurologist in Bay Shore, New York. Dr. Roliz is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Absence Seizure.

      Ivan M. Pavkovic
      Experienced in Tuberous Sclerosis
      Pediatric Neurology
      Experienced in Tuberous Sclerosis
      Pediatric Neurology

      Cohen Children's Northwell Health Physician Partners Pediatric Neurology

      2001 Marcus Avenue, Suite W290, 
      Lake Success, NY 
      Languages Spoken:
      English

      Ivan Pavkovic is a Pediatric Neurologist in Lake Success, New York. Dr. Pavkovic is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Trisomy 13, and Epilepsy.

      Laura J. Reyes
      Experienced in Tuberous Sclerosis
      Pediatric Nephrology
      Experienced in Tuberous Sclerosis
      Pediatric Nephrology

      Cohen Children's Northwell Health Physician Partners Pediatric Specialists At New Hyde Park

      410 Lakeville Road, Suite 300, 
      Lake Success, NY 
      Languages Spoken:
      English, Spanish

      Laura Reyes is a Pediatric Nephrologist in Lake Success, New York. Dr. Reyes is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Feingold Syndrome, Congenital Nephrotic Syndrome, and Nephrotic Syndrome. She is board certified in American Board Of Pediatrics and American Board Of Pediatrics/Nephrology.

      Judith Bluvstein
      Experienced in Tuberous Sclerosis
      Pediatric Neurology
      Experienced in Tuberous Sclerosis
      Pediatric Neurology

      Northwell Health Physician Partners Neurology At Third Avenue

      1317 3rd Avenue, 8th Floor, 
      New York, NY 
      Languages Spoken:
      English, Spanish

      Pediatric Neurologist and Clinical NeurophysiologistDirector of Pediatric Epilepsy Program at Lenox Hill Hospital Northwell HealthDirector of International Pediatric Neurology Program Northwell HealthClinical Professor of Neurology and Pediatrics, Zucker School of Medicine at Hofstra/Northwell. Dr. Bluvstein is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Seizures, Myoclonic Epilepsy, West Syndrome, and Epilepsy.

      Sophia Jan
      Experienced in Tuberous Sclerosis
      Pediatrics
      Experienced in Tuberous Sclerosis
      Pediatrics

      Northwell Health Adolescent & Pediatric Medicine

      410 Lakeville Road, Suite 108, 
      New Hyde Park, NY 
      Languages Spoken:
      English, Mandarin, Spanish

      Dr. Jan is the Division Director of General Pediatrics where she oversees clinical, teaching, and research operations for the Division of General Pediatrics for Cohen Children's Medical Center. She is also the Medical Director of the Health Homes Serving Children Program for Northwell Health, a care management program for pediatric Medicaid beneficiaries with complex medical or behavioral health needs. Dr. Jan has over a decade of clinical, programmatic and research experience in general pediatrics and general internal medicine. She specializes in the care of children and adults with complex medical needs and intellectual/developmental disabilities. She is the principal investigator of several federally and foundation funded research projects focusing on the delivery of healthcare and long-term care services for children and adults with chronic conditions originating in childhood. Dr. Jan earned her bachelor's degree from the City University of New York at Brooklyn College and her medical degree from the State University of New York Downstate Medical Center. She completed a dual residency in both pediatrics and internal medicine from the University of Pittsburgh Medical Center where she was also Chief Resident. She continued her fellowship training as a Robert Wood Johnson Foundation Clinical Scholar at the Perelman School of Medicine at UPenn, earning a master's in health policy research. Dr. Jan is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are COVID-19, Sickle Cell Disease, Hemoglobinopathy, and Thanatophoric Dysplasia.

      Northwell Health Physician Partners Neuroscience Institute At Great Neck

      611 Northern Boulevard, Suite 150, 
      Great Neck, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Simona Proteasa is a Neurologist in Great Neck, New York. Dr. Proteasa is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Seizures, Encephalitis, Epilepsy, Memory Loss, and Gastrostomy.

      Experienced in Tuberous Sclerosis
      Family Medicine
      Experienced in Tuberous Sclerosis
      Family Medicine

      Tri-County Family Medicine Program, Inc.

      111 Clara Barton St, 
      Dansville, NY 
      Languages Spoken:
      English

      Richard Parker is a primary care provider, practicing in Family Medicine in Dansville, New York. Dr. Parker is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Pulmonary Fibrosis, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Experienced in Tuberous Sclerosis
      Experienced in Tuberous Sclerosis

      Neurology Associates Of Stony Brook, University Faculty Practice Corpo

      Lauterbur Dr, 
      Stony Brook, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Agnieszka Kowalska is a Neurologist in Stony Brook, New York. Dr. Kowalska is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Glioblastoma, Gliosarcoma, Embryonal Tumor with Multilayered Rosettes, and Atypical Teratoid Rhabdoid Tumor (ATRT).

      Experienced in Tuberous Sclerosis
      Family Medicine
      Experienced in Tuberous Sclerosis
      Family Medicine

      Rochester General Hospital

      30 Hagen Dr, Suite 300, 
      Rochester, NY 
      Languages Spoken:
      English

      Letitia Devoesick is a primary care provider, practicing in Family Medicine in Rochester, New York. Dr. Devoesick is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Hypereosinophilic Syndrome, and Acute Eosinophilic Pneumonia.

      Showing 1-20 of 99

      Last Updated: 10/30/2025

      What is the definition of Tuberous Sclerosis?

      Tuberous sclerosis is a genetic disorder that affects the skin, brain/nervous system, kidneys, heart, and lungs. The condition can also cause tumors to grow in the brain. These tumors have a tuber or root-shaped appearance.

      When should I see a Tuberous Sclerosis doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Tuberous Sclerosis doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Tuberous Sclerosis doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Tuberous Sclerosis doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Tuberous Sclerosis doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tuberous Sclerosis doctor search results page. 

      Why is it important to get a second opinion from a different Tuberous Sclerosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Tuberous Sclerosis doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Tuberous Sclerosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Tuberous Sclerosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Tuberous Sclerosis doctors in New York, US?

      Look for the filter feature on the left side of the Tuberous Sclerosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Tuberous Sclerosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Tuberous Sclerosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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