Turcot Syndrome Overview
Learn About Turcot Syndrome
Condition 101 content is not available at this time, but we are continually updating the site. Please check back.
However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.
Thierry Andre practices in Paris, France. Mr. Andre is rated as an Elite expert by MediFind in the treatment of Turcot Syndrome. His top areas of expertise are Colorectal Cancer, Turcot Syndrome, Lynch Syndrome, Hepato-Pancreato-Biliary Surgery, and Pancreaticoduodenectomy.
Carol Durno practices in Toronto, Canada. Ms. Durno is rated as an Elite expert by MediFind in the treatment of Turcot Syndrome. Her top areas of expertise are Turcot Syndrome, Juvenile Polyposis Syndrome, Cafe-Au-Lait Spots, Colonoscopy, and Endoscopy.
Katharina Wimmer practices in Innsbruck, Austria. Ms. Wimmer is rated as an Elite expert by MediFind in the treatment of Turcot Syndrome. Her top areas of expertise are Turcot Syndrome, Cafe-Au-Lait Spots, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.
Summary: CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, in...
Summary: NOTE: This is a research study and is not meant to be a substitute for clinical genetic testing. Families may never receive results from the study or may receive results many years from the time they enroll. If you are interested in clinical testing please consider seeing a local genetic counselor or other genetics professional. If you have already had clinical genetic testing and meet eligibility...