Acceptance Des Maladies Chroniques Dermatologiques Visibles : Constitution d'échelles Pour le Patient et Son Cluster Familial
The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness).
• Targeted pathologies:
‣ Flat angioma
⁃ Primary hypopigmentation and early vitiligo
⁃ Primary hyperpigmentation
⁃ Refractory alopecia areata or congenital alopecia
• Persons concerned:
‣ Children (≥ 6 years old) suffering from one of the aforementioned pathologies
⁃ Adults suffering from one of the above-mentioned pathologies
⁃ Parents of children suffering from one of the aforementioned pathologies
⁃ Parents of young adult patients if they live under the same roof
• Oral agreement for each person (major/minor) and, where applicable, one of the holders of parental authority (minor)