Vascular Ehlers-Danlos Syndrome (VEDS)
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Vascular Ehlers-Danlos Syndrome (VEDS) Overview

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Learn About Vascular Ehlers-Danlos Syndrome (VEDS)

What is the definition of Vascular Ehlers-Danlos Syndrome (VEDS)?
Vascular Ehlers-Danlos syndrome is a more severe form of Ehlers-Danlos syndrome, which is a genetic disorder that affects the connective tissues, such as the skin, blood vessel walls, and joints. Vascular Ehlers-Danlos syndrome can cause the walls of blood vessels, the intestines, or the uterus to rupture.
What are the symptoms of Vascular Ehlers-Danlos Syndrome (VEDS)?
Symptoms of vascular Ehlers-Danlos syndrome include a thin nose, thin upper lip, small earlobes, and prominent eyes, with translucent skin that bruises easily, and fragile blood vessels. Other symptoms of vascular Ehlers-Danlos syndrome may include short stature, premature aging of skin, receding gums, glaucoma, hypermobility of small joints, high blood pressure, collapsed lung, joint dislocations, undescended testicles, uterine prolapse or rupture, and cognitive impairment.
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What are the current treatments for Vascular Ehlers-Danlos Syndrome (VEDS)?
There is no cure for vascular Ehlers-Danlos syndrome. Treatment for vascular Ehlers-Danlos syndrome is mostly focused on alleviating symptoms and preventing complications, such as joint dislocations. Treatment for vascular Ehlers-Danlos syndrome includes pain relievers, such as acetaminophen, ibuprofen, and naproxen sodium; medications to lower blood pressure; physical therapy; braces; and surgery to repair joints or ruptured blood vessels and organs. Patients with Ehlers-Danlos syndrome should be regularly screened for aneurysms, which are ballooning of the arteries with possible rupture. Heavy lifting and contact sports should be avoided. Avoid chewing gum, hard foods, and ice. Wear supportive shoes, and sleep with body pillows on a dense foam mattress to provide joint support. Women with vascular Ehlers-Danlos syndrome who are considering pregnancy should meet with a genetic counsellor.
Who are the top Vascular Ehlers-Danlos Syndrome (VEDS) Local Doctors?
Advanced in Vascular Ehlers-Danlos Syndrome (VEDS)
Dr. Angela T. Yetman
Pediatric Cardiology | Cardiology
Advanced in Vascular Ehlers-Danlos Syndrome (VEDS)
Dr. Angela T. Yetman
Pediatric Cardiology | Cardiology
Referral required

Heart And Vascular Center At Durham Outpatient Center

4400 Emile St., 
Omaha, NE 
402-559-8888
Experience:
35+ years
Languages Spoken:
English
See accepted insurances

Angela Yetman is a Cardiologist and a Pediatric Cardiologist practicing medicine in Omaha, Nebraska. She has been practicing medicine for over 35 years. Dr. Yetman is rated as an Advanced provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Turner Syndrome, Congenital Contractural Arachnodactyly, and Congenital Heart Disease (CHD).

Elite in Vascular Ehlers-Danlos Syndrome (VEDS)
Elite in Vascular Ehlers-Danlos Syndrome (VEDS)
Referral may be required
Paris, FR 

Xavier Jeunemaitre practices practicing medicine in Paris, France. Mr. Jeunemaitre is rated as an Elite expert by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Vascular Ehlers-Danlos Syndrome (VEDS), Fibromuscular Dysplasia (FMD), Ehlers-Danlos Syndrome (EDS), Pseudohypoaldosteronism Type 1, and Angioplasty.

 
 
 
 
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Elite in Vascular Ehlers-Danlos Syndrome (VEDS)
Dr. Peter H. Byers
Medical Genetics
Elite in Vascular Ehlers-Danlos Syndrome (VEDS)
Dr. Peter H. Byers
Medical Genetics
Referral may be required

The Association Of University Physicians

1959 Ne Pacific St, 
Seattle, WA 
206-598-4333
Languages Spoken:
English, Hindi, Spanish
See accepted insurances
Accepting New Patients
Offers Telehealth

Peter Byers is a Medical Genetics provider practicing medicine in Seattle, Washington. Dr. Byers is rated as an Elite provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and De Barsy Syndrome. Dr. Byers is currently accepting new patients.

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What are the latest Vascular Ehlers-Danlos Syndrome (VEDS) Clinical Trials?
Metabolic Phenotyping in Individuals With Vascular Ehlers-Danlos Syndrome (vEDS)
Metabolic Phenotyping in Individuals With Vascular Ehlers-Danlos Syndrome (vEDS)
Enrollment Status: Recruiting
Publish Date: April 08, 2026
Intervention Type: Other

Summary: This research study will investigate whether people with vascular Ehlers-Danlos syndrome (vEDS), a rare inherited condition, have problems with the way their body stores and uses fat (adipose tissue). vEDS is caused by changes in a gene called COL3A1, which makes a protein important for the structure of many tissues. While vEDS is best known for making blood vessels fragile, there is some early ev...

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A Phase 3 Randomized, Double-Blind, Decentralized Clinical Trial to Compare the Efficacy of Celiprolol to Placebo in the Treatment of Patients With COL3A1-Positive Vascular Ehlers-Danlos Syndrome
A Phase 3 Randomized, Double-Blind, Decentralized Clinical Trial to Compare the Efficacy of Celiprolol to Placebo in the Treatment of Patients With COL3A1-Positive Vascular Ehlers-Danlos Syndrome
Enrollment Status: Recruiting
Publish Date: August 24, 2025
Intervention Type: Drug
Study Phase: Phase 3

Summary: This is a prospective, Phase 3, randomized, double-blind, placebo-controlled efficacy study to evaluate celiprolol in patients genetically confirmed as COL3A1-positive vEDS using a decentralized clinical trial design.

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