Vascular Ehlers-Danlos Syndrome (VEDS) Overview
Learn About Vascular Ehlers-Danlos Syndrome (VEDS)
Xavier Jeunemaitre practices in Paris, France. Jeunemaitre and is rated as an Elite expert by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), Fibromuscular Dysplasia (FMD), Pseudohypoaldosteronism Type 1, and Angioplasty.
The Association Of University Physicians
Peter Byers is a Medical Genetics provider in Seattle, Washington. Dr. Byers and is rated as an Elite provider by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), Osteogenesis Imperfecta, and De Barsy Syndrome. Dr. Byers is currently accepting new patients.
Salma Adham practices in Montpellier, France. Adham and is rated as an Elite expert by MediFind in the treatment of Vascular Ehlers-Danlos Syndrome (VEDS). Her top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), Pseudoxanthoma Elasticum, and Meige Disease.
Summary: Vascular Ehlers-Danlos Syndrome (VEDS) is caused by pathogenic variants of the COL3A1 gene, resulting abnormal Type III collagen protein. This impacts the body's connective tissue and makes people with VEDS at high risk of spontaneous aortic and arterial rupture, pneumothorax, and hollow organ perforation across the age spectrum. Given this risk and high potential for lethality, VEDS is considered...
Summary: This is a prospective, Phase 3, randomized, double-blind, placebo-controlled efficacy study to evaluate celiprolol in patients genetically confirmed as COL3A1-positive vEDS using a decentralized clinical trial design.