Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection
Status: Recruiting
Location: See all (13) locations...
Study Type: Observational
SUMMARY
The aim is rapid collection of real-life data on the epidemiology, treatment and disease course in patients with VEXAS syndrome during routine clinical practice and collect biomaterials to evaluate genotype-phenotype associations, determine optimal treatment schedule, identify diagnostic features and biomarkers
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:
• Patients with established or suspected (clinical and hematological criteria) VEXAS Syndrome
• Age ≥18 years
• Signed informed consent form
Locations
Other Locations
Germany
Universitätsklinikum Aachen
RECRUITING
Aachen
Klinikum Chemnitz gGmbH
RECRUITING
Chemnitz
Universitätsklinikum Carl Gustav Carus
RECRUITING
Dresden
Universitätsklinikum Düsseldorf
RECRUITING
Düsseldorf
Evang. Kliniken Essen-Mitte
RECRUITING
Essen
Universitätsklinikum Hamburg-Eppendorf
RECRUITING
Hamburg
Universitätsklinikum Leipzig AöR
RECRUITING
Leipzig
Universitätsmedizin Mannheim
RECRUITING
Mannheim
Klinikum rechts der Isar TUM
RECRUITING
München
Klinikum Osnabrück GmbH
RECRUITING
Osnabrück
Helios Kliniken Schwerin GmbH
RECRUITING
Schwerin
Robert Bosch Gesellschaft für Medizinische Forschung mb
RECRUITING
Stuttgart
Krankenhaus der Barmherzigen Brüder
RECRUITING
Trier
Contact Information
Primary
Katja Sockel, Dr. med.
katja.sockel@ukdd.de
+493514585627
Backup
Katharina Goetze, Prof.
katharina.goetze@tum.de
+498941404618
Time Frame
Start Date: 2024-03-13
Estimated Completion Date: 2030-12-31
Participants
Target number of participants: 500
Related Therapeutic Areas
Sponsors
Leads: Technische Universität Dresden
Collaborators: Bristol-Myers Squibb, University Hospital Munich