The 20 Best Vici Syndrome Doctors in The United Kingdom

Find the Top Vici Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 27 doctor with experience in Vici Syndrome near The United Kingdom. Of these, 10 are Advanced, 8 are Experienced, 5 are Distinguished and 4 are Elite.

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27 providers found
    Elite in Vici Syndrome

    Heinz J. Jungbluth
    Elite in Vici Syndrome

    Heinz J. Jungbluth
    Guy's And St, 
    London, ENG, GB 

    Heinz Jungbluth practices practicing medicine in London, United Kingdom. Mr. Jungbluth is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Centronuclear Myopathy, Rhabdomyolysis, and Tubular Aggregate Myopathy.

    Elite in Vici Syndrome

    Arveen P. Kamath
    Elite in Vici Syndrome

    Arveen P. Kamath
    Heath Park, 
    Cardiff, WLS, GB 

    Arveen Kamath practices practicing medicine in Cardiff, United Kingdom. Ms. Kamath is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Vici Syndrome, Corpus Callosum Agenesis, Marshall-Smith Syndrome, and Acrofacial Dysostosis Nager Type.

    Elite in Vici Syndrome

    Mathias Gautel
    Elite in Vici Syndrome

    Mathias Gautel
    London, ENG, GB 

    Mathias Gautel practices practicing medicine in London, United Kingdom. Mr. Gautel is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Corpus Callosum Agenesis, Amyotonia Congenita, Myotonia Congenita, and Heart Transplant.

    Learn about our expert tiers
    Elite in Vici Syndrome

    Manolis L. Fanto
    Elite in Vici Syndrome

    Manolis L. Fanto
    London, ENG, GB 

    Manolis Fanto practices practicing medicine in London, United Kingdom. Mr. Fanto is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Corpus Callosum Agenesis, Dentatorubral-Pallidoluysian Atrophy, and Lafora Disease.

    Distinguished in Vici Syndrome

    Shehla N. Mohammed
    Distinguished in Vici Syndrome

    Shehla N. Mohammed
    Guy's And St Thomas' NHS Trust, 
    London, ENG, GB 

    Shehla Mohammed practices practicing medicine in London, United Kingdom. Mohammed is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Vici Syndrome, Cockayne Syndrome, Cockayne Syndrome Type 2, and Cockayne Syndrome Type 1.

    Distinguished in Vici Syndrome

    Thomas Cullup
    Distinguished in Vici Syndrome

    Thomas Cullup
    Great Ormond Street Hospital, Guilford St, 
    London, ENG, GB 

    Thomas Cullup practices practicing medicine in London, United Kingdom. Mr. Cullup is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Distinguished in Vici Syndrome

    Shu H. Yau
    Distinguished in Vici Syndrome

    Shu H. Yau
    Bristol, ENG, GB 

    Shu Yau practices practicing medicine in Bristol, United Kingdom. Yau is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Vici Syndrome, Floating-Harbor Syndrome, Corpus Callosum Agenesis, and Asperger's Syndrome.

    Distinguished in Vici Syndrome

    Rachael A. Mein
    Distinguished in Vici Syndrome

    Rachael A. Mein
    London, ENG, GB 

    Rachael Mein practices practicing medicine in London, United Kingdom. Ms. Mein is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Vici Syndrome, Multiple Pterygium Syndrome, Congenital Contractures, Arthrogryposis Multiplex Congenita, and Gastrostomy.

    Distinguished in Vici Syndrome

    Luke M. Smith
    Distinguished in Vici Syndrome

    Luke M. Smith
    Great Ormond Street Hospital London, 
    London, ENG, GB 

    Luke Smith practices practicing medicine in London, United Kingdom. Mr. Smith is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Vici Syndrome, Craniosynostosis, Corpus Callosum Agenesis, Metopic Ridge, and Craniectomy.

    Advanced in Vici Syndrome

    Caroline A. Sewry
    Advanced in Vici Syndrome

    Caroline A. Sewry
    Manchester, ENG, GB 

    Caroline Sewry practices practicing medicine in Manchester, United Kingdom. Ms. Sewry is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Advanced in Vici Syndrome

    Celine Deneubourg
    Advanced in Vici Syndrome

    Celine Deneubourg
    London, ENG, GB 

    Celine Deneubourg practices practicing medicine in London, United Kingdom. Ms. Deneubourg is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Vici Syndrome, Myoclonic Epilepsy, Seizures, and Hereditary Spastic Paraparesis.

    Advanced in Vici Syndrome

    Daniela T. Pilz
    Advanced in Vici Syndrome

    Daniela T. Pilz
    Glasgow, SCT, GB 

    Daniela Pilz practices practicing medicine in Glasgow, United Kingdom. Ms. Pilz is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Agyria Pachygyria Polymicrogyria, Focal or Multifocal Malformations in Neuronal Migration, Polymicrogyria, and Lissencephaly.

    Advanced in Vici Syndrome

    Reza Maroofian
    Advanced in Vici Syndrome

    Reza Maroofian

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Reza Maroofian practices practicing medicine in London, United Kingdom. Mr. Maroofian is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 58 other conditions, according to our data. His clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, Microcephaly, Cortical Dysplasia, and Deep Brain Stimulation.

    Advanced in Vici Syndrome

    James C. Jepson
    Advanced in Vici Syndrome

    James C. Jepson

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    James Jepson practices practicing medicine in London, United Kingdom. Mr. Jepson is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Riboflavin Transporter Deficiency Neuronopathy, Myoclonic Epilepsy, and Primary Lateral Sclerosis.

    Advanced in Vici Syndrome

    Adnan Y. Manzur
    Advanced in Vici Syndrome

    Adnan Y. Manzur
    Great Ormond Street Hospital Biomedical Research Centre, 
    London, ENG, GB 

    Adnan Manzur practices practicing medicine in London, United Kingdom. Manzur is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. They are also highly rated in 19 other conditions, according to our data. Their clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Primary Lateral Sclerosis, Congenital Myasthenic Syndrome, and Gastrostomy.

    Advanced in Vici Syndrome

    Ay L. Kho
    Advanced in Vici Syndrome

    Ay L. Kho
    London, ENG, GB 

    Ay Kho practices practicing medicine in London, United Kingdom. Kho is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Vici Syndrome, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Vici Syndrome

    Simon A. Lowe
    Advanced in Vici Syndrome

    Simon A. Lowe

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Simon Lowe practices practicing medicine in London, United Kingdom. Mr. Lowe is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Vici Syndrome, Myoclonic Epilepsy, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Advanced in Vici Syndrome

    Gabriele Lignani
    Advanced in Vici Syndrome

    Gabriele Lignani

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Gabriele Lignani practices practicing medicine in London, United Kingdom. Ms. Lignani is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, and Dravet Syndrome.

    Advanced in Vici Syndrome

    Dragana J. Josifova
    Advanced in Vici Syndrome

    Dragana J. Josifova

    Guy's And St Thomas' NHS Trust

    London, ENG, GB 

    Dragana Josifova practices practicing medicine in London, United Kingdom. Josifova is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses CHARGE Syndrome, Riboflavin Transporter Deficiency Neuronopathy, Cortical Dysplasia, and Vici Syndrome.

    Experienced in Vici Syndrome

    Henry H. Houlden
    Experienced in Vici Syndrome

    Henry H. Houlden

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Henry Houlden practices practicing medicine in London, United Kingdom. Mr. Houlden is rated as an Experienced expert by MediFind in the treatment of Vici Syndrome. He is also highly rated in 134 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 27

    Last Updated: 04/28/2026

    What is the definition of Vici Syndrome?

    Vici syndrome is a severe disorder that begins early in life and affects many body systems. It is characterized by abnormalities of the brain, immune system, heart, skin, and eyes. Other organs and tissues are less commonly affected.

    When should I see a Vici Syndrome doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Vici Syndrome doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Vici Syndrome doctor in The United Kingdom?

    You can find a Vici Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Vici Syndrome doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Vici Syndrome doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Vici Syndrome doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Vici Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Vici Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Vici Syndrome doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Vici Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Vici Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Vici Syndrome doctors in The United Kingdom?

    Look for the filter feature on the left side of the Vici Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Vici Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Vici Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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