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    Last Updated: 01/09/2026

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    MediFind found 28 doctor with experience in Vici Syndrome near The United Kingdom. Of these, 11 are Distinguished, 8 are Advanced, 5 are Experienced and 4 are Elite.

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    28 providers found
      Elite in Vici Syndrome
      Elite in Vici Syndrome
      Guy's And St. Thomas' Hospitals, 
      London, ENG, GB 

      Heinz Jungbluth practices in London, United Kingdom. Mr. Jungbluth is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Vici Syndrome, Centronuclear Myopathy, Rhabdomyolysis, Congenital Fiber-Type Disproportion, and Heart Transplant.

      Elite in Vici Syndrome
      Elite in Vici Syndrome
      Heath Park, 
      Cardiff, WLS, GB 

      Arveen Kamath practices in Cardiff, United Kingdom. Ms. Kamath is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. Her top areas of expertise are Vici Syndrome, Marshall-Smith Syndrome, Septo-Optic Dysplasia, and Corpus Callosum Agenesis.

      Elite in Vici Syndrome
      Elite in Vici Syndrome
      London, ENG, GB 

      Manolis Fanto practices in London, United Kingdom. Mr. Fanto is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Vici Syndrome, Corpus Callosum Agenesis, Lafora Disease, and Dentatorubral-Pallidoluysian Atrophy.

      Learn about our expert tiers
      Elite in Vici Syndrome
      Elite in Vici Syndrome
      London, ENG, GB 

      Mathias Gautel practices in London, United Kingdom. Mr. Gautel is rated as an Elite expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Vici Syndrome, Corpus Callosum Agenesis, Amyotonia Congenita, Myotonia Congenita, and Heart Transplant.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome
      London, ENG, GB 

      Celine Deneubourg practices in London, United Kingdom. Ms. Deneubourg is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. Her top areas of expertise are Vici Syndrome, Myoclonic Epilepsy, Seizures, and Beta-Propeller Protein-Associated Neurodegeneration.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome
      Guy's And St Thomas' NHS Foundation Trust, 
      London, ENG, GB 

      Shehla Mohammed practices in London, United Kingdom. Mohammed is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. Their top areas of expertise are Vici Syndrome, Cockayne Syndrome, Cockayne Syndrome Type 1, and Cockayne Syndrome Type 2.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome
      Great Ormond Street Hospital, Guilford St, 
      London, ENG, GB 

      Thomas Cullup practices in London, United Kingdom. Mr. Cullup is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Vici Syndrome, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Reza Maroofian practices in London, United Kingdom. Mr. Maroofian is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, Microcephaly, Cortical Dysplasia, and Deep Brain Stimulation.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      James Jepson practices in London, United Kingdom. Mr. Jepson is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Vici Syndrome, Riboflavin Transporter Deficiency Neuronopathy, Myoclonic Epilepsy, and Primary Lateral Sclerosis.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome
      Bristol, ENG, GB 

      Shu Yau practices in Bristol, United Kingdom. Yau is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. Their top areas of expertise are Vici Syndrome, Floating-Harbor Syndrome, Corpus Callosum Agenesis, and IPEX Syndrome.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome
      Manchester, ENG, GB 

      Caroline Sewry practices in Manchester, United Kingdom. Ms. Sewry is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. Her top areas of expertise are X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Amanda Barbanoj-Almacellas practices in London, United Kingdom. Ms. Barbanoj-Almacellas is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. Her top areas of expertise are Vici Syndrome, Absence Seizure, Seizures, and Generalized Tonic-Clonic Seizure.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Simon Lowe practices in London, United Kingdom. Mr. Lowe is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Vici Syndrome, Myoclonic Epilepsy, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Gabriele Lignani practices in London, United Kingdom. Ms. Lignani is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. Her top areas of expertise are Vici Syndrome, Epilepsy, Myoclonic Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Distinguished in Vici Syndrome
      Distinguished in Vici Syndrome
      London, ENG, GB 

      Rachael Mein practices in London, United Kingdom. Ms. Mein is rated as a Distinguished expert by MediFind in the treatment of Vici Syndrome. Her top areas of expertise are Vici Syndrome, Multiple Pterygium Syndrome, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Gastrostomy.

      Advanced in Vici Syndrome
      Advanced in Vici Syndrome
      Cambridge, ENG, GB 

      Luke Smith practices in Cambridge, United Kingdom. Mr. Smith is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Vici Syndrome, Craniosynostosis, Corpus Callosum Agenesis, Metopic Ridge, and Craniectomy.

      Advanced in Vici Syndrome
      Advanced in Vici Syndrome

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Henry Houlden practices in London, United Kingdom. Mr. Houlden is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

      Advanced in Vici Syndrome
      Advanced in Vici Syndrome
      Oxford, ENG, GB 

      Sandeep Jayawant practices in Oxford, United Kingdom. Mr. Jayawant is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. His top areas of expertise are Congenital Myasthenic Syndrome, Vici Syndrome, Drug Induced Dyskinesia, and Epilepsy.

      Advanced in Vici Syndrome
      Advanced in Vici Syndrome
      Glasgow, SCT, GB 

      Daniela Pilz practices in Glasgow, United Kingdom. Ms. Pilz is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. Her top areas of expertise are Agyria Pachygyria Polymicrogyria, Focal or Multifocal Malformations in Neuronal Migration, Polymicrogyria, and Lissencephaly.

      Advanced in Vici Syndrome
      Advanced in Vici Syndrome
      Great Ormond Street Hospital Biomedical Research Centre, 
      London, ENG, GB 

      Adnan Manzur practices in London, United Kingdom. Manzur is rated as an Advanced expert by MediFind in the treatment of Vici Syndrome. Their top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Primary Lateral Sclerosis, Congenital Myasthenic Syndrome, and Gastrostomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 28

      Last Updated: 01/09/2026

      What is the definition of Vici Syndrome?

      Vici syndrome is a severe disorder that begins early in life and affects many body systems. It is characterized by abnormalities of the brain, immune system, heart, skin, and eyes. Other organs and tissues are less commonly affected.

      When should I see a Vici Syndrome doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Vici Syndrome doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Vici Syndrome doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Vici Syndrome doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Vici Syndrome doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Vici Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Vici Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Vici Syndrome doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Vici Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Vici Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Vici Syndrome doctors in The United Kingdom?

      Look for the filter feature on the left side of the Vici Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Vici Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Vici Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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