Data Collection Protocol for Patients With Von Hippel Lindau Disease
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:
• Presence of genetic confirmation or clinical criteria consistent with vHL disease.
• Ability to understand and the willingness to sign a written informed consent document.
Locations
United States
Texas
M D Anderson Cancer Center
RECRUITING
Houston
Contact Information
Primary
Eric Jonasch, MD
ejonasch@mdanderson.org
(713) 563-7232
Time Frame
Start Date: 2023-08-24
Estimated Completion Date: 2026-12-31
Participants
Target number of participants: 125
Related Therapeutic Areas
Sponsors
Leads: M.D. Anderson Cancer Center